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Need advice from those who are chronically ill (long)
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<blockquote data-quote="Nomad" data-source="post: 259507"><p>I think back to the years that I was so limited due to health problems, including lupus. I think is a very long and complicated issue that involves a variety of situations. Before I continue, I should warn you...my views might be a little different than what others think....but I do have years of experience and am moving forward in MAJOR ways.</p><p> </p><p>For me, and I believe for others...part of the problem is a medical one...there is no doubt. However, I think often what is the case with these things, is that other things come into play. And when that happens, it gets confusing. Additionally, each "expert" thinks they have the answer. Further complicating matters, is that we sometimes get "stuck" in our illness. We learn to think of ourselves as ill...and it perpetuates itself.</p><p> </p><p>So...along with medication, perhaps vitamins might be helpful. Along with vitamins, perhaps psychological therapy might be helpful. I DO take my medications, but I try not to "overtake" them due to side effects. However, I AM APPRECIATIVE of them and their BENEFITS. I let them help me do what I would like to do in life. That is what they are there for. </p><p> </p><p>In answer to your original question, yes...I do think it might be a good idea to gently push your daughter into going to school. Support would have to be in place. As a mom, particularly of a young person, it is totally appropriate for you to be supportive. And a GENTLE move towards school is key. Would you be open to some sort of HALF day program? Could she attend 1/2 and be homescooled for the remaining portion of the day? This should not be overwhelming.</p><p> </p><p>Yep...it is possible that doing TOO much could make her feel worse. She might have to learn to set limits in life. HOWEVER, to what extent? She is a young woman with some health concerns. Her youth should carry her to some extent. It is likely that she can do more than she is doing now and it seems like this should be explored. She will be UNHAPPY if she does not feel productive. BETTER TO BE PRODUCTIVE PART TIME THAN TO HAVE LITTLE OR OR ALMOST NO PRODUCTIVITY. She will need to learn how to modulate herself and to gently push herself...we ALL need to have this skill, regardless of health concerns. Partial day at school...partial day at home...might be a nice solution here. Do NOT accept her word fully...listen to her... <strong>in my humble opinion, a gentle...soft push with some support (vitamins/therapy/encouraging words from family) is probably called for.</strong></p><p> </p><p>My suggestions:</p><p>1. Ask your school district about enrolling your child in school for <strong>part of the day.</strong> See what you can find out. What classes does she like? </p><p>2. Read up on <strong>nutrtional supplements</strong> for her conditions. I wouldn't go overboard...but try to determine if there are key supplements that might be supportive.</p><p>3. In terms of deprssion...you probably already know this...but some of the better ones are Fish Oil, B6, and Vitamin D. I really like Carlson's Fish oil. I get whatever inexpensive brand of B50 tablet and Vit. D I can find. </p><p>4. <strong>Read</strong> about Obsessive Compulsive Disorder (OCD), Boundaries, Anxiety, Depression, Lupus, etc. </p><p>5. Make sure you nuruture yourself. <strong>YOU are a role model for your child.</strong> Books by <strong>Harriet Lerner</strong> are very good...you can amazon for more info. Let her see you being a productive, strong and happy individual.</p><p> </p><p>HANG IN THERE!!!! Life is GOOD! <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite8" alt=":D" title="Big Grin :D" loading="lazy" data-shortname=":D" /></p></blockquote><p></p>
[QUOTE="Nomad, post: 259507"] I think back to the years that I was so limited due to health problems, including lupus. I think is a very long and complicated issue that involves a variety of situations. Before I continue, I should warn you...my views might be a little different than what others think....but I do have years of experience and am moving forward in MAJOR ways. For me, and I believe for others...part of the problem is a medical one...there is no doubt. However, I think often what is the case with these things, is that other things come into play. And when that happens, it gets confusing. Additionally, each "expert" thinks they have the answer. Further complicating matters, is that we sometimes get "stuck" in our illness. We learn to think of ourselves as ill...and it perpetuates itself. So...along with medication, perhaps vitamins might be helpful. Along with vitamins, perhaps psychological therapy might be helpful. I DO take my medications, but I try not to "overtake" them due to side effects. However, I AM APPRECIATIVE of them and their BENEFITS. I let them help me do what I would like to do in life. That is what they are there for. In answer to your original question, yes...I do think it might be a good idea to gently push your daughter into going to school. Support would have to be in place. As a mom, particularly of a young person, it is totally appropriate for you to be supportive. And a GENTLE move towards school is key. Would you be open to some sort of HALF day program? Could she attend 1/2 and be homescooled for the remaining portion of the day? This should not be overwhelming. Yep...it is possible that doing TOO much could make her feel worse. She might have to learn to set limits in life. HOWEVER, to what extent? She is a young woman with some health concerns. Her youth should carry her to some extent. It is likely that she can do more than she is doing now and it seems like this should be explored. She will be UNHAPPY if she does not feel productive. BETTER TO BE PRODUCTIVE PART TIME THAN TO HAVE LITTLE OR OR ALMOST NO PRODUCTIVITY. She will need to learn how to modulate herself and to gently push herself...we ALL need to have this skill, regardless of health concerns. Partial day at school...partial day at home...might be a nice solution here. Do NOT accept her word fully...listen to her... [B]in my humble opinion, a gentle...soft push with some support (vitamins/therapy/encouraging words from family) is probably called for.[/B] My suggestions: 1. Ask your school district about enrolling your child in school for [B]part of the day.[/B] See what you can find out. What classes does she like? 2. Read up on [B]nutrtional supplements[/B] for her conditions. I wouldn't go overboard...but try to determine if there are key supplements that might be supportive. 3. In terms of deprssion...you probably already know this...but some of the better ones are Fish Oil, B6, and Vitamin D. I really like Carlson's Fish oil. I get whatever inexpensive brand of B50 tablet and Vit. D I can find. 4. [B]Read[/B] about Obsessive Compulsive Disorder (OCD), Boundaries, Anxiety, Depression, Lupus, etc. 5. Make sure you nuruture yourself. [B]YOU are a role model for your child.[/B] Books by [B]Harriet Lerner[/B] are very good...you can amazon for more info. Let her see you being a productive, strong and happy individual. HANG IN THERE!!!! Life is GOOD! :happy: [/QUOTE]
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