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General Parenting
Prader Willi Syndrome
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<blockquote data-quote="lizzie09" data-source="post: 203115" data-attributes="member: 8006"><p>Yes Marg you are so right.</p><p>I see the same GP. Each family signs up to a GP. This one has all my sons history from birth and reports from Endo docs regularly. She just has been wary to prescribe antipsychotics as she feels its not her area...she is shocked that no one wants to know. I explained about the Endo in adult hospital and she just looked shocked.</p><p>I need to get her on board. She has all the in formation. I need to shout louder and probably refuse to move till I get help...it has come to that,</p><p>If son had not improved last year I intended leaving him in Day Service as someone would listen to them. A horrible thing to contemplete but thats whats happening.</p><p>The most shocking part is that the Mental Service does not want to know and noone wants to get involved with PWS because its not so documented here and its a very odd disability.</p><p>However I do intend to keep appearing at the GP surgery if necessary but this can be difficult if son is in that mood and you can cause a bit of a commotion..</p><p>Somehow I am not happy with the attending doctor at the day service but I suppose he is better than nothing,,,,maybe with GP help I will get some cooperation but it actually is unlikely to be the multidisclipinary approach that would be the best.</p><p>I am now documenting everything that happens.</p></blockquote><p></p>
[QUOTE="lizzie09, post: 203115, member: 8006"] Yes Marg you are so right. I see the same GP. Each family signs up to a GP. This one has all my sons history from birth and reports from Endo docs regularly. She just has been wary to prescribe antipsychotics as she feels its not her area...she is shocked that no one wants to know. I explained about the Endo in adult hospital and she just looked shocked. I need to get her on board. She has all the in formation. I need to shout louder and probably refuse to move till I get help...it has come to that, If son had not improved last year I intended leaving him in Day Service as someone would listen to them. A horrible thing to contemplete but thats whats happening. The most shocking part is that the Mental Service does not want to know and noone wants to get involved with PWS because its not so documented here and its a very odd disability. However I do intend to keep appearing at the GP surgery if necessary but this can be difficult if son is in that mood and you can cause a bit of a commotion.. Somehow I am not happy with the attending doctor at the day service but I suppose he is better than nothing,,,,maybe with GP help I will get some cooperation but it actually is unlikely to be the multidisclipinary approach that would be the best. I am now documenting everything that happens. [/QUOTE]
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