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Q about ADHD + vs. Autism Spectrum Disorders (ASD)
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<blockquote data-quote="buddy" data-source="post: 567756" data-attributes="member: 12886"><p>I know, it can sure be overwhelming. Just remember, no matter what the label, your kids are still the wonderful kids they always were. The labels are tools to help get them and you support. </p><p></p><p>The main thing is as others have said, certain labels can get you certain types of therapies. The level of support is often better when people realize that there is any kind of pervasive disorder...any form of issue on the spectrum. To be clear, the new DSMV does not intend to get rid of serving people who were formally diagnosis as Asperger's. They believe that the new criteria will cover them but on the end of the spectrum that is just not as severe. (and I am not going to argue that here, we really will have to wait and see, I think it will as always depend on the provider and whether or not they understand how that spectrum looks in real life for real people). But that term....autistic can feel like a kick in the gut. Autism Spectrum Disorders (ASD) is for some easier to stomach because it really does represent the range from mild to severely involved. People are obviously going to use terms to qualify what their child is like and those terms might be mild, severe, formerly called Asperger's or they will just stick with the common terms. I think that is fine, the important thing is how people understand the individual seeking services. Use the terms you need.</p><p></p><p>The problem I have experienced with the ADHD plus ODD plus Anxiety route is that many teachers and school people view these kids as having much more control than they likely have. They view them as choosing to drive people nuts and being willfully upsetting to others (and of course all kids do have those moments, but I am talking what drives them in general). Its somehow easier for people to understand the very different thinking that goes along with Autism Spectrum Disorders (ASD). But if a child is not Autism Spectrum Disorders (ASD) then of course you are not going to just call them that! People do need to meet criteria that is not a part of the others. It's also important to remember that people can have these traits (I think many parents here and that I've met have said, they feel they lean toward some of the issues that their kids have) but not be involved at a level that warrants the label/diagnosis. </p><p></p><p>I think you are doing great to take things step by step and just keep the doors open to whatever will allow your children to receive the best services. Remember that a 504 will require you to be very on top of things because unlike an IEP there is no set procedure for review of the plan, nor any supervision that will hold people accountable if they do not follow the plan. It sounds like you may be working with people who do well with them, and that is what makes the difference for people. Some settings do a beautiful job following 504 plans and really use them to support their students. </p><p></p><p>Your kids are people first. You know that, but I want you to know I understand how sad it can be to think of their having a life long diagnosis that could impact them in many ways. The good news is there are many many successful people with these diagnosis. and they especially do well if they have learned the skills and received the supports that most appropriately address their needs. That is the focus. The rest is just yuck that we have to live through to get there.</p></blockquote><p></p>
[QUOTE="buddy, post: 567756, member: 12886"] I know, it can sure be overwhelming. Just remember, no matter what the label, your kids are still the wonderful kids they always were. The labels are tools to help get them and you support. The main thing is as others have said, certain labels can get you certain types of therapies. The level of support is often better when people realize that there is any kind of pervasive disorder...any form of issue on the spectrum. To be clear, the new DSMV does not intend to get rid of serving people who were formally diagnosis as Asperger's. They believe that the new criteria will cover them but on the end of the spectrum that is just not as severe. (and I am not going to argue that here, we really will have to wait and see, I think it will as always depend on the provider and whether or not they understand how that spectrum looks in real life for real people). But that term....autistic can feel like a kick in the gut. Autism Spectrum Disorders (ASD) is for some easier to stomach because it really does represent the range from mild to severely involved. People are obviously going to use terms to qualify what their child is like and those terms might be mild, severe, formerly called Asperger's or they will just stick with the common terms. I think that is fine, the important thing is how people understand the individual seeking services. Use the terms you need. The problem I have experienced with the ADHD plus ODD plus Anxiety route is that many teachers and school people view these kids as having much more control than they likely have. They view them as choosing to drive people nuts and being willfully upsetting to others (and of course all kids do have those moments, but I am talking what drives them in general). Its somehow easier for people to understand the very different thinking that goes along with Autism Spectrum Disorders (ASD). But if a child is not Autism Spectrum Disorders (ASD) then of course you are not going to just call them that! People do need to meet criteria that is not a part of the others. It's also important to remember that people can have these traits (I think many parents here and that I've met have said, they feel they lean toward some of the issues that their kids have) but not be involved at a level that warrants the label/diagnosis. I think you are doing great to take things step by step and just keep the doors open to whatever will allow your children to receive the best services. Remember that a 504 will require you to be very on top of things because unlike an IEP there is no set procedure for review of the plan, nor any supervision that will hold people accountable if they do not follow the plan. It sounds like you may be working with people who do well with them, and that is what makes the difference for people. Some settings do a beautiful job following 504 plans and really use them to support their students. Your kids are people first. You know that, but I want you to know I understand how sad it can be to think of their having a life long diagnosis that could impact them in many ways. The good news is there are many many successful people with these diagnosis. and they especially do well if they have learned the skills and received the supports that most appropriately address their needs. That is the focus. The rest is just yuck that we have to live through to get there. [/QUOTE]
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