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Prader Willi Syndrome
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<blockquote data-quote="lizzie09" data-source="post: 203078" data-attributes="member: 8006"><p>Thank you again totoro and Marg for such great replies.</p><p>In relation to light issue, I originally thought it was too much light as the 1st and 2nd episodes occurred during our UNUSUALLY bright sunny warm summers 2 and three years ago. However last episode in October 07 was in October which is a grey muggy month here approaching winter. So it appears to be due neither to light or lack of it. PWS do have temperature issues. Not like fever but with regulation during hot weather.</p><p>I really havent a clue. The idea that its anxiety borne seems likely but as he probably doesnt identify immediately a factor its too late when it begins to nip it in the bud.</p><p>However the Xanax appeared to work on Thurs last which gives me a bit of hope.</p><p>I have a 21st party for my second son who is one year younger on Friday and I am praying that nothing odd behaviour wise disturbs the celebration. Si far we are looking good but as you b oth know we, as mothers, do suffer the stress of what might happen despite our best efforts.</p><p>Totoro what does PRN mean? I am not great on these abbrev just yet!!!</p><p> </p><p>Sweet thoughts to you both winging there way many miles across the seas.</p><p> </p><p>Isnt the internet justs so COOL as the kids would say!</p></blockquote><p></p>
[QUOTE="lizzie09, post: 203078, member: 8006"] Thank you again totoro and Marg for such great replies. In relation to light issue, I originally thought it was too much light as the 1st and 2nd episodes occurred during our UNUSUALLY bright sunny warm summers 2 and three years ago. However last episode in October 07 was in October which is a grey muggy month here approaching winter. So it appears to be due neither to light or lack of it. PWS do have temperature issues. Not like fever but with regulation during hot weather. I really havent a clue. The idea that its anxiety borne seems likely but as he probably doesnt identify immediately a factor its too late when it begins to nip it in the bud. However the Xanax appeared to work on Thurs last which gives me a bit of hope. I have a 21st party for my second son who is one year younger on Friday and I am praying that nothing odd behaviour wise disturbs the celebration. Si far we are looking good but as you b oth know we, as mothers, do suffer the stress of what might happen despite our best efforts. Totoro what does PRN mean? I am not great on these abbrev just yet!!! Sweet thoughts to you both winging there way many miles across the seas. Isnt the internet justs so COOL as the kids would say! [/QUOTE]
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