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referenced EEGs and burned out mom
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<blockquote data-quote="susiestar" data-source="post: 214515" data-attributes="member: 1233"><p>Oh, Sweetie,</p><p> </p><p>You have done so much already for your kids. It stinks to see no help and no end in sight. I know the doctor may like this test, but if you already know hwat is wrong, and he has been on all the medications, what is the point? I think it would not be wise to spend a lot of $$ on it. If insurance covers it all, then fine, but otherwise, why bother?</p><p> </p><p>I have heard so much about how hard Fetal Alcohol Effects (FAE)/Fetal Alcohol Syndrome (FAS) is to treat. I know one boy who is identified to have it at our school (there are more, I just happened to have Jess in class with him and a teacher with NO idea of privacy laws and she told me about it) and he still is working on ABC's and numbers in school. And they have him mainstreamed in 8th grade classes. His parents are bio, and feel they did nothing wrong iwth exposing him to all sorts of things. I just heard from another parent that the boy brought a beer to school in his lunch (packed lunch - somehting he is NOT capable of doing for himself). The "system" and his caseworker are fighting the schools efforts to have him removed from his home. This is one in a LONG line of incidents - such as sending him to school with a note and a bottle of his mom's pain medications because it "helps keep him quiet".</p><p> </p><p>I know your children have better parenting than that poor boy. And they are probably more able to do things, but still extremely difficult to parent.</p><p> </p><p>I will look around to find out what resources I can find. I KNOW the developmental pediatrician in Tulsa that we adored treated some children with this set of problems. Partially because he asked if my niece had it when she was with me on one of wiz' appts (she was a few months old). She doesn't, but has some of the physical markers and a mom with sub abuse problems including alcoholism, but is hopefully in some stage of recovery.</p><p> </p><p>I can call them and ask what resources tehy know of, or even email the doctor - I still have his email in the other computer. Not sure he would answer, but it is worth a try.</p><p> </p><p>have you talked to the dept of human services and/or dept of rehabilitation/disability? I know here they offere help with certain things. also, Goodwill industries might ahve some programs, or the Salvation Army. You ahve problem thought of this, but I wanted to put it out there.</p><p> </p><p>Many hugs, and I am so sad you have seen all the psychiatrists in your area or they have all moved away.</p></blockquote><p></p>
[QUOTE="susiestar, post: 214515, member: 1233"] Oh, Sweetie, You have done so much already for your kids. It stinks to see no help and no end in sight. I know the doctor may like this test, but if you already know hwat is wrong, and he has been on all the medications, what is the point? I think it would not be wise to spend a lot of $$ on it. If insurance covers it all, then fine, but otherwise, why bother? I have heard so much about how hard Fetal Alcohol Effects (FAE)/Fetal Alcohol Syndrome (FAS) is to treat. I know one boy who is identified to have it at our school (there are more, I just happened to have Jess in class with him and a teacher with NO idea of privacy laws and she told me about it) and he still is working on ABC's and numbers in school. And they have him mainstreamed in 8th grade classes. His parents are bio, and feel they did nothing wrong iwth exposing him to all sorts of things. I just heard from another parent that the boy brought a beer to school in his lunch (packed lunch - somehting he is NOT capable of doing for himself). The "system" and his caseworker are fighting the schools efforts to have him removed from his home. This is one in a LONG line of incidents - such as sending him to school with a note and a bottle of his mom's pain medications because it "helps keep him quiet". I know your children have better parenting than that poor boy. And they are probably more able to do things, but still extremely difficult to parent. I will look around to find out what resources I can find. I KNOW the developmental pediatrician in Tulsa that we adored treated some children with this set of problems. Partially because he asked if my niece had it when she was with me on one of wiz' appts (she was a few months old). She doesn't, but has some of the physical markers and a mom with sub abuse problems including alcoholism, but is hopefully in some stage of recovery. I can call them and ask what resources tehy know of, or even email the doctor - I still have his email in the other computer. Not sure he would answer, but it is worth a try. have you talked to the dept of human services and/or dept of rehabilitation/disability? I know here they offere help with certain things. also, Goodwill industries might ahve some programs, or the Salvation Army. You ahve problem thought of this, but I wanted to put it out there. Many hugs, and I am so sad you have seen all the psychiatrists in your area or they have all moved away. [/QUOTE]
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