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Name for Type of Seizure
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<blockquote data-quote="susiestar" data-source="post: 463378" data-attributes="member: 1233"><p>No. We are in a very different and strange area for 911. They probably would take her to the local ER, but the ER isn't going to do anything. been there done that and all they will do is look at her, tell her to take deep breaths and relax and it will all go away. Seriously. The ER staff here has already told us that they don't believe that most of what people are told are seizures are actual seizures - except the grand mal kind. I know this sounds NUTS. I really do. I am NOT making it up. The most the local podunk ER will do is give her a benadryl, I have NO faith in these people. They are the ones who said that she couldn't have been hit by a car because she wasn't dirty. Gee, the pile of baby wipes at home that we used to clean her up because a lot of it was dried grass and gravel? Would not have been believed to have been used to clean her up if they had done it themselves or the paramedics had seen us do it.</p><p></p><p>We have a 90 min ride to the big city ER and I don't have a lot of faith that they will do anything either. It svcks great big ostrich eggs, but getting the family doctor to call them Tues is what will get us the fastest help. The city ER, regardless of which city we choose, will tell us that they can't do anything and give us a prescription for a 24hr EEG. Which cannot be done in this state with-o the approval of the neuro we are going to see in Oct. I already danced that dance twice, having gone to the children's ER in both of the big cities and gotten the same thing. I do have faith that this neuro will listen to us.</p><p></p><p>He has in the past. He is not a total unknown because he is the one who diagnosis'd Jessie's seizures in the first place, and asked if he could use her eeg and her video with classes he was teaching because it is rare to get one to show exactly what a textbook case looks like. We agreed, but there is still a copy in her chart. He was pretty awesome the first time around, for the most part. I didn't ask enough questions, and should have asked about some things I didn't at the time, but now I know more of what I am dealing with. </p><p></p><p>I just HATE knowing that I can take my kid into an ER and get nothing in the way of help for her. Thanks for letting me vent here. If she loses consciousness, we will call 911 no matter what, and I will keep calling her doctors and pushing for that earlier appointment time. But it is a heck of a lot shorter wait until Oct 11 than the 3-4 month wait we have usually had to see a neuro after a problem. Dr. Scream couldn't be seen for problems any sooner than 3 mos from the time we called.</p></blockquote><p></p>
[QUOTE="susiestar, post: 463378, member: 1233"] No. We are in a very different and strange area for 911. They probably would take her to the local ER, but the ER isn't going to do anything. been there done that and all they will do is look at her, tell her to take deep breaths and relax and it will all go away. Seriously. The ER staff here has already told us that they don't believe that most of what people are told are seizures are actual seizures - except the grand mal kind. I know this sounds NUTS. I really do. I am NOT making it up. The most the local podunk ER will do is give her a benadryl, I have NO faith in these people. They are the ones who said that she couldn't have been hit by a car because she wasn't dirty. Gee, the pile of baby wipes at home that we used to clean her up because a lot of it was dried grass and gravel? Would not have been believed to have been used to clean her up if they had done it themselves or the paramedics had seen us do it. We have a 90 min ride to the big city ER and I don't have a lot of faith that they will do anything either. It svcks great big ostrich eggs, but getting the family doctor to call them Tues is what will get us the fastest help. The city ER, regardless of which city we choose, will tell us that they can't do anything and give us a prescription for a 24hr EEG. Which cannot be done in this state with-o the approval of the neuro we are going to see in Oct. I already danced that dance twice, having gone to the children's ER in both of the big cities and gotten the same thing. I do have faith that this neuro will listen to us. He has in the past. He is not a total unknown because he is the one who diagnosis'd Jessie's seizures in the first place, and asked if he could use her eeg and her video with classes he was teaching because it is rare to get one to show exactly what a textbook case looks like. We agreed, but there is still a copy in her chart. He was pretty awesome the first time around, for the most part. I didn't ask enough questions, and should have asked about some things I didn't at the time, but now I know more of what I am dealing with. I just HATE knowing that I can take my kid into an ER and get nothing in the way of help for her. Thanks for letting me vent here. If she loses consciousness, we will call 911 no matter what, and I will keep calling her doctors and pushing for that earlier appointment time. But it is a heck of a lot shorter wait until Oct 11 than the 3-4 month wait we have usually had to see a neuro after a problem. Dr. Scream couldn't be seen for problems any sooner than 3 mos from the time we called. [/QUOTE]
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