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<blockquote data-quote="susiestar" data-source="post: 506342" data-attributes="member: 1233"><p>White noise makes me nuts. husband used to get those sound machines and always wanted rainforest sounds or waterfalls or somethng and they made me crazy. I had a hard time sleeping while preggo and for some idiotic reason he insisted that we HAD to have the waterfall noise on at night. So I insisted he HAD to get up and go get somethng for me each time I woke up to pee. Which was about every 45 min all night. Took him 3 nights to figure it out. He can be a bit slow, lol. </p><p></p><p>Audiobooks work for me. For a kid I would use very boring but sweet stories. I wish I had one of the ones my dad recorded for my kids. He read Uncle Wiggily (very old stories about a bunny gentleman and his charges) and his voice is perfect for helping calm kids. We actually couldn't play them on the car radio because they put husband and I to sleep - NOT good while driving! The sp ed teacher in his jr high even used them with some of the kids in her class as a calming tool. thank you did pretty well with Magic Treehouse audiobooks - they had enough going on to keep him listening but not enough to rev him up the way Harry Potter did. Even Wiz, who was revved by everything, was calmed by audiobooks. </p><p></p><p>I hate that a BIG part of getting the right help for our kids is getting past the "reinvent the wheel" syndrome that most docs seem to have. They want to give a new/different diagnosis even if it has been ruled out or the current diagnosis is exactly what is going on, and they want you to go back and do all the stuff you have already done six times for other docs. It drives me nuts. I have found the Parent Report to be the documentation that we have done this and gotten a result that shows it is not what we were trying to accomplish. </p><p></p><p>The docs/"experts" we have seen ignored me when I told htem we did whatever already, but when it was typed on a piece of paper it became "real" and "evidence" or "proof" that we had tried it. Even when I was the one who typed the paper!! So I totally understand how this can all make you nuts.</p><p></p><p>We also found that aromatherapy helped. Mostly we used lavender because the kids all love it. You can put a bit of essential oil on a pillow or dilute it with water and spritz the room. Alone it won't do much, but we found that if we combined a lot of little things like this, it helped us reach the goal.</p><p></p><p>Do you think he is on the right seizure medications? I know it is hard to tell, but what is your gut feeling? Do you think that adding a medication to help induce sleep would be useful? I am sure that part of you wants to think it is nuts to drug a kid to get him to sleep at age 4, but sleep is SOO important to every function of our bodies. Given that you have done all the other things, a medication for sleep might not be a bad idea. I don't know if trazodone or remeron would be something that worked with his other medications, but I have used them and so have my older 2 kids and for the most part we had no problems. The kids had no problems, but one doctor would only give me the remeron tablet that dissolved under your tongue and it has a sweetener that I am allergic to and I would take it and then be fighting sleep as I threw up and swelled up. But it wasn't the medication, it was the sweetener and I had good results from the normal tablets of the medication. Jess was on remeron at 6-7yo and then on trazodone from age 10-12 as we worked through some things in therapy. Wiz has taken trazodone for six or seven years and has had great luck with it. thank you does pretty well with benedryl when he can't sleep. At least so far.</p><p></p><p>I really hope the neuro is able to get some help for the sleep problems. You might actually see some reduction in the adhd problems if difficult child can get enough good quality sleep.</p></blockquote><p></p>
[QUOTE="susiestar, post: 506342, member: 1233"] White noise makes me nuts. husband used to get those sound machines and always wanted rainforest sounds or waterfalls or somethng and they made me crazy. I had a hard time sleeping while preggo and for some idiotic reason he insisted that we HAD to have the waterfall noise on at night. So I insisted he HAD to get up and go get somethng for me each time I woke up to pee. Which was about every 45 min all night. Took him 3 nights to figure it out. He can be a bit slow, lol. Audiobooks work for me. For a kid I would use very boring but sweet stories. I wish I had one of the ones my dad recorded for my kids. He read Uncle Wiggily (very old stories about a bunny gentleman and his charges) and his voice is perfect for helping calm kids. We actually couldn't play them on the car radio because they put husband and I to sleep - NOT good while driving! The sp ed teacher in his jr high even used them with some of the kids in her class as a calming tool. thank you did pretty well with Magic Treehouse audiobooks - they had enough going on to keep him listening but not enough to rev him up the way Harry Potter did. Even Wiz, who was revved by everything, was calmed by audiobooks. I hate that a BIG part of getting the right help for our kids is getting past the "reinvent the wheel" syndrome that most docs seem to have. They want to give a new/different diagnosis even if it has been ruled out or the current diagnosis is exactly what is going on, and they want you to go back and do all the stuff you have already done six times for other docs. It drives me nuts. I have found the Parent Report to be the documentation that we have done this and gotten a result that shows it is not what we were trying to accomplish. The docs/"experts" we have seen ignored me when I told htem we did whatever already, but when it was typed on a piece of paper it became "real" and "evidence" or "proof" that we had tried it. Even when I was the one who typed the paper!! So I totally understand how this can all make you nuts. We also found that aromatherapy helped. Mostly we used lavender because the kids all love it. You can put a bit of essential oil on a pillow or dilute it with water and spritz the room. Alone it won't do much, but we found that if we combined a lot of little things like this, it helped us reach the goal. Do you think he is on the right seizure medications? I know it is hard to tell, but what is your gut feeling? Do you think that adding a medication to help induce sleep would be useful? I am sure that part of you wants to think it is nuts to drug a kid to get him to sleep at age 4, but sleep is SOO important to every function of our bodies. Given that you have done all the other things, a medication for sleep might not be a bad idea. I don't know if trazodone or remeron would be something that worked with his other medications, but I have used them and so have my older 2 kids and for the most part we had no problems. The kids had no problems, but one doctor would only give me the remeron tablet that dissolved under your tongue and it has a sweetener that I am allergic to and I would take it and then be fighting sleep as I threw up and swelled up. But it wasn't the medication, it was the sweetener and I had good results from the normal tablets of the medication. Jess was on remeron at 6-7yo and then on trazodone from age 10-12 as we worked through some things in therapy. Wiz has taken trazodone for six or seven years and has had great luck with it. thank you does pretty well with benedryl when he can't sleep. At least so far. I really hope the neuro is able to get some help for the sleep problems. You might actually see some reduction in the adhd problems if difficult child can get enough good quality sleep. [/QUOTE]
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