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<blockquote data-quote="DDD" data-source="post: 494957" data-attributes="member: 35"><p>In looking for help have you reached out to the ARC group in your area? Honestly I don't know if they could be of help but it sure sounds as though there are developmental delays as a big factor too.</p><p></p><p>My main suggestion for you (and all parents of children with special needs) is to use a spiral notebook and record everything that has happened each day. Did your chld have a meltdown? Write down approx. when that happened and make sure you write down what was going on prior to the meltdown. This documents events, triggers, reactions etc. and can not only help you parent by sometimes showing "warning signs" but be of invaluable help to professionals.</p><p></p><p>Just as important is to write down every single person or agency or service that you contact looking for the help you need. For Ex: 1/5/12 10 AM called ARC (phone number) and spoke to Jane Smith (title or secretary etc) asked if they could help me. Asked who they might know who could provide support from another department or agency. Jane Smith suggested I call Al Roker (XYZ @ phone no) as he might be of help. Next entry 1/16/12 called Al Roker (xyz @ phone no). He was not there. Left a message "Mr. Roker my name is xyz and Jane Smith from ARC suggested I telephone you to see if you could help me find help for my child. Please return my call at your earliest convenience. My name is xyz and my phone number is 444444444. Thank you."</p><p></p><p>I approached my searches like they were mysteries and I had to write down every clue to find the answer. Having all your info in one book is huge. Recording each person you speak to and their specific suggestions begins a network. If you keep you inquiries short and sweet chances are you will be able to comprise a sizable master list of people involved in your community. Sometimes just getting to the right person leads to the help you need. Hugs. DDD</p></blockquote><p></p>
[QUOTE="DDD, post: 494957, member: 35"] In looking for help have you reached out to the ARC group in your area? Honestly I don't know if they could be of help but it sure sounds as though there are developmental delays as a big factor too. My main suggestion for you (and all parents of children with special needs) is to use a spiral notebook and record everything that has happened each day. Did your chld have a meltdown? Write down approx. when that happened and make sure you write down what was going on prior to the meltdown. This documents events, triggers, reactions etc. and can not only help you parent by sometimes showing "warning signs" but be of invaluable help to professionals. Just as important is to write down every single person or agency or service that you contact looking for the help you need. For Ex: 1/5/12 10 AM called ARC (phone number) and spoke to Jane Smith (title or secretary etc) asked if they could help me. Asked who they might know who could provide support from another department or agency. Jane Smith suggested I call Al Roker (XYZ @ phone no) as he might be of help. Next entry 1/16/12 called Al Roker (xyz @ phone no). He was not there. Left a message "Mr. Roker my name is xyz and Jane Smith from ARC suggested I telephone you to see if you could help me find help for my child. Please return my call at your earliest convenience. My name is xyz and my phone number is 444444444. Thank you." I approached my searches like they were mysteries and I had to write down every clue to find the answer. Having all your info in one book is huge. Recording each person you speak to and their specific suggestions begins a network. If you keep you inquiries short and sweet chances are you will be able to comprise a sizable master list of people involved in your community. Sometimes just getting to the right person leads to the help you need. Hugs. DDD [/QUOTE]
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