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matromes: partial seizures
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<blockquote data-quote="BestICan" data-source="post: 149274" data-attributes="member: 3413"><p>Hi, in case it helps, I can tell you about how my son's seizures were diagnosed:</p><p></p><p>He has partial complex seizures, and his first one occurred in his Kindergarten class at school. The school nurse called and put difficult child on the phone. He said, "Mom, I feel funny in my head." The nurse said that he looked fine but a little droopy. We both agreed he should be sent back to class, which he was, and before long he was sent to the office for biting another child (which he'd NEVER done before). To this day I feel horrible that I didn't take that call from the nurse seriously - it would be a few more months before we took him to a neuro. </p><p></p><p>difficult child had some seizures that he was aware of and experienced consciously, and some that he didn't seem to be aware of. During the ones he remembered, he said he felt a sudden onset of terrible fear, like something very scary was right behind him. Watching him, he just seemed to stare a bit, and he could sometimes respond in a dazed whisper if I asked him a question. The staring would last maybe a minute. Then he'd "come back," responding normally, but he'd become very tired and pale, and maybe even fall asleep for a few minutes. Often I failed to notice the seizures, but I began to rely on the tiredness episode as an indication that one might have happened recently.</p><p></p><p>The worst part as a parent: for hours before and hours after the seizure, he'd be incredibly revved up, like really severe ADHD, unable to control his impulses, absolutely unable to stop! Behaviors were much worse after the seizure than leading up to it. With the benefit of hindsight, I could often tie a known seizure to several previous hours of uncontrollable behaviors. I'm pretty sure that if I didn't have such a verbal son who could describe his experience, he'd have been misdiagnosed as having bi-polar because his moods were so different from day to day. His K teacher told me one day, "The difficult child I get in the morning is the difficult child I'm going to have all day, but I never know what I'm going to get." </p><p></p><p>After seizures, he also had trouble remembering common words (kept saying "cowfice" instead of "sofa" and tried and tried to get the right word but couldn't), and had sobbing fits that weren't connected to anything that would normally upset him ("I miss the purple bunny I used to have!")</p><p></p><p>He's had an MRI and a couple of EEGs. Nothing showed up on those, but he was given the official diagnosis when a trial run of the medication stopped the episodes. As far as we can tell, he's been seizure-free for almost 2 years now! His behaviors continue to be problematic but nothing like that year in Kindergarten.</p><p></p><p>Good luck, hope this was useful.</p></blockquote><p></p>
[QUOTE="BestICan, post: 149274, member: 3413"] Hi, in case it helps, I can tell you about how my son's seizures were diagnosed: He has partial complex seizures, and his first one occurred in his Kindergarten class at school. The school nurse called and put difficult child on the phone. He said, "Mom, I feel funny in my head." The nurse said that he looked fine but a little droopy. We both agreed he should be sent back to class, which he was, and before long he was sent to the office for biting another child (which he'd NEVER done before). To this day I feel horrible that I didn't take that call from the nurse seriously - it would be a few more months before we took him to a neuro. difficult child had some seizures that he was aware of and experienced consciously, and some that he didn't seem to be aware of. During the ones he remembered, he said he felt a sudden onset of terrible fear, like something very scary was right behind him. Watching him, he just seemed to stare a bit, and he could sometimes respond in a dazed whisper if I asked him a question. The staring would last maybe a minute. Then he'd "come back," responding normally, but he'd become very tired and pale, and maybe even fall asleep for a few minutes. Often I failed to notice the seizures, but I began to rely on the tiredness episode as an indication that one might have happened recently. The worst part as a parent: for hours before and hours after the seizure, he'd be incredibly revved up, like really severe ADHD, unable to control his impulses, absolutely unable to stop! Behaviors were much worse after the seizure than leading up to it. With the benefit of hindsight, I could often tie a known seizure to several previous hours of uncontrollable behaviors. I'm pretty sure that if I didn't have such a verbal son who could describe his experience, he'd have been misdiagnosed as having bi-polar because his moods were so different from day to day. His K teacher told me one day, "The difficult child I get in the morning is the difficult child I'm going to have all day, but I never know what I'm going to get." After seizures, he also had trouble remembering common words (kept saying "cowfice" instead of "sofa" and tried and tried to get the right word but couldn't), and had sobbing fits that weren't connected to anything that would normally upset him ("I miss the purple bunny I used to have!") He's had an MRI and a couple of EEGs. Nothing showed up on those, but he was given the official diagnosis when a trial run of the medication stopped the episodes. As far as we can tell, he's been seizure-free for almost 2 years now! His behaviors continue to be problematic but nothing like that year in Kindergarten. Good luck, hope this was useful. [/QUOTE]
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