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Need Seizure Info - Please Help!!
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<blockquote data-quote="susiestar" data-source="post: 305454" data-attributes="member: 1233"><p>An UPDATE!!</p><p></p><p>We have a neuro appointment scheduled for monday the 21st of Sept! Less than a 10 day wait! I would have posted yesterday but AT&T is a PITA. (Every 3rd or 4th time we pay the bill by phone they do something wrong and it archives all records of our dsl service. So they stop the service and we have to keep calling to get it reset. takes 3-10 days because they say it takes a minimum of 3 days to get it fully disconnected and they cannot turn it on until that is done. husband played the disabled wife card and we got it on in 3 days this time.)</p><p></p><p>Anyway, Jess is worse in the evenings/nights. 2 nights ago it lasted for 6 hours. Every muscle she has is spasming - and even some she didn't know she had!</p><p></p><p>The doctor did give her a refill on the muscle relaxer and ultram. It doesn't help a whole lot, but it does help some.</p><p></p><p>There is nothing the ER can do. I already spoke to a really GOOD ER doctor I know. He says that they would just scratch their heads and wait for it to pass so they could discharge her. </p><p></p><p>The best we can do is wait for Monday. The new pediatrician neuro is supposed to be excellent. She is listed on a couple of sites for kids with neuro problems.</p><p></p><p>Her staff seems nice too.</p><p></p><p>We are also using the lidocaine patches with her doctor's OK. </p><p></p><p>The referral secretary at the pediatrician office called to make sure we were scheduled. She is not a nurse, just an admin person (who is patient and persistent and often can get things scheduled when even the doctors cannot!). I asked her about the EEG.</p><p></p><p>She said the ONLY thing in the file about it was a post it that said the EEG was "okay".</p><p></p><p>So we will see..</p><p></p><p>Just gotta make it to monday. And then PUSH for pain control while they sort out the root cause.</p><p></p><p>Hugs to all, and thanks so much for the prayers!</p></blockquote><p></p>
[QUOTE="susiestar, post: 305454, member: 1233"] An UPDATE!! We have a neuro appointment scheduled for monday the 21st of Sept! Less than a 10 day wait! I would have posted yesterday but AT&T is a PITA. (Every 3rd or 4th time we pay the bill by phone they do something wrong and it archives all records of our dsl service. So they stop the service and we have to keep calling to get it reset. takes 3-10 days because they say it takes a minimum of 3 days to get it fully disconnected and they cannot turn it on until that is done. husband played the disabled wife card and we got it on in 3 days this time.) Anyway, Jess is worse in the evenings/nights. 2 nights ago it lasted for 6 hours. Every muscle she has is spasming - and even some she didn't know she had! The doctor did give her a refill on the muscle relaxer and ultram. It doesn't help a whole lot, but it does help some. There is nothing the ER can do. I already spoke to a really GOOD ER doctor I know. He says that they would just scratch their heads and wait for it to pass so they could discharge her. The best we can do is wait for Monday. The new pediatrician neuro is supposed to be excellent. She is listed on a couple of sites for kids with neuro problems. Her staff seems nice too. We are also using the lidocaine patches with her doctor's OK. The referral secretary at the pediatrician office called to make sure we were scheduled. She is not a nurse, just an admin person (who is patient and persistent and often can get things scheduled when even the doctors cannot!). I asked her about the EEG. She said the ONLY thing in the file about it was a post it that said the EEG was "okay". So we will see.. Just gotta make it to monday. And then PUSH for pain control while they sort out the root cause. Hugs to all, and thanks so much for the prayers! [/QUOTE]
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