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Parent Support Forums
General Parenting
Prader Willi Syndrome
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<blockquote data-quote="witzend" data-source="post: 202947" data-attributes="member: 99"><p>Lizzie~</p><p></p><p>Hi and welcome to the board. I also have a rare genetic disorder that effects about 1 in 20,000, and I understand how difficult it can be to find someone who specializes in the condition. I have usually found that when someone publishes, they are happy that people noticed their articles, and like to be asked for direction as to who can help them. I found an article on PWS, and what is probably the clinic that BestIcan wrote about. Here is the contact information.</p><p></p><p><span style="font-size: 10px"><em>Maria J. Mascari, Ph.D., is instructor in the division of genetics, department of pediatrics, in the College of Medicine, The Milton S, Hershey Medical Center, Pennsylvania State University, 500 University Drive, Hershey, PA 17033; 717-531- 8414. She is also coordinator and genetic counselor for the Medical Center's Prader-Willi Syndrome Clinic. </em></span></p></blockquote><p></p>
[QUOTE="witzend, post: 202947, member: 99"] Lizzie~ Hi and welcome to the board. I also have a rare genetic disorder that effects about 1 in 20,000, and I understand how difficult it can be to find someone who specializes in the condition. I have usually found that when someone publishes, they are happy that people noticed their articles, and like to be asked for direction as to who can help them. I found an article on PWS, and what is probably the clinic that BestIcan wrote about. Here is the contact information. [SIZE=2][I]Maria J. Mascari, Ph.D., is instructor in the division of genetics, department of pediatrics, in the College of Medicine, The Milton S, Hershey Medical Center, Pennsylvania State University, 500 University Drive, Hershey, PA 17033; 717-531- 8414. She is also coordinator and genetic counselor for the Medical Center's Prader-Willi Syndrome Clinic. [/I][/SIZE] [/QUOTE]
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