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People looking like ants? Huh?
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<blockquote data-quote="buddy" data-source="post: 472882" data-attributes="member: 12886"><p>I will share our journey and if it helps....????</p><p></p><p>my difficult child started saying in the car one day, Mom, things look fake. He was in third grade. I tried to ask what that meant and he said things just change and dont look real. (turns out even adults can't really explain this, I have a neighbor who says it is like being in a movie). After a while of it continuing I took him to our doctor. He said it is probably depersonalization and derealization. He was treated with Prozac but never got better. I suspected seizures (he has a brain injury and had lots of seizures in the past but the generalized and partial complex seizures had stopped) So, our neuro was on a break (caring for her difficult child) and our pediatrician put him in a nationally known seizure assessment program We stayed for three days and they found nothing. so more anxiety work and prozac continued. I googled to see if our doctor had started practicing again. SHE DID! We went to her new office (which is part of a Children's Specialty Center and hospital--by they way they do evaluations including neuropsychs, help with housing during it , my mom used to coordinate that so if anyone is interested feel free to pm me and I will give the specifics).</p><p></p><p>She remembered my son (it had been three years) and by this time he said, what do I have to do ...DIE to get rid of this? She said that it was not an option for him to suffer with this and she really thought he was having seizures. She got her epilepsy specialist friend (head of dept) to admit him and another study was done. His injury is on the rt (but it was large so had overall impact) so they said those kinds of symptoms are usually associated with left sided seizures. They put the leads on and for one day, nothing The next day she said they were adding temporal lobe leads. She said they stopped doing those extra ones like 15 years ago because they never showed anything. But it was too suspicious. Within a half hour our room started filling up. People in and out. This kid was having seizures on and off all day and all night. They start on the right and go to the left temporal lobes only. It was not anxiety. </p><p></p><p>He had also suffered terrible fatigue at times and awful headaches. Since starting Lyrica, these symtoms are rare.</p><p></p><p>They are diagnosis as simple seizures because he does not lose consciousness, he knows it is NOT really happening, just looks "fake". For some people a similar thing can happen as an aura, which often leads to another kind of seizure like partial complex or generalized. Simple seizures are similar but diagnostically different. </p><p></p><p>Ok, that's our story and we're sticking to it! A normal eeg means nothing. They have to catch it for the first thing, and they have to have the right leads on. Almost every site for seizures you see they will say they had tons of normal eegs and were misdiagnosed for years. eegs are hit and miss. One option is to do a home eeg where they wear the leads for several days and when events happen you push a little button and document time and day in a journal. similar to inpatient tests but allows them to go about life and any environmental triggers will be the same.</p><p></p><p>so simple answer is, there are legitimate causes for this whether due to anxiety or other mental health issue as well as a seizure possibility. It does not mean he is losing touch with reality because he can clearly tell you things look different from how they really are.</p><p></p><p>My best to you...I will be happy to share specific info thru pm if you are interested.</p></blockquote><p></p>
[QUOTE="buddy, post: 472882, member: 12886"] I will share our journey and if it helps....???? my difficult child started saying in the car one day, Mom, things look fake. He was in third grade. I tried to ask what that meant and he said things just change and dont look real. (turns out even adults can't really explain this, I have a neighbor who says it is like being in a movie). After a while of it continuing I took him to our doctor. He said it is probably depersonalization and derealization. He was treated with Prozac but never got better. I suspected seizures (he has a brain injury and had lots of seizures in the past but the generalized and partial complex seizures had stopped) So, our neuro was on a break (caring for her difficult child) and our pediatrician put him in a nationally known seizure assessment program We stayed for three days and they found nothing. so more anxiety work and prozac continued. I googled to see if our doctor had started practicing again. SHE DID! We went to her new office (which is part of a Children's Specialty Center and hospital--by they way they do evaluations including neuropsychs, help with housing during it , my mom used to coordinate that so if anyone is interested feel free to pm me and I will give the specifics). She remembered my son (it had been three years) and by this time he said, what do I have to do ...DIE to get rid of this? She said that it was not an option for him to suffer with this and she really thought he was having seizures. She got her epilepsy specialist friend (head of dept) to admit him and another study was done. His injury is on the rt (but it was large so had overall impact) so they said those kinds of symptoms are usually associated with left sided seizures. They put the leads on and for one day, nothing The next day she said they were adding temporal lobe leads. She said they stopped doing those extra ones like 15 years ago because they never showed anything. But it was too suspicious. Within a half hour our room started filling up. People in and out. This kid was having seizures on and off all day and all night. They start on the right and go to the left temporal lobes only. It was not anxiety. He had also suffered terrible fatigue at times and awful headaches. Since starting Lyrica, these symtoms are rare. They are diagnosis as simple seizures because he does not lose consciousness, he knows it is NOT really happening, just looks "fake". For some people a similar thing can happen as an aura, which often leads to another kind of seizure like partial complex or generalized. Simple seizures are similar but diagnostically different. Ok, that's our story and we're sticking to it! A normal eeg means nothing. They have to catch it for the first thing, and they have to have the right leads on. Almost every site for seizures you see they will say they had tons of normal eegs and were misdiagnosed for years. eegs are hit and miss. One option is to do a home eeg where they wear the leads for several days and when events happen you push a little button and document time and day in a journal. similar to inpatient tests but allows them to go about life and any environmental triggers will be the same. so simple answer is, there are legitimate causes for this whether due to anxiety or other mental health issue as well as a seizure possibility. It does not mean he is losing touch with reality because he can clearly tell you things look different from how they really are. My best to you...I will be happy to share specific info thru pm if you are interested. [/QUOTE]
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