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Poor, pitiful me syndrome with-public opinions
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<blockquote data-quote="AllStressedOut" data-source="post: 71418" data-attributes="member: 3837"><p>Flour ingredients? What do you mean? Like wheat or white?</p><p></p><p>difficult child has always snuck food, even as a baby/toddler. When he sneaks it, he sneaks as much as he can eat in the time period he thinks he has. Entire bags of hersheys kisses, family size box of nutter bars, bags of mini snickers, family size bags of starburst and so on. While he has always done this, I still don't think mom is right that it's this Prader-Willi Syndrome. The only think that fits is that he can't stop eating. He has only been on this special diet since the end of the summer in 2006, so a little more than a year. Before that he got sugar just as much as any other kid in the house, with the exception of his sneaking foods we didn't know about.</p><p></p><p>Here is the info I found on this syndrome:</p><p></p><p>Definition Return to top </p><p></p><p>Prader-Willi syndrome is a congenital (present from birth) disease characterized by obesity, decreased muscle tone, decreased mental capacity, and hypogonadism.</p><p></p><p>Causes, incidence, and risk factors Return to top </p><p></p><p>Prader-Willi is caused by the deletion of a gene on chromosome 15. The majority of patients have a deletion of the father's DNA in this region. The remaining patients frequently have two copies of the mother's chromosome 15. The maternal copy of this gene is turned off in all people. When there is a deletion of the father's DNA (approximately 70% of patients), the disease occurs. This is because the patient is left with only the inactive, maternal copy.</p><p></p><p>Signs of Prader-Willi may be seen at birth. New infants with the condition are often small and very floppy (hypotonic). Male infants may have undescended testicles. The growing child exhibits slow mental and delayed motor development, increasing obesity, and characteristically small hands and feet.</p><p></p><p>Rapid weight gain may occur during the first few years because the patient develops uncontrollable hunger which leads to morbid obesity.</p><p></p><p>Mental development is slow, and the IQ seldom exceeds 80. However, children with Prader-Willi generally are very happy, smile frequently, and are pleasant to be around.</p><p></p><p>Affected children have an intense craving for food and will do almost anything to get it. This results in uncontrollable weight gain. Morbid obesity (the degree of obesity that seriously affects health) may lead to respiratory failure with hypoxia (low blood oxygen levels), cor pulmonale (right-sided heart failure), and death.</p><p></p><p>Symptoms Return to top </p><p></p><p>Floppy newborn infant (hypotonic) </p><p>Small for gestational age </p><p>Undescended testicles in the male infant </p><p>Delayed motor development </p><p>Slow mental development </p><p>Very small hands and feet in comparison to body </p><p>Rapid weight gain </p><p>Insatiable appetite, food craving </p><p>Almond-shaped eyes </p><p>Narrow bifrontal skull </p><p>Morbid obesity </p><p>Skeletal (limb) abnormalities </p><p>Stria </p><p>Signs and tests Return to top </p><p></p><p>Hypotonia </p><p>Hypomentia </p><p>Hypogonadism </p><p>Obesity</p></blockquote><p></p>
[QUOTE="AllStressedOut, post: 71418, member: 3837"] Flour ingredients? What do you mean? Like wheat or white? difficult child has always snuck food, even as a baby/toddler. When he sneaks it, he sneaks as much as he can eat in the time period he thinks he has. Entire bags of hersheys kisses, family size box of nutter bars, bags of mini snickers, family size bags of starburst and so on. While he has always done this, I still don't think mom is right that it's this Prader-Willi Syndrome. The only think that fits is that he can't stop eating. He has only been on this special diet since the end of the summer in 2006, so a little more than a year. Before that he got sugar just as much as any other kid in the house, with the exception of his sneaking foods we didn't know about. Here is the info I found on this syndrome: Definition Return to top Prader-Willi syndrome is a congenital (present from birth) disease characterized by obesity, decreased muscle tone, decreased mental capacity, and hypogonadism. Causes, incidence, and risk factors Return to top Prader-Willi is caused by the deletion of a gene on chromosome 15. The majority of patients have a deletion of the father's DNA in this region. The remaining patients frequently have two copies of the mother's chromosome 15. The maternal copy of this gene is turned off in all people. When there is a deletion of the father's DNA (approximately 70% of patients), the disease occurs. This is because the patient is left with only the inactive, maternal copy. Signs of Prader-Willi may be seen at birth. New infants with the condition are often small and very floppy (hypotonic). Male infants may have undescended testicles. The growing child exhibits slow mental and delayed motor development, increasing obesity, and characteristically small hands and feet. Rapid weight gain may occur during the first few years because the patient develops uncontrollable hunger which leads to morbid obesity. Mental development is slow, and the IQ seldom exceeds 80. However, children with Prader-Willi generally are very happy, smile frequently, and are pleasant to be around. Affected children have an intense craving for food and will do almost anything to get it. This results in uncontrollable weight gain. Morbid obesity (the degree of obesity that seriously affects health) may lead to respiratory failure with hypoxia (low blood oxygen levels), cor pulmonale (right-sided heart failure), and death. Symptoms Return to top Floppy newborn infant (hypotonic) Small for gestational age Undescended testicles in the male infant Delayed motor development Slow mental development Very small hands and feet in comparison to body Rapid weight gain Insatiable appetite, food craving Almond-shaped eyes Narrow bifrontal skull Morbid obesity Skeletal (limb) abnormalities Stria Signs and tests Return to top Hypotonia Hypomentia Hypogonadism Obesity [/QUOTE]
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