Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Internet Search
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
What's new
Search
Search
Search titles only
By:
New posts
Search forums
Menu
Log in
Register
Install the app
Install
Forums
Parent Support Forums
General Parenting
Not really sure what to do...I guess I'm looking for support, ideas, and commiseratio
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Reply to thread
Message
<blockquote data-quote="Marguerite" data-source="post: 295411" data-attributes="member: 1991"><p>Sorry I ran out of time before. I had to go out, I had posted while waiting for my ride to arrive.</p><p></p><p>If you're wanting to research autism (and both my boys were happy to be cuddled although usually it's on their terms; easy child 2/difficult child 2 wanted to be cuddled ALL the time, was often inappropriate with when she wanted a cuddle) then go have a look at the Pervasive Developmental Disorder (PDD) questionnaire on <a href="http://www.childbrain.com" target="_blank">www.childbrain.com</a>. Of course nothing on line can be used to officially diagnose, but if you run the questionnaire on him, see how he scores, then print it out (regardless ofwhether it says he's normal or not) then take it along to the neuropsychologist appointment, it wil (if nothing else) point out the sort of things which are a concern for you, and which (since there's such a huge, apparently random lot of issues) make it easier for you to remember to mention them.</p><p></p><p>Of course his early rough start has to be considered. In a lot of cases, it explains everything. But sometimes the problem can be multiple. A kid who is in a bad environment is going to be even worse off, if he's also inherited (purely by chance) any other disorder. But if the background iswhere people stop looking, it can take a lot of hard work to get consideration for other possible cuncurrent problems.</p><p></p><p>Example - a case that was in the Aussie media a few years ago, was a case of serious abuse. The parents had taken to tying up their kids (literally) in order to stop them from wandering around and getting into mischief. The parents would hogtie the two kids and leave them on the bed that way, then go out. There were two kids, a boy and a girl. The girl died (suffocated, I think, because she was tied and got caught up in the bedclothes). The whistle got blown because it was obvious from the little girl's body thatshe had been badly neglected. The family was inspected and the boy obviously delayed in development, beleived to be due to extreme parental neglect. The parents were charged, of course. The boy was placed with his grandparents who worked to teach him the most basic things. Imagine - always tied up, never learning how to dress himself, feed himself, do anything for himself. Functionally handicapped.</p><p></p><p>But as time went on, grandma began to think, "something else is wrong here, I think he could be autistic."</p><p>But te authorities (on whom she depended for health assistance) couldn't see it; they kept insisting that it was all due to the abuse and neglect and all he needed was patience and training. Grandma insisted, he needed further assessment.</p><p></p><p>It took a lot of pushing but finally the boy was tested - and yes, the diagnosis was autism.</p><p></p><p>Then a few more details began to emerge, details about the earlier development. And increasingly people began to wonder - was the sister (now dead) also autistic? If BOTH the kids were autistic (especially the firstborn) and the parents were not able to cope, then tying the kids up may have been a desperate attempt to cope by already incompetent parents. Clearly not what they should have done, but having been there myself when difficult child 3 was younger, there were times when I mentally visualised how easy my life would be if I could put him on a leash, or just find a way to make sure he wouldn't escape and go walkabout on me yet again.</p><p>In other words - neglectful parents can do a lot of damage to a perfectly normal kid. But if you have neglectful parents and they have a difficult child child, then you have a recipe for disaster. And you also risk not seeing the wood for the trees.</p><p></p><p>I just did a search for a link to the story - here it is.</p><p></p><p><a href="http://www.abc.net.au/austory/content/2007/s2332663.htm" target="_blank">http://www.abc.net.au/austory/content/2007/s2332663.htm</a></p><p></p><p>It's the full transcript taken from a half hour documentary interview program dealing specifically with the follow-up of how the boy was going three years later. THis particular TV network and this program especially, has a very high reputation for integrity.</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 295411, member: 1991"] Sorry I ran out of time before. I had to go out, I had posted while waiting for my ride to arrive. If you're wanting to research autism (and both my boys were happy to be cuddled although usually it's on their terms; easy child 2/difficult child 2 wanted to be cuddled ALL the time, was often inappropriate with when she wanted a cuddle) then go have a look at the Pervasive Developmental Disorder (PDD) questionnaire on [url]www.childbrain.com[/url]. Of course nothing on line can be used to officially diagnose, but if you run the questionnaire on him, see how he scores, then print it out (regardless ofwhether it says he's normal or not) then take it along to the neuropsychologist appointment, it wil (if nothing else) point out the sort of things which are a concern for you, and which (since there's such a huge, apparently random lot of issues) make it easier for you to remember to mention them. Of course his early rough start has to be considered. In a lot of cases, it explains everything. But sometimes the problem can be multiple. A kid who is in a bad environment is going to be even worse off, if he's also inherited (purely by chance) any other disorder. But if the background iswhere people stop looking, it can take a lot of hard work to get consideration for other possible cuncurrent problems. Example - a case that was in the Aussie media a few years ago, was a case of serious abuse. The parents had taken to tying up their kids (literally) in order to stop them from wandering around and getting into mischief. The parents would hogtie the two kids and leave them on the bed that way, then go out. There were two kids, a boy and a girl. The girl died (suffocated, I think, because she was tied and got caught up in the bedclothes). The whistle got blown because it was obvious from the little girl's body thatshe had been badly neglected. The family was inspected and the boy obviously delayed in development, beleived to be due to extreme parental neglect. The parents were charged, of course. The boy was placed with his grandparents who worked to teach him the most basic things. Imagine - always tied up, never learning how to dress himself, feed himself, do anything for himself. Functionally handicapped. But as time went on, grandma began to think, "something else is wrong here, I think he could be autistic." But te authorities (on whom she depended for health assistance) couldn't see it; they kept insisting that it was all due to the abuse and neglect and all he needed was patience and training. Grandma insisted, he needed further assessment. It took a lot of pushing but finally the boy was tested - and yes, the diagnosis was autism. Then a few more details began to emerge, details about the earlier development. And increasingly people began to wonder - was the sister (now dead) also autistic? If BOTH the kids were autistic (especially the firstborn) and the parents were not able to cope, then tying the kids up may have been a desperate attempt to cope by already incompetent parents. Clearly not what they should have done, but having been there myself when difficult child 3 was younger, there were times when I mentally visualised how easy my life would be if I could put him on a leash, or just find a way to make sure he wouldn't escape and go walkabout on me yet again. In other words - neglectful parents can do a lot of damage to a perfectly normal kid. But if you have neglectful parents and they have a difficult child child, then you have a recipe for disaster. And you also risk not seeing the wood for the trees. I just did a search for a link to the story - here it is. [url]http://www.abc.net.au/austory/content/2007/s2332663.htm[/url] It's the full transcript taken from a half hour documentary interview program dealing specifically with the follow-up of how the boy was going three years later. THis particular TV network and this program especially, has a very high reputation for integrity. Marg [/QUOTE]
Insert quotes…
Verification
Post reply
Forums
Parent Support Forums
General Parenting
Not really sure what to do...I guess I'm looking for support, ideas, and commiseratio
Top