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<blockquote data-quote="Ktllc" data-source="post: 570224" data-attributes="member: 11847"><p>Welcome! I can SO relate with the challenges you are facing.</p><p>V who is 5 was just diagnosis with Autism Spectrum Disorders (ASD), but our first diagnosis were sensory processing and a few others. But his alphabet soup really is the symptomes of Autism Spectrum Disorders (ASD). </p><p>I also have to repeat things 100 times unless I take the time to use a language he understands. For us it means get his attention first, make him look at me, use simple language and make sure evrything else is as quiet as possible around. Of course, being in a quiet environment is optimum but not always realistic (I have 3 kids!). </p><p>Having your 5 year old evaluated by a neuro-psychiatric might indeed be a good idea. Or if you think he might be on the spectrum, find a good Autism Spectrum Disorders (ASD) evaluator (we went through a university research center). If you're not sure, try to read on it and see if you recognize your son. Bear in mind that the symptoms can be very obvious but for some other kids it is subtle but still impairing (like V).</p><p>I also have a 2 year old with expressive delay (she does not have apraxia, but a phonological disorder which can favor apraxia but in her case she can say all her vowels, the consonants are challenging). And she also have LOTS of tantrums, probably partly because of communication frustration. She is VERY smart and she knows what she wants but can't express herself in as many details as her thoughts... </p><p>Try to organize yourself: you'll will be the one managing your children's treatment plan. Nobody else will care enough to do it for you. I sometimes feel it is a full time job (and yes, I already have job thank you) but it extremely important.</p><p>Make a file for each child and classify ALL relevant information, tests, reports. I also have a ressource file: brochure, phone numbers of what is available in my area. You never know when you might need even though it is not relevant today.</p><p>Not all therapists are made equal. So don't hesitate to ask questions, and stay critical. You know your children best. </p><p>I understand what MWM says about getting a neuro-evaluation first. </p><p>But in our case, it just did not happen this way. We had to have a collection of evaluation conducted by various specialists. Over the last 2 years I seeked therapy for V (speech, Occupational Therapist (OT), playtherapy, social group) and all of the therapies were in place BEFORE getting the Autism Spectrum Disorders (ASD) diagnosis. It might be a bit backwards but with long waiting list and other obstacle, that's how it went for us.</p><p>Even if you don't have an umbrella diagnosis yet, you can still identify the lacking skills and work on them. </p><p>For BOTH children, you can start making things as visual as possible. Use little pictos and make a visual schedule. Think of words that they might need and make a little picture word for it. It could compliment the sign language.</p><p>We 2 use signs with Sweet Pea but sometimes she wants to say something and just does not know the sign. So at one point I had a big board full of picture words. One day, she started having a big tantrum, I ask her to show me the pictur word on her board. She picked up "hug" and the tantrum stopped!</p><p>Now she invents her own signs when she can't comminicate with sounds/words.</p><p>We are all here to support you. You can do it. Just as your kids, you will learn A LOT and things will get better. I promiss.</p></blockquote><p></p>
[QUOTE="Ktllc, post: 570224, member: 11847"] Welcome! I can SO relate with the challenges you are facing. V who is 5 was just diagnosis with Autism Spectrum Disorders (ASD), but our first diagnosis were sensory processing and a few others. But his alphabet soup really is the symptomes of Autism Spectrum Disorders (ASD). I also have to repeat things 100 times unless I take the time to use a language he understands. For us it means get his attention first, make him look at me, use simple language and make sure evrything else is as quiet as possible around. Of course, being in a quiet environment is optimum but not always realistic (I have 3 kids!). Having your 5 year old evaluated by a neuro-psychiatric might indeed be a good idea. Or if you think he might be on the spectrum, find a good Autism Spectrum Disorders (ASD) evaluator (we went through a university research center). If you're not sure, try to read on it and see if you recognize your son. Bear in mind that the symptoms can be very obvious but for some other kids it is subtle but still impairing (like V). I also have a 2 year old with expressive delay (she does not have apraxia, but a phonological disorder which can favor apraxia but in her case she can say all her vowels, the consonants are challenging). And she also have LOTS of tantrums, probably partly because of communication frustration. She is VERY smart and she knows what she wants but can't express herself in as many details as her thoughts... Try to organize yourself: you'll will be the one managing your children's treatment plan. Nobody else will care enough to do it for you. I sometimes feel it is a full time job (and yes, I already have job thank you) but it extremely important. Make a file for each child and classify ALL relevant information, tests, reports. I also have a ressource file: brochure, phone numbers of what is available in my area. You never know when you might need even though it is not relevant today. Not all therapists are made equal. So don't hesitate to ask questions, and stay critical. You know your children best. I understand what MWM says about getting a neuro-evaluation first. But in our case, it just did not happen this way. We had to have a collection of evaluation conducted by various specialists. Over the last 2 years I seeked therapy for V (speech, Occupational Therapist (OT), playtherapy, social group) and all of the therapies were in place BEFORE getting the Autism Spectrum Disorders (ASD) diagnosis. It might be a bit backwards but with long waiting list and other obstacle, that's how it went for us. Even if you don't have an umbrella diagnosis yet, you can still identify the lacking skills and work on them. For BOTH children, you can start making things as visual as possible. Use little pictos and make a visual schedule. Think of words that they might need and make a little picture word for it. It could compliment the sign language. We 2 use signs with Sweet Pea but sometimes she wants to say something and just does not know the sign. So at one point I had a big board full of picture words. One day, she started having a big tantrum, I ask her to show me the pictur word on her board. She picked up "hug" and the tantrum stopped! Now she invents her own signs when she can't comminicate with sounds/words. We are all here to support you. You can do it. Just as your kids, you will learn A LOT and things will get better. I promiss. [/QUOTE]
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