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Name for Type of Seizure
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<blockquote data-quote="slsh" data-source="post: 462866" data-attributes="member: 8"><p>Susie - the eye twitching thing sounds like nystagmus. Boo has partial complex seizures (affecting only part of his body, he's unresponsive and is not aware of his surroundings) that rapidly zoom into secondary generalized seizures (typical grand mal). If the seizure doesn't get stopped, he then goes into a nonconvulsive seizure (there's no obviously movement of extremities - he's actually pretty loose-toned at this point - but his eyes are rhythmically going back and forth (nystagmus) and he's still unaware and unresponsive) and then he'll flip back and forth from generalized to nonconvulsive and back until he's hit with enough Ativan to stop them. </p><p></p><p>I've never really looked at Boo's mouth (other than to check for cyanosis) so I have no idea what his tongue may be doing.</p><p></p><p>To my layman's eye, it sounds like Jess is having partial simple seizures because she's still aware, though may be unable to respond. The nystagmus just sounds like a new layer, I would guess because of the seizure activity moving to a different part of the brain. Maybe the falling-asleep feeling is her moving to a more partial complex seizure type - I dunno.</p><p></p><p>Did she have any weakness after any of the episodes? Boo usually gets Todd's palsy afterward - weakness on 1 or the other side of his body - usually the opposite side from where the seizure started. Because he can't use his extremities anyway, I'm not sure how much they are affected, but his face is where it really shows up. He'll smile at me and only half of his mouth will move. Freaked me *out* the first time - I thought he'd had a stroke. Usually resolves in 24-48 hours.</p><p></p><p>It never ceases to amaze me the lack of knowledge about seizures in the medical community. It's really quite scary. Last sz, they wouldn't let me in until he was "stable". Which, of course, he wasn't - he was having his nonconvulsive thing going on but I couldn't get anyone to listen until he started back up with the tonic-clonic movements. We're fighting the assumption that because he has CP, he's near-comatose anyway (what a stupid assumption), so I've had blankets printed up with- a warning about nonconvulsive activity. Boo is alert and responsive at baseline. If he's not responsive and has nystagmus, he's seizing. So even if they won't let the overprotective mom back in the ER, the info will be right there on his body.</p><p></p><p>I hope this new neuro knows his stuff and will listen. If you have a video camera, I'd get these episodes documented. In spite of 13 years of epilepsy here, Boo's never had an abnormal EEG. Seeing is believing.</p><p></p><p>Hugs to you and Jess.</p></blockquote><p></p>
[QUOTE="slsh, post: 462866, member: 8"] Susie - the eye twitching thing sounds like nystagmus. Boo has partial complex seizures (affecting only part of his body, he's unresponsive and is not aware of his surroundings) that rapidly zoom into secondary generalized seizures (typical grand mal). If the seizure doesn't get stopped, he then goes into a nonconvulsive seizure (there's no obviously movement of extremities - he's actually pretty loose-toned at this point - but his eyes are rhythmically going back and forth (nystagmus) and he's still unaware and unresponsive) and then he'll flip back and forth from generalized to nonconvulsive and back until he's hit with enough Ativan to stop them. I've never really looked at Boo's mouth (other than to check for cyanosis) so I have no idea what his tongue may be doing. To my layman's eye, it sounds like Jess is having partial simple seizures because she's still aware, though may be unable to respond. The nystagmus just sounds like a new layer, I would guess because of the seizure activity moving to a different part of the brain. Maybe the falling-asleep feeling is her moving to a more partial complex seizure type - I dunno. Did she have any weakness after any of the episodes? Boo usually gets Todd's palsy afterward - weakness on 1 or the other side of his body - usually the opposite side from where the seizure started. Because he can't use his extremities anyway, I'm not sure how much they are affected, but his face is where it really shows up. He'll smile at me and only half of his mouth will move. Freaked me *out* the first time - I thought he'd had a stroke. Usually resolves in 24-48 hours. It never ceases to amaze me the lack of knowledge about seizures in the medical community. It's really quite scary. Last sz, they wouldn't let me in until he was "stable". Which, of course, he wasn't - he was having his nonconvulsive thing going on but I couldn't get anyone to listen until he started back up with the tonic-clonic movements. We're fighting the assumption that because he has CP, he's near-comatose anyway (what a stupid assumption), so I've had blankets printed up with- a warning about nonconvulsive activity. Boo is alert and responsive at baseline. If he's not responsive and has nystagmus, he's seizing. So even if they won't let the overprotective mom back in the ER, the info will be right there on his body. I hope this new neuro knows his stuff and will listen. If you have a video camera, I'd get these episodes documented. In spite of 13 years of epilepsy here, Boo's never had an abnormal EEG. Seeing is believing. Hugs to you and Jess. [/QUOTE]
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