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New diagnosis -- school questions
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<blockquote data-quote="susiestar" data-source="post: 225771" data-attributes="member: 1233"><p>Oh, you are totally right - there should be an EXTENSIVE report. I also would NOT take this man's word for much of anything. That report and $1.50 might get you a cup of coffee at a diner!</p><p></p><p>It can sometimes take many evaluations by many docs to get things right with our kids. Neuropsychs are NOT the be all and end all of diagnositicians for our kids. Find a Children's Hospital and say you want to see a psychiatrist and want full evaluation. Find a developmental pediatrician and say you want a full evaluation. Keep pressing until you get a diagnosis that MAKES SENSE TO YOU.</p><p></p><p>These "experts" spend a couple of hours (at most 10 or 12 over a few days) with your child. You and SO spend your LIVES with this child. You deal day in and day out with his actions. YOU are the "experts" in the child. The "professionals" are "experts" in whatever field they study. The two fields have to meet - the child and the field of expertise - and somewhere they must overlap with an answer.</p><p></p><p>But it can take YEARS to get that answer. One figure I saw was 7-10 years of evaluation and treatment to get a correct diagnosis. I think it would be faster if the parents/family were listened to more.</p><p></p><p>If you go to the FAQ/General section you will see a thread on a Parent Report or Parent Input. It is a report that YOU make to share with teachers, docs, etc who are working with you and your child. You are NOT obligated to share it with any/all of them, but it can help you keep things organized and help you convey info to the "experts". I found it amazingly helpful.</p><p></p><p>Keep pushing until you get what feels right. Others here will have some ideas as to what is going on.</p><p></p><p>and by the way, my Aspie has USUALLY been able to tell you things from other's point of view. And he is so clearly Aspie it isn't even funny. So ruling out Aspergers because one thing is NOT valid diagnostic protocol, in my opinion.</p><p></p><p>hugs, and welcome to our forum!</p><p></p><p>Susie</p></blockquote><p></p>
[QUOTE="susiestar, post: 225771, member: 1233"] Oh, you are totally right - there should be an EXTENSIVE report. I also would NOT take this man's word for much of anything. That report and $1.50 might get you a cup of coffee at a diner! It can sometimes take many evaluations by many docs to get things right with our kids. Neuropsychs are NOT the be all and end all of diagnositicians for our kids. Find a Children's Hospital and say you want to see a psychiatrist and want full evaluation. Find a developmental pediatrician and say you want a full evaluation. Keep pressing until you get a diagnosis that MAKES SENSE TO YOU. These "experts" spend a couple of hours (at most 10 or 12 over a few days) with your child. You and SO spend your LIVES with this child. You deal day in and day out with his actions. YOU are the "experts" in the child. The "professionals" are "experts" in whatever field they study. The two fields have to meet - the child and the field of expertise - and somewhere they must overlap with an answer. But it can take YEARS to get that answer. One figure I saw was 7-10 years of evaluation and treatment to get a correct diagnosis. I think it would be faster if the parents/family were listened to more. If you go to the FAQ/General section you will see a thread on a Parent Report or Parent Input. It is a report that YOU make to share with teachers, docs, etc who are working with you and your child. You are NOT obligated to share it with any/all of them, but it can help you keep things organized and help you convey info to the "experts". I found it amazingly helpful. Keep pushing until you get what feels right. Others here will have some ideas as to what is going on. and by the way, my Aspie has USUALLY been able to tell you things from other's point of view. And he is so clearly Aspie it isn't even funny. So ruling out Aspergers because one thing is NOT valid diagnostic protocol, in my opinion. hugs, and welcome to our forum! Susie [/QUOTE]
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