Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Internet Search
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
What's new
Search
Search
Search titles only
By:
New posts
Search forums
Menu
Log in
Register
Install the app
Install
Forums
Parent Support Forums
General Parenting
Prader Willi Syndrome
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Reply to thread
Message
<blockquote data-quote="lizzie09" data-source="post: 203079" data-attributes="member: 8006"><p>Hello again Marg</p><p>In relation to the endocrinologist...for the last two yrs we have had the adult hospital service for our son. The endocrinologist is extraordinary in so far as he appears to have no interest in the overall syndrome. He doesnt even weigh my son and really just asks for bloods to be done every 6mths I suppose because of the growth hormone though its now finished. Testosteone is a bit low too. Endo is not interested in big picture. When we appeared in April last routine I expressed my disappointment over the dept lack of support during the episode in Octiber. At that time I arrived to this Endo dept tro see the doctor with my aggitated son and I was turned away!!! How mad is that (and it was mad! believe me) The hospital psychiatric only delat with people living in that catchment area and I was not. I was told to go back to the Mental Helath facility/hos which I had already dealt with in 2006 and was turned away from there....ne medication no help whatsoever. I once again told the Endo about this and then he said the Day Service provider had the part time doctor ( the one that looked for elipepsy tests) and he should look after the issue.</p><p>What I need and do not have is a multidisciplinary team on board and at adult leve; it does not exist here.</p><p>In Paediatrics there was a fantastic lady doctor, it appears the only one with real knowledge of the syndrome. She was the one who eventually diagnosed my son.</p><p>Unfortunately during the eight yrs attending her clinic and getting GH treatment we had no real problems at all.</p><p>I</p></blockquote><p></p>
[QUOTE="lizzie09, post: 203079, member: 8006"] Hello again Marg In relation to the endocrinologist...for the last two yrs we have had the adult hospital service for our son. The endocrinologist is extraordinary in so far as he appears to have no interest in the overall syndrome. He doesnt even weigh my son and really just asks for bloods to be done every 6mths I suppose because of the growth hormone though its now finished. Testosteone is a bit low too. Endo is not interested in big picture. When we appeared in April last routine I expressed my disappointment over the dept lack of support during the episode in Octiber. At that time I arrived to this Endo dept tro see the doctor with my aggitated son and I was turned away!!! How mad is that (and it was mad! believe me) The hospital psychiatric only delat with people living in that catchment area and I was not. I was told to go back to the Mental Helath facility/hos which I had already dealt with in 2006 and was turned away from there....ne medication no help whatsoever. I once again told the Endo about this and then he said the Day Service provider had the part time doctor ( the one that looked for elipepsy tests) and he should look after the issue. What I need and do not have is a multidisciplinary team on board and at adult leve; it does not exist here. In Paediatrics there was a fantastic lady doctor, it appears the only one with real knowledge of the syndrome. She was the one who eventually diagnosed my son. Unfortunately during the eight yrs attending her clinic and getting GH treatment we had no real problems at all. I [/QUOTE]
Insert quotes…
Verification
Post reply
Forums
Parent Support Forums
General Parenting
Prader Willi Syndrome
Top