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Need Seizure Info - Please Help!!
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<blockquote data-quote="susiestar" data-source="post: 304754" data-attributes="member: 1233"><p>Thank you all. That We Move site is invaluable! </p><p></p><p>They are not seizures. From all I can see she would not be able to talk as well or walk at all if it was a seizure. </p><p></p><p>It may be some kind of dyskinesia. That seems to come closer than anything else.</p><p></p><p>The EEG we did caught a spell. First they put a bright light in front of her closed eyes and flashed it on and off for several minutes. They they had her blow on a pinwheel. For 5 minutes non stop!</p><p></p><p>The blowing triggered it. The nurse doing the EEG was amazed and appalled at the length and severity of it. </p><p></p><p>I may be taking her out of state for treatment. Not sure, but not averse to it. My parents would fund it. I am just trying to get her through until we can see a doctor. We will be seeing the pediatrician but she is not in until Tues. The other docs told us they will not change anything. period. That ALL problems should be addressed with our regular doctor, who changed her hours to about 20 a week. She will come in on an off day to do referrals or whatever. The doctor on call this weekend actually called me and told me that they feel only the one doctor should see her until we see a neuro.</p><p></p><p>I plan to get an appointment scheduled Monday or Tuesday. Even if I have to call the children's neuro every hour until they are sick of me!</p><p></p><p>I appreciate all the ideas, websites, everything. Thank you so much.</p></blockquote><p></p>
[QUOTE="susiestar, post: 304754, member: 1233"] Thank you all. That We Move site is invaluable! They are not seizures. From all I can see she would not be able to talk as well or walk at all if it was a seizure. It may be some kind of dyskinesia. That seems to come closer than anything else. The EEG we did caught a spell. First they put a bright light in front of her closed eyes and flashed it on and off for several minutes. They they had her blow on a pinwheel. For 5 minutes non stop! The blowing triggered it. The nurse doing the EEG was amazed and appalled at the length and severity of it. I may be taking her out of state for treatment. Not sure, but not averse to it. My parents would fund it. I am just trying to get her through until we can see a doctor. We will be seeing the pediatrician but she is not in until Tues. The other docs told us they will not change anything. period. That ALL problems should be addressed with our regular doctor, who changed her hours to about 20 a week. She will come in on an off day to do referrals or whatever. The doctor on call this weekend actually called me and told me that they feel only the one doctor should see her until we see a neuro. I plan to get an appointment scheduled Monday or Tuesday. Even if I have to call the children's neuro every hour until they are sick of me! I appreciate all the ideas, websites, everything. Thank you so much. [/QUOTE]
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Need Seizure Info - Please Help!!
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