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Obsessive Compulsive Disorder (OCD) in 4year old, we are desperate please help
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<blockquote data-quote="Matty's Mummy" data-source="post: 153232" data-attributes="member: 5222"><p>Sorry it's so long</p><p> </p><p><span style="font-size: 10px">Thanks for the post I read through, this morning and haven't had a chance to reply </span></p><p> </p><p></p><p>Oh lol I had to laugh and show my husband,. The thing is as scary as it seemed life might be having a child with Ds (down syndrome) it's been a breeze one of our easier baby, and now toddler, he is our perfect child. We could never have believed this when we first found out, we had to live, it, but having a child with Aspergers now that is really tough, day in day out. </p><p> </p><p>When I knew in my heart that Matty had Aspergers or something along the lines, I cried so hard, I said to my husband 'I just cant do this I don't want to be a mum to a child like this again , how am I going to do it, I think I cried for 2days before being able to pick myself up. I think after having the first one and getting through (then) 16yrs I just felt I couldn't' face another 16years of THAT!. </p><p>Oh the crying, if we drove the wrong way home from school, had the wrong cereal, and I hate that feeling when you hear that particular tone in their voice and you know your day is going to be screwed, Know what I mean??</p><p>Anyway back to Matthew, well we couldn't' go out of town, our daughter had school stuff on this weekend I forgot about, poor child.</p><p>Thanks for all the info on the Urinary Tract Infection (UTI), I'm not as sure on this being it today. Oh I just go around in circles. </p><p>He has been much better today, he has been going outside to wee, and has at least pulled his pants down to wee.. </p><p>He has calmed the breaths down a lot too, not as many or as intense, still it's there and a problem. Tonight in the shower I took him in with me, he didn't stand their and wet himself he did one in the shower and held onto it as he did one, so at least he can touch himself again and didn't feel as though he had to breath into his hands. He did do some huge breaths in and out&#8230; </p><p>Then in the shower he was breathing into his hands and flicking them only he had to flick them out, by opening the shower curtain, so the breath was now out of the shower. </p><p><span style="font-size: 10px">Then after doing this a few times I just said to him &#8216; ok Matty that is enough now, you don't have to keep doing this' when that didn't work I said 'Matty you have done lots of breaths now, how about you stop and use your hands to wash you hair?' he was ok with this, but then tried again once he finished so I told him ' ok that is it you can play with your toys I think 5 breaths is enough' and he stopped for good. I hope I haven't put into his head '5 times' and he has to do it that many times now, but then again 5 is better than continuos. </span></p><p><span style="font-size: 10px">Ok So new thoughts have so many theories, but I just realise what I keep doing is wanting to isolate each odd behaviour, hmm but maybe they are all just one thing or I guess he could end up with a duel diagnosis. </span></p><p><span style="font-size: 10px">So we know Matty has light sensitivity, sound, food , clothing, oh and did I mention he is back to bolting on us? When we are at the shops he just takes off, doesn't' look ran across the road lucky no cars, we started using a harness at 3years old and haven't needed it for ages and now he is going it again. </span></p><p><span style="font-size: 10px">Also I don't think whne I posted on here I posted about Matthew's broken arm. I had just posted on one of those places that Doctors reply to, of cause no-one has replied then I posted here, I didn't post everything. </span></p><p><span style="font-size: 10px">13th March husband was on the trampoline with Matty, he double bounced him and when he landed on the mat he fell badly. We didn't' know if it was broken. I drove him to the ambulance that weren't there they have a wall phone&#8230; anyway I said to them we would take him to the hospital save the ambo's coming from home. At the hospital it was really bad, they walked us into the x-ray room, no lights were on, it's night by this time, there was soft light from another room and the x-ray thingy, they stood Matty next to part of the machine and then as they pulled this hug camera /light thing down he bolted. I have never seen fear in anyone like I seen in his eyes, pure terror. </span></p><p><span style="font-size: 10px">Anyway they said it wasn't broken they did heaps of x-rays and he was in so much pain. They sent us home saying bring him back Monday (this was now Thursday night) if he is still the same. They didn't put it in a sling or give us back the sling we had it in. </span></p><p><span style="font-size: 10px">So then the next day we left for MacKay (that is our 3.5hour drive) stayed at my mums that night, took him to the hospital Saturday. Silly crazy we talked ourselves out of going straight to the hospital after he stared to move his fingers&#8230;</span></p><p><span style="font-size: 10px">The hospital found, it was a small fracture near his elbow. </span></p><p><span style="font-size: 10px">So after that is when the, breath holding for #2's started, we still didn't' think this was the cause because during all this Kids at Kindy had called him 'Poo' and this is terrible but I had said to him a few times, 'Matty come and brush your teeth they smell, oh like sticky poo' why oh why did I say that word just silly talk. </span></p><p><span style="font-size: 10px">So we had thought, and this is why we didn't' think to much of it and let it go, that when he was doing a #2 he could smell it and maybe he thought the smell was entering into his breath. Well this still sounds right to me, but then it's just gotten so out of hand and kept developing. </span></p><p><span style="font-size: 10px">I hate that I said that o him, I had said it many times to, 'oh Matt your breath smells lets brush your teeth' not always with the poo word but sometimes. Mind you I could say that to my daughter easy child child and she wouldn't' have done anything like it, so while I blame myself I also do feel that if he wasn't the way he was it wouldn't' have happened, maybe that just sounds like I'm not taking responsibility or maybe I'm saving myself from going insane with guilt, either way right now I have Occupational Therapist (OT) hand onto that thought, so whoever is still reading please be kind to me, I'm sure with my Obsessive Compulsive Disorder (OCD) I'll make myself suffer more than necessary. Ohhh this is so hard, but I have to find a way to make it better for him. </span></p><p><span style="font-size: 10px">SO then this #2 thing was pretty much at one level not really very intense, but then the weeing thing started and I thought maybe my sister is right, that the weeing might have been isolated as well. But now that he calmed down and Matty has said he isn't' in any pain when he goes, I'm doubting that is it now. </span></p><p><span style="font-size: 10px">So now their you are I did this to him, he has all these sensitivities and I do that. </span></p><p><span style="font-size: 10px">And ther is more the whole food thing, not the sicking up part. He also has behaviour problems when eating different foods. We first discover the 282 in bread after watching the news, he was around 2yrs. Had been having big melt downs head butting the ground&#8230; after stopping that bread he stopped and we had a different boy, well until the next thing, light shopping centre lights&#8230;</span></p><p><span style="font-size: 10px">So the connection with this new stuff is. We just realised this today!</span></p><p><span style="font-size: 10px">When Matty had his broken arm (plaster removed after 2weeks) my mum started to buy him lots of treats like ice-cream, and iceblocks&#8230;then when we were home I kept it up and out of the ordinary I brought a few packet of the wafer biscuits, he's been having these they actually ran out 2 days ago, he's had them for a good week and way too many each day, as you do with a child that has limited foods to eat, you don't seen to care if they fill up on junk.</span></p><p><span style="font-size: 10px">so today we feel like we had yet another light bulb moment! Maybe the bad chemicals in the food haven't helped all this escalate and now today 2days after the stuff is leaving his system he is getting better. </span></p><p><span style="font-size: 10px">I do think that this might be part of it, not all and certainly not the cause.</span></p><p><span style="font-size: 10px">So in summery </span></p><p><span style="font-size: 10px">We have a child with sensory problems as well as the suspicion of Aspergers, food sensitivities, kids at Kindy say he smells like Poo, a mothers that enforces the Poo thoughts by saying he has poo breath, (I honestly only said it like in a &#8216;oh come on brush your teeth and in a fun way said Oh stinky poo&#8230;.) but I feel like **** and know it's enforced it. </span></p><p><span style="font-size: 10px">Oh my poor boy. </span></p><p><span style="font-size: 10px">There is a nice Doctor I can go see on Thursday or sooner we will see, if he keeps getting better we will wait till Thursday if not I'll go over sooner, it's about an hours drive there. </span></p><p><span style="font-size: 10px">I'm sure I will get a referral from him, I have spoken to the Pead a few moths ago about seeing her for Matty when I had my other son there, so she already thinks we need to see her. </span></p><p><span style="font-size: 10px">&#8216;Well I have rambled on long enough. </span></p><p><span style="font-size: 10px">It's lovely to have found this forum, I found it through the Oprah Web site lol</span></p></blockquote><p></p>
[QUOTE="Matty's Mummy, post: 153232, member: 5222"] Sorry it's so long [SIZE=2]Thanks for the post I read through, this morning and haven't had a chance to reply [/SIZE] Oh lol I had to laugh and show my husband,. The thing is as scary as it seemed life might be having a child with Ds (down syndrome) it's been a breeze one of our easier baby, and now toddler, he is our perfect child. We could never have believed this when we first found out, we had to live, it, but having a child with Aspergers now that is really tough, day in day out. When I knew in my heart that Matty had Aspergers or something along the lines, I cried so hard, I said to my husband 'I just cant do this I don't want to be a mum to a child like this again , how am I going to do it, I think I cried for 2days before being able to pick myself up. I think after having the first one and getting through (then) 16yrs I just felt I couldn't' face another 16years of THAT!. Oh the crying, if we drove the wrong way home from school, had the wrong cereal, and I hate that feeling when you hear that particular tone in their voice and you know your day is going to be screwed, Know what I mean?? Anyway back to Matthew, well we couldn't' go out of town, our daughter had school stuff on this weekend I forgot about, poor child. Thanks for all the info on the Urinary Tract Infection (UTI), I'm not as sure on this being it today. Oh I just go around in circles. He has been much better today, he has been going outside to wee, and has at least pulled his pants down to wee.. He has calmed the breaths down a lot too, not as many or as intense, still it's there and a problem. Tonight in the shower I took him in with me, he didn't stand their and wet himself he did one in the shower and held onto it as he did one, so at least he can touch himself again and didn't feel as though he had to breath into his hands. He did do some huge breaths in and out… Then in the shower he was breathing into his hands and flicking them only he had to flick them out, by opening the shower curtain, so the breath was now out of the shower. [SIZE=2]Then after doing this a few times I just said to him ‘ ok Matty that is enough now, you don't have to keep doing this' when that didn't work I said 'Matty you have done lots of breaths now, how about you stop and use your hands to wash you hair?' he was ok with this, but then tried again once he finished so I told him ' ok that is it you can play with your toys I think 5 breaths is enough' and he stopped for good. I hope I haven't put into his head '5 times' and he has to do it that many times now, but then again 5 is better than continuos. [/SIZE] [SIZE=2]Ok So new thoughts have so many theories, but I just realise what I keep doing is wanting to isolate each odd behaviour, hmm but maybe they are all just one thing or I guess he could end up with a duel diagnosis. [/SIZE] [SIZE=2]So we know Matty has light sensitivity, sound, food , clothing, oh and did I mention he is back to bolting on us? When we are at the shops he just takes off, doesn't' look ran across the road lucky no cars, we started using a harness at 3years old and haven't needed it for ages and now he is going it again. [/SIZE] [SIZE=2]Also I don't think whne I posted on here I posted about Matthew's broken arm. I had just posted on one of those places that Doctors reply to, of cause no-one has replied then I posted here, I didn't post everything. [/SIZE] [SIZE=2]13th March husband was on the trampoline with Matty, he double bounced him and when he landed on the mat he fell badly. We didn't' know if it was broken. I drove him to the ambulance that weren't there they have a wall phone… anyway I said to them we would take him to the hospital save the ambo's coming from home. At the hospital it was really bad, they walked us into the x-ray room, no lights were on, it's night by this time, there was soft light from another room and the x-ray thingy, they stood Matty next to part of the machine and then as they pulled this hug camera /light thing down he bolted. I have never seen fear in anyone like I seen in his eyes, pure terror. [/SIZE] [SIZE=2]Anyway they said it wasn't broken they did heaps of x-rays and he was in so much pain. They sent us home saying bring him back Monday (this was now Thursday night) if he is still the same. They didn't put it in a sling or give us back the sling we had it in. [/SIZE] [SIZE=2]So then the next day we left for MacKay (that is our 3.5hour drive) stayed at my mums that night, took him to the hospital Saturday. Silly crazy we talked ourselves out of going straight to the hospital after he stared to move his fingers…[/SIZE] [SIZE=2]The hospital found, it was a small fracture near his elbow. [/SIZE] [SIZE=2]So after that is when the, breath holding for #2's started, we still didn't' think this was the cause because during all this Kids at Kindy had called him 'Poo' and this is terrible but I had said to him a few times, 'Matty come and brush your teeth they smell, oh like sticky poo' why oh why did I say that word just silly talk. [/SIZE] [SIZE=2]So we had thought, and this is why we didn't' think to much of it and let it go, that when he was doing a #2 he could smell it and maybe he thought the smell was entering into his breath. Well this still sounds right to me, but then it's just gotten so out of hand and kept developing. [/SIZE] [SIZE=2]I hate that I said that o him, I had said it many times to, 'oh Matt your breath smells lets brush your teeth' not always with the poo word but sometimes. Mind you I could say that to my daughter easy child child and she wouldn't' have done anything like it, so while I blame myself I also do feel that if he wasn't the way he was it wouldn't' have happened, maybe that just sounds like I'm not taking responsibility or maybe I'm saving myself from going insane with guilt, either way right now I have Occupational Therapist (OT) hand onto that thought, so whoever is still reading please be kind to me, I'm sure with my Obsessive Compulsive Disorder (OCD) I'll make myself suffer more than necessary. Ohhh this is so hard, but I have to find a way to make it better for him. [/SIZE] [SIZE=2]SO then this #2 thing was pretty much at one level not really very intense, but then the weeing thing started and I thought maybe my sister is right, that the weeing might have been isolated as well. But now that he calmed down and Matty has said he isn't' in any pain when he goes, I'm doubting that is it now. [/SIZE] [SIZE=2]So now their you are I did this to him, he has all these sensitivities and I do that. [/SIZE] [SIZE=2]And ther is more the whole food thing, not the sicking up part. He also has behaviour problems when eating different foods. We first discover the 282 in bread after watching the news, he was around 2yrs. Had been having big melt downs head butting the ground… after stopping that bread he stopped and we had a different boy, well until the next thing, light shopping centre lights…[/SIZE] [SIZE=2]So the connection with this new stuff is. We just realised this today![/SIZE] [SIZE=2]When Matty had his broken arm (plaster removed after 2weeks) my mum started to buy him lots of treats like ice-cream, and iceblocks…then when we were home I kept it up and out of the ordinary I brought a few packet of the wafer biscuits, he's been having these they actually ran out 2 days ago, he's had them for a good week and way too many each day, as you do with a child that has limited foods to eat, you don't seen to care if they fill up on junk.[/SIZE] [SIZE=2]so today we feel like we had yet another light bulb moment! Maybe the bad chemicals in the food haven't helped all this escalate and now today 2days after the stuff is leaving his system he is getting better. [/SIZE] [SIZE=2]I do think that this might be part of it, not all and certainly not the cause.[/SIZE] [SIZE=2]So in summery [/SIZE] [SIZE=2]We have a child with sensory problems as well as the suspicion of Aspergers, food sensitivities, kids at Kindy say he smells like Poo, a mothers that enforces the Poo thoughts by saying he has poo breath, (I honestly only said it like in a ‘oh come on brush your teeth and in a fun way said Oh stinky poo….) but I feel like **** and know it's enforced it. [/SIZE] [SIZE=2]Oh my poor boy. [/SIZE] [SIZE=2]There is a nice Doctor I can go see on Thursday or sooner we will see, if he keeps getting better we will wait till Thursday if not I'll go over sooner, it's about an hours drive there. [/SIZE] [SIZE=2]I'm sure I will get a referral from him, I have spoken to the Pead a few moths ago about seeing her for Matty when I had my other son there, so she already thinks we need to see her. [/SIZE] [SIZE=2]‘Well I have rambled on long enough. [/SIZE] [SIZE=2]It's lovely to have found this forum, I found it through the Oprah Web site lol[/SIZE] [/QUOTE]
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