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Need advice from those who are chronically ill (long)
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<blockquote data-quote="Nomad" data-source="post: 259555"><p>A winning combination for me and for MANY of my friends is this:</p><p>Topamax (and sometimes Elavil combined). Another potentially good combo is Zonegran (also p0ossibly with Elavil). Try to keep the dosage (s) low if possible. Over 50 mgs. of Topamax is sometimes an issue cognitively. Certainly over 100 mgs. is very likely to be a problem. However, sometimes it takes 100 mgs. to get the job done. You'll have to ask the doctor about these medications...</p><p>Re: Topamax and the potentiall for cognitive dulling... I know of a natural product that helps with that cognitive dulling though. It's called PS for "short." If this doesn't help and the cognitive dulling is very bad, then some people take Ritalin or Aricept. </p><p>Most docs are not willing to fully admit about the "dulling" that Topmax can cause...it varies. Try to find any understanding doctor. However, keeping the dosage as low as possible and taking the PS is a good potential solution for that.</p><p>Also, those vitamins DO help a little with headaches/migraines and every little bit HELPS. One more thing...I would NOT not not not take those "abortive" headache medications your daughter is taking unless it is a desperate last reosrt type thing. You can probably take them now and again...but my guess is that taking it more than that will create MORE HEADACHES. IT IS LIKELY CAUSING A NASTY/never ending CIRCLE OF PROBLEMS. Instead, take the FROVA or Imitrex. Personally, I like Imitrex better. If you combine it with Naproxen...you will also help with- any body aches. You might also take Axid with it. Be careful, sometimes stomach medications will cause headaches too. Axid does NOT do that.</p><p>It sounds like TONS of work, but once you get it right, the headaches reduce and it becomes EASIER. In addition, keeping a good attitude and moving forward in life both for your daughter and yourself, is the way life was meant to be. These are just bumps in the road. Some doctors either don't truly know the answers or think they know the answers but don't. Some are trying their best, but are just experimenting. Some are USING you to make a dollar. Your job is to take the information you are given, research, experiment, keep a good attitude, be brave, put one foot in front of the other and move forward. Do you want to be happier and healthier? Do you want this for your daughter? It'll be a good thing. A book recommendation for you: <u>Feel the Fear and Do It Anyway</u>. It is AWESOME!</p></blockquote><p></p>
[QUOTE="Nomad, post: 259555"] A winning combination for me and for MANY of my friends is this: Topamax (and sometimes Elavil combined). Another potentially good combo is Zonegran (also p0ossibly with Elavil). Try to keep the dosage (s) low if possible. Over 50 mgs. of Topamax is sometimes an issue cognitively. Certainly over 100 mgs. is very likely to be a problem. However, sometimes it takes 100 mgs. to get the job done. You'll have to ask the doctor about these medications... Re: Topamax and the potentiall for cognitive dulling... I know of a natural product that helps with that cognitive dulling though. It's called PS for "short." If this doesn't help and the cognitive dulling is very bad, then some people take Ritalin or Aricept. Most docs are not willing to fully admit about the "dulling" that Topmax can cause...it varies. Try to find any understanding doctor. However, keeping the dosage as low as possible and taking the PS is a good potential solution for that. Also, those vitamins DO help a little with headaches/migraines and every little bit HELPS. One more thing...I would NOT not not not take those "abortive" headache medications your daughter is taking unless it is a desperate last reosrt type thing. You can probably take them now and again...but my guess is that taking it more than that will create MORE HEADACHES. IT IS LIKELY CAUSING A NASTY/never ending CIRCLE OF PROBLEMS. Instead, take the FROVA or Imitrex. Personally, I like Imitrex better. If you combine it with Naproxen...you will also help with- any body aches. You might also take Axid with it. Be careful, sometimes stomach medications will cause headaches too. Axid does NOT do that. It sounds like TONS of work, but once you get it right, the headaches reduce and it becomes EASIER. In addition, keeping a good attitude and moving forward in life both for your daughter and yourself, is the way life was meant to be. These are just bumps in the road. Some doctors either don't truly know the answers or think they know the answers but don't. Some are trying their best, but are just experimenting. Some are USING you to make a dollar. Your job is to take the information you are given, research, experiment, keep a good attitude, be brave, put one foot in front of the other and move forward. Do you want to be happier and healthier? Do you want this for your daughter? It'll be a good thing. A book recommendation for you: [U]Feel the Fear and Do It Anyway[/U]. It is AWESOME! [/QUOTE]
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