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Relief! And a bit of hope!!!
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<blockquote data-quote="flutterbee" data-source="post: 172820"><p>My GP gave me two steroid injections today - right shoulder and right sacroiliac joint. The injection she uses also has lidocaine (sp?) in them, so it's almost immediate relief. The pain from my shoulder was radiating up my neck causing all the muscles or tendons or whatever is there to feel bruised to the touch, causing my right ear and eye and just the entire right side of my head to throb. I still had to take pain medication for that. But, the shoulder and hip started feeling better immediately. Hopefully, by tomorrow the steroid will start working and I won't need the pain medications so much. Wow. To feel somewhat normal again is just amazing. My GP also increased my ace inhibitor and this one has a water pill in it that she thinks will be give me more relief with my BiPolar (BP) issues. My GP can't believe that I can't get into the cardiologist until mid-September. I'm established at the practice - not a new patient.</p><p></p><p>As soon as I got to my GP's office, the nurse/receptionist handed me a copy of an article from the Journal of the American Medical Association. Mona (the nurse) said that read it while sitting in the Taco Bell drive thru last night and instantly thought of me and showed it to Dr M first thing this morning. The NIH (National Institutes of Health) Clinical Centers in Bethesda, MD has a new program called the Undiagnosed Diseases Program. Here is a quote from the article:</p><p></p><p>My GP called them today and left a message. She seems to really think I could get into the program given my history, symptoms and lack of a diagnosis. If this doesn't pan out, then the Mayo Clinic (finally found out that it is the Mayo Clinic and not the Cleveland Clinic) has said they want to see me and my GP's office will work with my insurance to try to obtain an approval.</p><p></p><p>Here is the link for the NIH program:</p><p></p><p><a href="http://rarediseases.info.nih.gov/research/pages/27/undiagnosed-diseases-program" target="_blank">http://rarediseases.info.nih.gov/research/pages/27/undiagnosed-diseases-program</a></p><p></p><p>I'm so excited. And how wonderful that the nurse read this and thought of me. You know, I really am so blessed to have the people in my life that I do. Truly. </p><p></p><p>Please keep your fingers crossed, rattle beads, say a prayer, light a candle and/or do the naked chicken liver dance for this. I'm so excited and hopeful that I could just burst.</p></blockquote><p></p>
[QUOTE="flutterbee, post: 172820"] My GP gave me two steroid injections today - right shoulder and right sacroiliac joint. The injection she uses also has lidocaine (sp?) in them, so it's almost immediate relief. The pain from my shoulder was radiating up my neck causing all the muscles or tendons or whatever is there to feel bruised to the touch, causing my right ear and eye and just the entire right side of my head to throb. I still had to take pain medication for that. But, the shoulder and hip started feeling better immediately. Hopefully, by tomorrow the steroid will start working and I won't need the pain medications so much. Wow. To feel somewhat normal again is just amazing. My GP also increased my ace inhibitor and this one has a water pill in it that she thinks will be give me more relief with my BiPolar (BP) issues. My GP can't believe that I can't get into the cardiologist until mid-September. I'm established at the practice - not a new patient. As soon as I got to my GP's office, the nurse/receptionist handed me a copy of an article from the Journal of the American Medical Association. Mona (the nurse) said that read it while sitting in the Taco Bell drive thru last night and instantly thought of me and showed it to Dr M first thing this morning. The NIH (National Institutes of Health) Clinical Centers in Bethesda, MD has a new program called the Undiagnosed Diseases Program. Here is a quote from the article: My GP called them today and left a message. She seems to really think I could get into the program given my history, symptoms and lack of a diagnosis. If this doesn't pan out, then the Mayo Clinic (finally found out that it is the Mayo Clinic and not the Cleveland Clinic) has said they want to see me and my GP's office will work with my insurance to try to obtain an approval. Here is the link for the NIH program: [url]http://rarediseases.info.nih.gov/research/pages/27/undiagnosed-diseases-program[/url] I'm so excited. And how wonderful that the nurse read this and thought of me. You know, I really am so blessed to have the people in my life that I do. Truly. Please keep your fingers crossed, rattle beads, say a prayer, light a candle and/or do the naked chicken liver dance for this. I'm so excited and hopeful that I could just burst. [/QUOTE]
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