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<blockquote data-quote="susiestar" data-source="post: 390371" data-attributes="member: 1233"><p>The diagnosis merry go round is usually confusing. The "experts" often do not agree and it can limit what your child receives. The key is to not get so tied up in the actual diagnosis but to concentrate on what is helping him. </p><p></p><p>The reaction to prozac is one that happens to MANY children. My daughter is so incredibly NOT mood disordered but if she takes prozac or zoloft she is high as a kite. Literally acts stoned. Her fourth grade teacher had a hard time not laughing one day because Jessie's "manic" behavior. Jessie adores school, is usually complimented on her beautiful behavior, is often seated next to the most hyper kids because somehow she can get them to focus with-o it interfering with her own education. The third day she took prozac (the last day) she led her entire fourth grade class in a sort of conga style dance line for ten minutes when the teacher told them to get books out to start a lesson! Thankfully her teacher was awesome and knew what was going on, so Jessie didn't wind up in any trouble. Our docs, every single one we have seen, all say that this is a VERY common reaction to prozac in children. And to other SSRI/SNRI medications. It does NOT NOT NOT mean that your child is bipolar. People with bipolar do react that way to those medications a lot of the time, but the reaction does not mean they are bipolar.</p><p></p><p>Often diagnosis's are tossed in because insurance companies will pay more if they have this one instead of that one. Children with Aspergers are frequently given adhd dxs even though in their case the hyper behavior is a SYMPTOM of the Aspergers instead of a true separate disorder. It justs opens doors to more treatments. Ditto for Obsessive Compulsive Disorder (OCD) diagnosis's for Aspies. They get fixated, even obsessed on something and if that needs to be treated because it is interfering with daily life then they tag on Obsessive Compulsive Disorder (OCD) so that the ins co's will be more willing to pay for the services needed to help with the obsessions.</p><p></p><p>As long as whatever they are doing is helping your child, let them call it whatever they want and don't get too wrapped up in the name for it. Names are important and it does help to have a name for it. It makes you and your child feel like there is hope because someone knows what is going on. The only time to get really worried about a diagnosis is if it keeps your difficult child from getting something that he needs. </p><p></p><p>As far as NonVerbal Learning Disorder (NVLD) not being "real", what did the doctor say was replacing it? WHY is it not "real" when so many people so clearly have it? There are life coaches making HUGE amounts of money helping people learn how to handle NonVerbal Learning Disorder (NVLD) and other disorders. It is NOT gospel that it doesn't exist. You clearly see it in your child, and in his test results. A second opinion may be needed unless they are willing to work with him to handle the NonVerbal Learning Disorder (NVLD) even if they call it something else.</p><p></p><p>Have you read any of Tony Attwood's books? Temple Grandin also has some amazing and very helpful books that will help you understand more of this. Children CAN have Aspergers and be social, esp at such a young age when so little is really demanded of a child as compared with what is required in later years. My Aspie had friends, his teachers generally liked him and a few loved him. He STILL had Aspergers, even though he cooperated on tests like your son did. Again, a second (or third) opinion might be helpful.</p><p></p><p>You have instincts that tell you if something is right or wrong for your child. They are real and they are there for a reason. YOU are the top expert in the entire world on your son. You spend oodles of time with him, live with him, and the "experts" spend a few minutes every few weeks/months with your child. Yes, they are needed to help figure things out, but they are still NOT NOT NOT the experts on your difficult child or any child of yours. If something is suggested that just feels wrong, or makes you uneasy in any way, don't do it. No matter what they say. The ONLY times I have done things with my kids that I really strongly regret were times when my instincts said NO WAY and I did it anyway because the doctor pushed. Trust your instincts and yourself. You are his mother for a reason, and you have those instincts as part of the design of life so that you can be the best parent and advocate that is possible.</p></blockquote><p></p>
[QUOTE="susiestar, post: 390371, member: 1233"] The diagnosis merry go round is usually confusing. The "experts" often do not agree and it can limit what your child receives. The key is to not get so tied up in the actual diagnosis but to concentrate on what is helping him. The reaction to prozac is one that happens to MANY children. My daughter is so incredibly NOT mood disordered but if she takes prozac or zoloft she is high as a kite. Literally acts stoned. Her fourth grade teacher had a hard time not laughing one day because Jessie's "manic" behavior. Jessie adores school, is usually complimented on her beautiful behavior, is often seated next to the most hyper kids because somehow she can get them to focus with-o it interfering with her own education. The third day she took prozac (the last day) she led her entire fourth grade class in a sort of conga style dance line for ten minutes when the teacher told them to get books out to start a lesson! Thankfully her teacher was awesome and knew what was going on, so Jessie didn't wind up in any trouble. Our docs, every single one we have seen, all say that this is a VERY common reaction to prozac in children. And to other SSRI/SNRI medications. It does NOT NOT NOT mean that your child is bipolar. People with bipolar do react that way to those medications a lot of the time, but the reaction does not mean they are bipolar. Often diagnosis's are tossed in because insurance companies will pay more if they have this one instead of that one. Children with Aspergers are frequently given adhd dxs even though in their case the hyper behavior is a SYMPTOM of the Aspergers instead of a true separate disorder. It justs opens doors to more treatments. Ditto for Obsessive Compulsive Disorder (OCD) diagnosis's for Aspies. They get fixated, even obsessed on something and if that needs to be treated because it is interfering with daily life then they tag on Obsessive Compulsive Disorder (OCD) so that the ins co's will be more willing to pay for the services needed to help with the obsessions. As long as whatever they are doing is helping your child, let them call it whatever they want and don't get too wrapped up in the name for it. Names are important and it does help to have a name for it. It makes you and your child feel like there is hope because someone knows what is going on. The only time to get really worried about a diagnosis is if it keeps your difficult child from getting something that he needs. As far as NonVerbal Learning Disorder (NVLD) not being "real", what did the doctor say was replacing it? WHY is it not "real" when so many people so clearly have it? There are life coaches making HUGE amounts of money helping people learn how to handle NonVerbal Learning Disorder (NVLD) and other disorders. It is NOT gospel that it doesn't exist. You clearly see it in your child, and in his test results. A second opinion may be needed unless they are willing to work with him to handle the NonVerbal Learning Disorder (NVLD) even if they call it something else. Have you read any of Tony Attwood's books? Temple Grandin also has some amazing and very helpful books that will help you understand more of this. Children CAN have Aspergers and be social, esp at such a young age when so little is really demanded of a child as compared with what is required in later years. My Aspie had friends, his teachers generally liked him and a few loved him. He STILL had Aspergers, even though he cooperated on tests like your son did. Again, a second (or third) opinion might be helpful. You have instincts that tell you if something is right or wrong for your child. They are real and they are there for a reason. YOU are the top expert in the entire world on your son. You spend oodles of time with him, live with him, and the "experts" spend a few minutes every few weeks/months with your child. Yes, they are needed to help figure things out, but they are still NOT NOT NOT the experts on your difficult child or any child of yours. If something is suggested that just feels wrong, or makes you uneasy in any way, don't do it. No matter what they say. The ONLY times I have done things with my kids that I really strongly regret were times when my instincts said NO WAY and I did it anyway because the doctor pushed. Trust your instincts and yourself. You are his mother for a reason, and you have those instincts as part of the design of life so that you can be the best parent and advocate that is possible. [/QUOTE]
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