Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Internet Search
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
What's new
Search
Search
Search titles only
By:
New posts
Search forums
Menu
Log in
Register
Install the app
Install
Forums
Parent Support Forums
General Parenting
Pandas
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Reply to thread
Message
<blockquote data-quote="svengandhi" data-source="post: 560307" data-attributes="member: 3493"><p>My oldest son who is now 22 was given a diagnosis of PANDAS at NIH shortly before he turned 7.</p><p></p><p>He was fairly normal as a child except for a large number of ear infections. When he was in K, he had an episode where he choked on a piece of pizza and H had to Heimlich him. He refused to eat for a week after that - a horrible week during which we forced Pediasure down his throat while waiting for an endoscopy appointment. The day before the appointment, he began eating again. A month later, he had a similar episode but that time he had not choked. He had strep. His teacher sent me an article about Dr. Susan Swedos of NIH. Her son developed Obsessive Compulsive Disorder (OCD)-like symptoms after a bout of strep. We realized that our son had had strep during the first choking episode and he began eating again 2 days after we put him on antibiotics (liquid). We filled out paperwork and qualified for testing for the study. The results were that he definitely had PANDAS but that it was not severe enough to require the Gamma Globulin infusion the study was offering. Instead, we were told to give him Amoxicillin at the first sign of strep or Obsessive Compulsive Disorder (OCD).</p><p></p><p>When he entered 2nd grade, we informed the school so that they would tell us of strep in any classes. Our daughter was a strep carrier who never became ill. Our ENT read up on PANDAS and told me that some research was showing that removing the tonsils would help so we did that at the end of 2nd grade. It did help but we still kept him on precautionary amoxicillin through middle school.</p><p></p><p>He now recognizes when he is feeling strange and will tell us so that we can get him amox. His eyes get red rimmed, he get OCDishand has strange obsessions and fears. Over the years, his fears have included that mothballs will kill him, that he must have a certain toy or game and the like. Now it's that he MUST go fishing. He's come to enjoy it as a hobby lately but when he's PANDA-ish, we almost have to tie him down when it's not time to go due to weather, work, etc.</p><p></p><p>It's a strange syndrome.</p></blockquote><p></p>
[QUOTE="svengandhi, post: 560307, member: 3493"] My oldest son who is now 22 was given a diagnosis of PANDAS at NIH shortly before he turned 7. He was fairly normal as a child except for a large number of ear infections. When he was in K, he had an episode where he choked on a piece of pizza and H had to Heimlich him. He refused to eat for a week after that - a horrible week during which we forced Pediasure down his throat while waiting for an endoscopy appointment. The day before the appointment, he began eating again. A month later, he had a similar episode but that time he had not choked. He had strep. His teacher sent me an article about Dr. Susan Swedos of NIH. Her son developed Obsessive Compulsive Disorder (OCD)-like symptoms after a bout of strep. We realized that our son had had strep during the first choking episode and he began eating again 2 days after we put him on antibiotics (liquid). We filled out paperwork and qualified for testing for the study. The results were that he definitely had PANDAS but that it was not severe enough to require the Gamma Globulin infusion the study was offering. Instead, we were told to give him Amoxicillin at the first sign of strep or Obsessive Compulsive Disorder (OCD). When he entered 2nd grade, we informed the school so that they would tell us of strep in any classes. Our daughter was a strep carrier who never became ill. Our ENT read up on PANDAS and told me that some research was showing that removing the tonsils would help so we did that at the end of 2nd grade. It did help but we still kept him on precautionary amoxicillin through middle school. He now recognizes when he is feeling strange and will tell us so that we can get him amox. His eyes get red rimmed, he get OCDishand has strange obsessions and fears. Over the years, his fears have included that mothballs will kill him, that he must have a certain toy or game and the like. Now it's that he MUST go fishing. He's come to enjoy it as a hobby lately but when he's PANDA-ish, we almost have to tie him down when it's not time to go due to weather, work, etc. It's a strange syndrome. [/QUOTE]
Insert quotes…
Verification
Post reply
Forums
Parent Support Forums
General Parenting
Pandas
Top