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Parenting the parent
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<blockquote data-quote="InsaneCdn" data-source="post: 434834" data-attributes="member: 11791"><p>Looks like its just variations on a theme... </p><p> </p><p>If you get the right entry-level people - that is, the ones who can unlock doors - on your side (family doctor, mental health intake worker, school resource teacher, etc.), you don't get anything or you don't get the right things - no matter where you live.</p><p> </p><p>We are finding out more as we go, though... and part of the problem is that us parents (the ones who care enough to be involved and pour in whatever it takes...) are usually ahead of the curve, both at school and at home. For example - testing we paid to have done (things that would be school-funded, can be queue jumped here, but not the medical stuff) three years ago, to answer a particular question... didn't answer the question - it just ruled out other sides of that particular disorder. We're doing re-testing now... and it turns out that the SLPs around here didn't even know about, much less have specific tests for, the particular twist of symptoms we are concerned about... and sure enough, THAT is exactly where the problem is. Bad Speech Language Pathologist (SLP)? No. Living in the boonies where we're (on average) 20 years behind most of the world? Yup.</p><p> </p><p>So, the difficult children have an advocate - us. But us parents don't have an equivalent, so we spend all our strength fighting for our kids, and don't have much left to fight for ourselves.</p><p> </p><p>I've half-threatened to pull out and move to UK or AUX/NZ... because they are way ahead of the wave on the kinds of issues we are dealing with... or rather, on SOME of the issues... it turns out, there's just a different set of problems there.</p><p> </p><p>Please. Can we start a revolution and change the world?</p></blockquote><p></p>
[QUOTE="InsaneCdn, post: 434834, member: 11791"] Looks like its just variations on a theme... If you get the right entry-level people - that is, the ones who can unlock doors - on your side (family doctor, mental health intake worker, school resource teacher, etc.), you don't get anything or you don't get the right things - no matter where you live. We are finding out more as we go, though... and part of the problem is that us parents (the ones who care enough to be involved and pour in whatever it takes...) are usually ahead of the curve, both at school and at home. For example - testing we paid to have done (things that would be school-funded, can be queue jumped here, but not the medical stuff) three years ago, to answer a particular question... didn't answer the question - it just ruled out other sides of that particular disorder. We're doing re-testing now... and it turns out that the SLPs around here didn't even know about, much less have specific tests for, the particular twist of symptoms we are concerned about... and sure enough, THAT is exactly where the problem is. Bad Speech Language Pathologist (SLP)? No. Living in the boonies where we're (on average) 20 years behind most of the world? Yup. So, the difficult children have an advocate - us. But us parents don't have an equivalent, so we spend all our strength fighting for our kids, and don't have much left to fight for ourselves. I've half-threatened to pull out and move to UK or AUX/NZ... because they are way ahead of the wave on the kinds of issues we are dealing with... or rather, on SOME of the issues... it turns out, there's just a different set of problems there. Please. Can we start a revolution and change the world? [/QUOTE]
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