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New here with new diagnosis and medical issues
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<blockquote data-quote="Sara PA" data-source="post: 103244" data-attributes="member: 1498"><p>My EEG was pretty much the same as your son's first one but I was having tonic-clonic (grand mal) seizures as well as unidentified partial seizures. My son has partial seizures but his EEGs was "fine" according to the psychiatrist who was treating him at the time. (I never did get a report on what "fine" meant. We fired her shortly after that.)</p><p></p><p>EEGs can rule in but not rule out seizure activity. Partial seizure activity can cause behavioral problems especially when that activity is located in the temporal or frontal lobes. The temporal lobes are deep within the brain and very hard to get a good reading on. It is estimated that only about 50% of TLE is detected by EEGs; one has to wonder how much higher that would be if people were more knowledgeable about what behaviors partial seizure activity can cause.</p><p></p><p>My own partial seizures included what I described as explosive colitis. Partial seizures can affect the controlling mechanism of the digestive system just like they affect everything the brain controls. </p><p></p><p>Many drugs used to treat other diagnoses can lower the seizure threshold. Among those drugs are antidepressants which includes Amitriptyline. </p><p></p><p>If he's underweight, Topomax may be problematic considering it causes weight loss. I understand Lamictal is almost as good for partial seizures and is more neutral for weight. Have you tried that? And the Depakote....was he on just that or was he taking medications that could lower the seizure threshold when he tried that? Depakote could help him gain weight. </p><p></p><p>ETA: Is he taking medications for the ADHD?</p></blockquote><p></p>
[QUOTE="Sara PA, post: 103244, member: 1498"] My EEG was pretty much the same as your son's first one but I was having tonic-clonic (grand mal) seizures as well as unidentified partial seizures. My son has partial seizures but his EEGs was "fine" according to the psychiatrist who was treating him at the time. (I never did get a report on what "fine" meant. We fired her shortly after that.) EEGs can rule in but not rule out seizure activity. Partial seizure activity can cause behavioral problems especially when that activity is located in the temporal or frontal lobes. The temporal lobes are deep within the brain and very hard to get a good reading on. It is estimated that only about 50% of TLE is detected by EEGs; one has to wonder how much higher that would be if people were more knowledgeable about what behaviors partial seizure activity can cause. My own partial seizures included what I described as explosive colitis. Partial seizures can affect the controlling mechanism of the digestive system just like they affect everything the brain controls. Many drugs used to treat other diagnoses can lower the seizure threshold. Among those drugs are antidepressants which includes Amitriptyline. If he's underweight, Topomax may be problematic considering it causes weight loss. I understand Lamictal is almost as good for partial seizures and is more neutral for weight. Have you tried that? And the Depakote....was he on just that or was he taking medications that could lower the seizure threshold when he tried that? Depakote could help him gain weight. ETA: Is he taking medications for the ADHD? [/QUOTE]
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