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The Watercooler
Rheumy appointment today
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<blockquote data-quote="witzend" data-source="post: 167371" data-attributes="member: 99"><p>I'm so sorry, Heather. I've seen a lot of physiatrists and neurologists and other "ists" in my time. For me, we did find out that what I have is untreatable, and there are some things that can help relieve the pain. It's especially hard for you because you are single, and can't realistically nag a husband to help you.</p><p></p><p>Is there <em>any</em> way that you could get your mom to help out with housework, either by helping herself or having someone come in once a week or two to do the heavy stuff? The sweeping and vacuuming and mopping is killer, and it would be very helpful to you if someone would do that for you.</p><p></p><p>I would also consider going back to your good old GP. That's where I have gotten the most help for me. He's the one that talks to Social Security, prescribes me pain medications, makes sure I am doing gentle stretching exercises that help keep me less tight. He might also be able to help you get referrals for help with ADLs for yourself. </p><p></p><p>I know you want to know what it is so that it can be treated. But not every disease <em>can</em> be treated. Maybe you can only treat the symptoms, even if you know what it is. That is how my muscular dystrophy is. "No treatment, no cure." Once I started looking past the idea that I was ever going to get better, it was less difficult to find things that made my life better.</p><p></p><p>Do you have grab bars in your bath and near the toilet? It would be easier for you to soak in the tub if you could easily pull yourself out of it. Any little thing that lightens your load makes life a little easier for the next thing that you have to do.</p><p></p><p>{{{{{{{{{{{{Big hugs}}}}}}}}}}}</p></blockquote><p></p>
[QUOTE="witzend, post: 167371, member: 99"] I'm so sorry, Heather. I've seen a lot of physiatrists and neurologists and other "ists" in my time. For me, we did find out that what I have is untreatable, and there are some things that can help relieve the pain. It's especially hard for you because you are single, and can't realistically nag a husband to help you. Is there [i]any[/i] way that you could get your mom to help out with housework, either by helping herself or having someone come in once a week or two to do the heavy stuff? The sweeping and vacuuming and mopping is killer, and it would be very helpful to you if someone would do that for you. I would also consider going back to your good old GP. That's where I have gotten the most help for me. He's the one that talks to Social Security, prescribes me pain medications, makes sure I am doing gentle stretching exercises that help keep me less tight. He might also be able to help you get referrals for help with ADLs for yourself. I know you want to know what it is so that it can be treated. But not every disease [i]can[/i] be treated. Maybe you can only treat the symptoms, even if you know what it is. That is how my muscular dystrophy is. "No treatment, no cure." Once I started looking past the idea that I was ever going to get better, it was less difficult to find things that made my life better. Do you have grab bars in your bath and near the toilet? It would be easier for you to soak in the tub if you could easily pull yourself out of it. Any little thing that lightens your load makes life a little easier for the next thing that you have to do. {{{{{{{{{{{{Big hugs}}}}}}}}}}} [/QUOTE]
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