Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Internet Search
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
What's new
Search
Search
Search titles only
By:
New posts
Search forums
Menu
Log in
Register
Install the app
Install
Forums
Parent Support Forums
General Parenting
problems i'm stressing
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Reply to thread
Message
<blockquote data-quote="susiestar" data-source="post: 401580" data-attributes="member: 1233"><p>Talking to the head nurse is a good way to start. Stress that if they don't take time to deal with the anxiety then they will NEVER get anywhere, regardless of if the anxiety is caused by bipolar, another disorder or the man in the moon eating green cheese. Also tell her that the last hospital tried it for almost 10 full days and she didn't eat or drink anything during that time and she had no feeding tube so she got incredibly and dangerously weak and dehydrated and STILL she was completely refusing to do anything. That they gave her seroquel and quite a few other medications and all it did was scare her and make her MORE defiant rather than easier to force into things. </p><p> </p><p>let them know that until they start therapy there will be NO removal of you because all it will do if freak her out and make her dig in - and that given this extreme defiance and super extreme anxiety she WILL dig in to the point that it kills her. Literally and not just figuratively. Let them know that they need to get all the therapies on board <strong>and making some progress</strong>, ESPECIALLY with her anxiety, before they can even discuss removing you, etc..... because all it will do is to make her much much sicker and ahrder to treat. </p><p> </p><p>This isn't going to be easy - the process OR getting through to them. You have enough of difficult child's stubborn (she had to get it from somewhere, lol!) and this is why you are such a great warrior mom for her. So don't fully write off what they want to do, because pushing her past her anxiety over choking isn't going to be fun or easy or with-o trauma, but push THEM until they individualize the plan to workWITH her stubborn streak. heck, why don't they start challenging her, maybe even daring her to face her fears? Not in a mean way, or as a put down, but with a positive spin? Praise her stubbornness and tell her that she can use that to beat back the anxiety and fear and to tell the anxiety that she IS going to get better, that it is NOT going to keep her a prisoner any longer. This just occurred to me, but it was a method that we used with Wiz at one point when his anxiety was creating huge problems for him. Make the anxiety a sort of "monster" in her head that she can beat. If she is into any type of character on tv or in a game, use it with that. The anxiety is the "bad guy" and she has to fight it with the help of you, etc... If you are any good at drawing, give her a picture of herself as a superhero fighting off the anxiety villain/anxiety monster to help inspire her and let her see that she can do it.</p><p> </p><p>Does that make any kind of sense? It just seems like it might be a more kid friendly way to get through to her. </p><p> </p><p>Leaving her with the staff while she was hitting herself, etc... was a good move. I hope they went in to her and listened to her - maybe it was a wakeup call. From now on, any time she does something like that, or something over the top, call the staff in to handle it. Help them, of course, if you can. But make THEM see it every time. MAYBE that will help open their eyes. If all they see is a kid who cooperates and does her best while they are there, then they have no reason to change what they think is going to work. they have to see the "behaviors" to treat them. It is what bit us in the tookus when Jess was in the hospital in Dallas. I would also keep a detailed record of what goes on, much as you can. If you don't have a Parent Report, start thinking about writing one. The link in my sig will take you Occupational Therapist (OT) the thread that explains it and why it is important. </p><p> </p><p>I am sorry they already want to pull this crud. I know it must be horribly scary to even think about it. Ask them what happens to the other 10% and ask why they told you that they do not do that and now they are telling you that they do?? I would want to know why they said this, because it would feel like they lied to me (and got me to spend all that $$ to go do something we tried at home and only made her much worse). I am so sorry.</p><p> </p><p>((((((((((hugs)))))))))) You are doing a truly awesome job with all of this. How are YOU doing physically?</p></blockquote><p></p>
[QUOTE="susiestar, post: 401580, member: 1233"] Talking to the head nurse is a good way to start. Stress that if they don't take time to deal with the anxiety then they will NEVER get anywhere, regardless of if the anxiety is caused by bipolar, another disorder or the man in the moon eating green cheese. Also tell her that the last hospital tried it for almost 10 full days and she didn't eat or drink anything during that time and she had no feeding tube so she got incredibly and dangerously weak and dehydrated and STILL she was completely refusing to do anything. That they gave her seroquel and quite a few other medications and all it did was scare her and make her MORE defiant rather than easier to force into things. let them know that until they start therapy there will be NO removal of you because all it will do if freak her out and make her dig in - and that given this extreme defiance and super extreme anxiety she WILL dig in to the point that it kills her. Literally and not just figuratively. Let them know that they need to get all the therapies on board [B]and making some progress[/B], ESPECIALLY with her anxiety, before they can even discuss removing you, etc..... because all it will do is to make her much much sicker and ahrder to treat. This isn't going to be easy - the process OR getting through to them. You have enough of difficult child's stubborn (she had to get it from somewhere, lol!) and this is why you are such a great warrior mom for her. So don't fully write off what they want to do, because pushing her past her anxiety over choking isn't going to be fun or easy or with-o trauma, but push THEM until they individualize the plan to workWITH her stubborn streak. heck, why don't they start challenging her, maybe even daring her to face her fears? Not in a mean way, or as a put down, but with a positive spin? Praise her stubbornness and tell her that she can use that to beat back the anxiety and fear and to tell the anxiety that she IS going to get better, that it is NOT going to keep her a prisoner any longer. This just occurred to me, but it was a method that we used with Wiz at one point when his anxiety was creating huge problems for him. Make the anxiety a sort of "monster" in her head that she can beat. If she is into any type of character on tv or in a game, use it with that. The anxiety is the "bad guy" and she has to fight it with the help of you, etc... If you are any good at drawing, give her a picture of herself as a superhero fighting off the anxiety villain/anxiety monster to help inspire her and let her see that she can do it. Does that make any kind of sense? It just seems like it might be a more kid friendly way to get through to her. Leaving her with the staff while she was hitting herself, etc... was a good move. I hope they went in to her and listened to her - maybe it was a wakeup call. From now on, any time she does something like that, or something over the top, call the staff in to handle it. Help them, of course, if you can. But make THEM see it every time. MAYBE that will help open their eyes. If all they see is a kid who cooperates and does her best while they are there, then they have no reason to change what they think is going to work. they have to see the "behaviors" to treat them. It is what bit us in the tookus when Jess was in the hospital in Dallas. I would also keep a detailed record of what goes on, much as you can. If you don't have a Parent Report, start thinking about writing one. The link in my sig will take you Occupational Therapist (OT) the thread that explains it and why it is important. I am sorry they already want to pull this crud. I know it must be horribly scary to even think about it. Ask them what happens to the other 10% and ask why they told you that they do not do that and now they are telling you that they do?? I would want to know why they said this, because it would feel like they lied to me (and got me to spend all that $$ to go do something we tried at home and only made her much worse). I am so sorry. ((((((((((hugs)))))))))) You are doing a truly awesome job with all of this. How are YOU doing physically? [/QUOTE]
Insert quotes…
Verification
Post reply
Forums
Parent Support Forums
General Parenting
problems i'm stressing
Top