Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Internet Search
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
What's new
Search
Search
Search titles only
By:
New posts
Search forums
Menu
Log in
Register
Install the app
Install
Forums
Parent Support Forums
General Parenting
New here
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Reply to thread
Message
<blockquote data-quote="buddy" data-source="post: 519840" data-attributes="member: 12886"><p>Hi there! I suppose it is natural in a way to blame ourselves. I remember saying I broke my son just several months ago...Of course I didn't but we all wish things could have been different. I assume you have her on an iep for SLD (specific learning disabiity) now...but it sounds like they need to modify the IEP and give her more support. You can call an IEP meeting at any time. Have you ever used an advocate? </p><p></p><p>I have worked with several kids with NonVerbal Learning Disorder (NVLD) that have not had head trauma, it can just happen. It wont help her for you to blame yourself for accidents. Kids fall all the time, there is no way you can know if it is connected. Right now you need to focus on what the MRI is showing just to make sure nothing is going on there. I hope the dev. pediatrician. does order a new one, maybe even a more in depth (there are different levels and contrast kinds etc...) to make sure there is nothing going on.</p><p></p><p>I have a son with a severe brain injury. (yes, rt sided)... and I wish it hadn't have happened but we can really not go back in time. We can only move forward and work to help them reach their potential. What testing did they do at the dev. pediatrician. Sounds like they may have been pretty good, to know about NonVerbal Learning Disorder (NVLD) and have enough evidence to diagnose that. Have you been reading up on it? Many kids with NonVerbal Learning Disorder (NVLD) look like kids with autism socially. How is her social communication? Have you ever had an Occupational Therapist (OT) evaluation to make sure there are no subtle motor or sensory things that are adding to her challenges? </p><p></p><p>It is heart breaking to wait and wonder about what could be wrong with your child. To pray and beg to have them be ok. We all here know how that feels and you are in the company of many who understand. It is hard some days to even know where to start because there are so many appointments and things to arrange and the whole time the kid is in the background falling apart and exhausting us. So I want to send you hugs of support and I encourage you to come here often and let your concerns and vents be shared. You have found a genuinely caring group of people here.</p></blockquote><p></p>
[QUOTE="buddy, post: 519840, member: 12886"] Hi there! I suppose it is natural in a way to blame ourselves. I remember saying I broke my son just several months ago...Of course I didn't but we all wish things could have been different. I assume you have her on an iep for SLD (specific learning disabiity) now...but it sounds like they need to modify the IEP and give her more support. You can call an IEP meeting at any time. Have you ever used an advocate? I have worked with several kids with NonVerbal Learning Disorder (NVLD) that have not had head trauma, it can just happen. It wont help her for you to blame yourself for accidents. Kids fall all the time, there is no way you can know if it is connected. Right now you need to focus on what the MRI is showing just to make sure nothing is going on there. I hope the dev. pediatrician. does order a new one, maybe even a more in depth (there are different levels and contrast kinds etc...) to make sure there is nothing going on. I have a son with a severe brain injury. (yes, rt sided)... and I wish it hadn't have happened but we can really not go back in time. We can only move forward and work to help them reach their potential. What testing did they do at the dev. pediatrician. Sounds like they may have been pretty good, to know about NonVerbal Learning Disorder (NVLD) and have enough evidence to diagnose that. Have you been reading up on it? Many kids with NonVerbal Learning Disorder (NVLD) look like kids with autism socially. How is her social communication? Have you ever had an Occupational Therapist (OT) evaluation to make sure there are no subtle motor or sensory things that are adding to her challenges? It is heart breaking to wait and wonder about what could be wrong with your child. To pray and beg to have them be ok. We all here know how that feels and you are in the company of many who understand. It is hard some days to even know where to start because there are so many appointments and things to arrange and the whole time the kid is in the background falling apart and exhausting us. So I want to send you hugs of support and I encourage you to come here often and let your concerns and vents be shared. You have found a genuinely caring group of people here. [/QUOTE]
Insert quotes…
Verification
Post reply
Forums
Parent Support Forums
General Parenting
New here
Top