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General Parenting
matromes: partial seizures
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<blockquote data-quote="susiestar" data-source="post: 149226" data-attributes="member: 1233"><p>Sara, I am sorry your son is still having these seizures. And that you are.</p><p> </p><p>They say my migraines MAY be a type of seizure activity, but nothing shows on the EEG. </p><p> </p><p>I know my daughter's epilepsy was a TOTAL surprise - I really pushed to get it done based on YOUR advice, Sara PA. I don't know if I ever said this, but THANK YOU SO MUCH!! My daughter would have been on stimulants or stratterra because they kept saying it was ADHD.</p><p> </p><p>We are still homeschooling her - planning to enroll her in junior high for 8th grade in the fall. I want one more neuro visit (anyone in OK or wanting to come to Tulsa for a GREAT, FABULOUS, AMAZING child neuro PM me for the info!) and to make sure her seizures are controlled. </p><p> </p><p>She is not happy to have the absence epilepsy, but knows it will always be with her. </p><p> </p><p>I will say that the pain syndrome I am experiencing is explained much like the seizures - little bits of electricity where they shouldn't be. It is currently destroying MY life, but there is new research and hope for pain treatment for WOMEN. They are finding (what a shock, right?) that males and females react differently to things, and some medications ONLY work for women, some ONLY for women with a certain gene, and some ONLY for men. </p><p> </p><p>I have a feeling that they will find seizure treatments need to be different for males and females, in part based on new research. </p><p> </p><p>Again, Thanks SaraPA, for pushing me into having the children given sleep deprived EEGs when ADHD like problems showed up.</p><p> </p><p>Susie</p></blockquote><p></p>
[QUOTE="susiestar, post: 149226, member: 1233"] Sara, I am sorry your son is still having these seizures. And that you are. They say my migraines MAY be a type of seizure activity, but nothing shows on the EEG. I know my daughter's epilepsy was a TOTAL surprise - I really pushed to get it done based on YOUR advice, Sara PA. I don't know if I ever said this, but THANK YOU SO MUCH!! My daughter would have been on stimulants or stratterra because they kept saying it was ADHD. We are still homeschooling her - planning to enroll her in junior high for 8th grade in the fall. I want one more neuro visit (anyone in OK or wanting to come to Tulsa for a GREAT, FABULOUS, AMAZING child neuro PM me for the info!) and to make sure her seizures are controlled. She is not happy to have the absence epilepsy, but knows it will always be with her. I will say that the pain syndrome I am experiencing is explained much like the seizures - little bits of electricity where they shouldn't be. It is currently destroying MY life, but there is new research and hope for pain treatment for WOMEN. They are finding (what a shock, right?) that males and females react differently to things, and some medications ONLY work for women, some ONLY for women with a certain gene, and some ONLY for men. I have a feeling that they will find seizure treatments need to be different for males and females, in part based on new research. Again, Thanks SaraPA, for pushing me into having the children given sleep deprived EEGs when ADHD like problems showed up. Susie [/QUOTE]
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