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<blockquote data-quote="buddy" data-source="post: 478666" data-attributes="member: 12886"><p>Oh my my my..... the epilepsy sites online are FULL of stories of seizure disorders that never showed up on eeg. My son's didn't at one place and did at another. It has to be caught and that is the problem with seizures, they happen whenever, not on schedule. Our docs flat out said that, he was going to be put on medications anyway. Q had terrible headaches too. But the anti seizure medications took care of them for the most part...well that is because they are post seizure headaches in his case. Could be for Jess too. They maybe haven't put it together. When you tell her story I keep t hinking, some day she is going to be one of those "medical mysteries" stories where people go for years with people telling them nothing is wrong just because they couldn't find it. Then they find out what it is and try to rationalize why people missed it. </p><p></p><p>The most important thing of all is that she has your support. So many people lose the comfort of family and start to feel "crazy" because everyone doubts them. That is worse than the doctors missing it. She is blessed to have you in her corner.</p></blockquote><p></p>
[QUOTE="buddy, post: 478666, member: 12886"] Oh my my my..... the epilepsy sites online are FULL of stories of seizure disorders that never showed up on eeg. My son's didn't at one place and did at another. It has to be caught and that is the problem with seizures, they happen whenever, not on schedule. Our docs flat out said that, he was going to be put on medications anyway. Q had terrible headaches too. But the anti seizure medications took care of them for the most part...well that is because they are post seizure headaches in his case. Could be for Jess too. They maybe haven't put it together. When you tell her story I keep t hinking, some day she is going to be one of those "medical mysteries" stories where people go for years with people telling them nothing is wrong just because they couldn't find it. Then they find out what it is and try to rationalize why people missed it. The most important thing of all is that she has your support. So many people lose the comfort of family and start to feel "crazy" because everyone doubts them. That is worse than the doctors missing it. She is blessed to have you in her corner. [/QUOTE]
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