Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Internet Search
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
What's new
Search
Search
Search titles only
By:
New posts
Search forums
Menu
Log in
Register
Install the app
Install
Forums
Parent Support Forums
General Parenting
Other Syndrome that Mimics Shaken Baby Syndrome??
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Reply to thread
Message
<blockquote data-quote="susiestar" data-source="post: 555037" data-attributes="member: 1233"><p>As far as old records go, Sig is on the right track. Take him to a Children's Hospital and ask them to do a full workup - developmental disabilities, long term effects of cancer treatment, brain injury a possibility (it is possible - you can actually not realize that a concussion has caused problems until later in life. A cousin of mine had a LOT of them due to his daredevil nature and some strange things showed up when he was an adult. A good neuro finally looked at his brain scans and actually said, "HOLY SH((!" My aunt was there and was horrified to see all the damage the doctor pointed out that was caused by various concussions from stupid things he did as a kid/teen.). </p><p></p><p>Give the hospital the names of the various places wehre he was treated and signed releases to get information. YOU might not get a response or info, but a hospital or other doctor will get the whole thing. I learned this after my son was in a psychiatric hospital for a long stay. I wanted ALL the records because I knew some things were not told to me. We had a lovely therapist who requested the information for me and let me have the 1000 pages that were his chart. It was an interesting read and they didn't tell me all the things their testing revealed. Which confirms my determination to get the entire chart and not just the summary the docs want to send me.)</p><p></p><p>The docs will often charge a parent per page for the information and this can be up to about $1 per page, last time I asked for records. If there is an outstanding bill they can demand that it be paid before they give you the records. The docs do NOT charge each other for the info and they are not legally allowed to withhold the records from another healthcare provider. It is a loophole, but often they will demand huge payments for 'copying' if they don't want you to know something or it is a hassle and the records people have an attitude. Happens in every profession and records mgmt is no exception. But they MUST send records to the docs, and you CAN get the info that they learn. More importantly, the doctor can get the info and can use it to help figure out what is going on and how to help.</p><p></p><p>On the topic of records, the Parent Report is still a powerful tool. It is the document that you create about your child with all the details of everyhting you know about him. The link in my signature will take you to the archived thread with the outline and explanation. I have found that a good Parent Report can often help you to get a doctor to pay attention and really listen to what you are saying and what you have tried already and how well it worked.</p></blockquote><p></p>
[QUOTE="susiestar, post: 555037, member: 1233"] As far as old records go, Sig is on the right track. Take him to a Children's Hospital and ask them to do a full workup - developmental disabilities, long term effects of cancer treatment, brain injury a possibility (it is possible - you can actually not realize that a concussion has caused problems until later in life. A cousin of mine had a LOT of them due to his daredevil nature and some strange things showed up when he was an adult. A good neuro finally looked at his brain scans and actually said, "HOLY SH((!" My aunt was there and was horrified to see all the damage the doctor pointed out that was caused by various concussions from stupid things he did as a kid/teen.). Give the hospital the names of the various places wehre he was treated and signed releases to get information. YOU might not get a response or info, but a hospital or other doctor will get the whole thing. I learned this after my son was in a psychiatric hospital for a long stay. I wanted ALL the records because I knew some things were not told to me. We had a lovely therapist who requested the information for me and let me have the 1000 pages that were his chart. It was an interesting read and they didn't tell me all the things their testing revealed. Which confirms my determination to get the entire chart and not just the summary the docs want to send me.) The docs will often charge a parent per page for the information and this can be up to about $1 per page, last time I asked for records. If there is an outstanding bill they can demand that it be paid before they give you the records. The docs do NOT charge each other for the info and they are not legally allowed to withhold the records from another healthcare provider. It is a loophole, but often they will demand huge payments for 'copying' if they don't want you to know something or it is a hassle and the records people have an attitude. Happens in every profession and records mgmt is no exception. But they MUST send records to the docs, and you CAN get the info that they learn. More importantly, the doctor can get the info and can use it to help figure out what is going on and how to help. On the topic of records, the Parent Report is still a powerful tool. It is the document that you create about your child with all the details of everyhting you know about him. The link in my signature will take you to the archived thread with the outline and explanation. I have found that a good Parent Report can often help you to get a doctor to pay attention and really listen to what you are saying and what you have tried already and how well it worked. [/QUOTE]
Insert quotes…
Verification
Post reply
Forums
Parent Support Forums
General Parenting
Other Syndrome that Mimics Shaken Baby Syndrome??
Top