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Need advice from those who are chronically ill (long)
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<blockquote data-quote="Nomad" data-source="post: 259716"><p>Be careful about Neurontin...it is rare that I have "met" someone who says that this medication has helped them. <strong>Amitriptyline (Elavil)</strong> is a popular and good medication for both migraine and depression.Teri frorm that migraine website I mentioned talks with- a lot of people and knows more. Neurtontin does help people, but it is weirder than Topamax. It seems to be more for very specific neurological issues and I haven't heard many people who improve with- it...particularly headache people. I hear a lot of people get improvement with Topamax, it's just that it is a PITA medication. Some say they like Zonegran...that it is similar to Topamax...not as strong. A "few" take a Butterbur PLUS or instead of a medication prescribed by the doctor. You can buy Butterbur from <a href="http://www.iherb.com" target="_blank">www.iherb.com</a> or from Life Extention. Some health food stores carry it. I think Teri has a way to email her. She has written a book and knows <strong>a lot</strong> of information. Teri says it like it is and is a good resource. </p><p> </p><p>Also, there is a 1-800 at the Life Extention website (LEF) and they know a decent amount about the natural "stuff." Personally, I have found that combining the natural products and keeping my medicaition dosages low, keeping a good attitude, etc. has brought me progress and joy. This is my hope for you and your daughter. </p><p> </p><p>As a side note...Does she see a physician for her Lyme disease? Does she need to take medication for this?</p><p> </p><p>With all that your daughter has on her plate, your daughter might not be able to go to school full time. However, I think it is really good that you have a cooperating school by your side. Perhaps after the Spring holiday break she could take one class in the morning and in the fall she could go half time and then leave it at that. She could have a bite to eat and <strong>an hour nap</strong> before doing any more homeschooling work in the afternoon. <strong>Set the timer. No enabling.</strong> When it comes to a sick child...my thought is that it is appropriate to help, but it doesn't do any good to enable. Let them meet you half way. If she doesn't feel well, you can ease up a little on the afternoon work...but make sure something gets accomplished, even if it is only a little. She should have regular school work to do in the afternoons that is not too stressful. </p><p> </p><p>Other things...going to bed early...healthy food. She could use the afternoon to go to doctor appointments, including therapy. If she gets a cold or something, she could easily take a few days off.</p><p> </p><p>Perhaps use a documented curriculum, so that she doesn't fall behind and graduates with a diploma...should this end up being a permanent thing. By going to school pt, she will meet a few friends and be aware of what is going on in the community. IN time, let her be in charge of picking the courses too...although it is best that they be in the morning. Take a look at the PE Forum here. You will see that enabling leads to heartache later. Honestly, I think you will both benefit greatly from the experience. </p><p> </p><p>I have been there both medically (lupus and migraines) and academically as a homeschooling mother. With effort, inner strength, support...this is workable.</p><p> </p><p>Please take time to nurture yourself.</p><p> </p><p>Teach your child to do the same when she doesn't feel well, so that she will have strengh to last longer and do more at other times.</p><p> </p><p>I do hope you will be able to get more time to yourself. You do have a lot on your plate (as well).</p><p> </p><p>Well..I'll back off now. Wishing you guys well.</p></blockquote><p></p>
[QUOTE="Nomad, post: 259716"] Be careful about Neurontin...it is rare that I have "met" someone who says that this medication has helped them. [B]Amitriptyline (Elavil)[/B] is a popular and good medication for both migraine and depression.Teri frorm that migraine website I mentioned talks with- a lot of people and knows more. Neurtontin does help people, but it is weirder than Topamax. It seems to be more for very specific neurological issues and I haven't heard many people who improve with- it...particularly headache people. I hear a lot of people get improvement with Topamax, it's just that it is a PITA medication. Some say they like Zonegran...that it is similar to Topamax...not as strong. A "few" take a Butterbur PLUS or instead of a medication prescribed by the doctor. You can buy Butterbur from [URL="http://www.iherb.com"]www.iherb.com[/URL] or from Life Extention. Some health food stores carry it. I think Teri has a way to email her. She has written a book and knows [B]a lot[/B] of information. Teri says it like it is and is a good resource. Also, there is a 1-800 at the Life Extention website (LEF) and they know a decent amount about the natural "stuff." Personally, I have found that combining the natural products and keeping my medicaition dosages low, keeping a good attitude, etc. has brought me progress and joy. This is my hope for you and your daughter. As a side note...Does she see a physician for her Lyme disease? Does she need to take medication for this? With all that your daughter has on her plate, your daughter might not be able to go to school full time. However, I think it is really good that you have a cooperating school by your side. Perhaps after the Spring holiday break she could take one class in the morning and in the fall she could go half time and then leave it at that. She could have a bite to eat and [B]an hour nap[/B] before doing any more homeschooling work in the afternoon. [B]Set the timer. No enabling.[/B] When it comes to a sick child...my thought is that it is appropriate to help, but it doesn't do any good to enable. Let them meet you half way. If she doesn't feel well, you can ease up a little on the afternoon work...but make sure something gets accomplished, even if it is only a little. She should have regular school work to do in the afternoons that is not too stressful. Other things...going to bed early...healthy food. She could use the afternoon to go to doctor appointments, including therapy. If she gets a cold or something, she could easily take a few days off. Perhaps use a documented curriculum, so that she doesn't fall behind and graduates with a diploma...should this end up being a permanent thing. By going to school pt, she will meet a few friends and be aware of what is going on in the community. IN time, let her be in charge of picking the courses too...although it is best that they be in the morning. Take a look at the PE Forum here. You will see that enabling leads to heartache later. Honestly, I think you will both benefit greatly from the experience. I have been there both medically (lupus and migraines) and academically as a homeschooling mother. With effort, inner strength, support...this is workable. Please take time to nurture yourself. Teach your child to do the same when she doesn't feel well, so that she will have strengh to last longer and do more at other times. I do hope you will be able to get more time to yourself. You do have a lot on your plate (as well). Well..I'll back off now. Wishing you guys well. [/QUOTE]
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