Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Internet Search
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
What's new
Search
Search
Search titles only
By:
New posts
Search forums
Menu
Log in
Register
Install the app
Install
Forums
General Discussions
The Watercooler
Rheumy Update
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Reply to thread
Message
<blockquote data-quote="flutterbee" data-source="post: 159686"><p>He's funny, this rheumy. He really does think out loud and I can so relate to that...I mutter a lot, too. Made me giggle.</p><p></p><p>He kept asking, 'Why did you have a retroperitoneal hemorrhage?' I bet he asked that out loud close to a dozen times. Then saw that I had a second bleed after the second heart cath. Then told him how the neurologist commented on how much I was bleeding with the EMG. He was going to run some kind of anti-coagulant bloodwork but saw that the neuro already did. (He really likes my neuro, by the way, so even though my medical records from the neuro had errors it makes me feel better. He said they figure things out over there.) </p><p></p><p>Now, I know from my research that the bleeding issue can be part of lupus or other connective tissue diseases (the bleeding thing has a name that I can't spell off the top of my head) and isn't always detected with bloodwork. I have had times where I would scratch my arm normally and get the purpura or petechia (sp?) which is the little red dots which is bleeding under the skin. I'm going to talk to him about this more at the next appointment. I've always thought that it meant something, but again everyone has ignored it. The fact that he was thinking along the same lines makes me want to talk about it some more.</p><p></p><p>And you know, I had the heart attack and everyone else has been yeah and you're young, but then let it go. No one seemed to 'get' how sick I really was. I told this guy that I was barely functioning before I had angioplasty. He looked at my discharge papers from the hospital and saw which arteries were stented and how blocked they were and said that he can tell from that that I wasn't getting around much before they opened them up. Then went on to tell me the story of his doberman and how sick she was with her heart disease. LOL But, he wasn't downplaying it. He acknowledged that it was very severe disease and that I shouldn't have it at my age and that's why he thinks there has to be some kind of common thread.</p><p></p><p>It really makes you wonder how some of these things are so easily overlooked. To me it's like a neon sign, you know? It's been so incredibly frustrating. </p><p></p><p>Now, I always thought that bursitis and tendonitis were overuse injuries and I can tell you that that is not the case here. So, you know me....I'll be doing some more research. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite8" alt=":D" title="Big Grin :D" loading="lazy" data-shortname=":D" /></p></blockquote><p></p>
[QUOTE="flutterbee, post: 159686"] He's funny, this rheumy. He really does think out loud and I can so relate to that...I mutter a lot, too. Made me giggle. He kept asking, 'Why did you have a retroperitoneal hemorrhage?' I bet he asked that out loud close to a dozen times. Then saw that I had a second bleed after the second heart cath. Then told him how the neurologist commented on how much I was bleeding with the EMG. He was going to run some kind of anti-coagulant bloodwork but saw that the neuro already did. (He really likes my neuro, by the way, so even though my medical records from the neuro had errors it makes me feel better. He said they figure things out over there.) Now, I know from my research that the bleeding issue can be part of lupus or other connective tissue diseases (the bleeding thing has a name that I can't spell off the top of my head) and isn't always detected with bloodwork. I have had times where I would scratch my arm normally and get the purpura or petechia (sp?) which is the little red dots which is bleeding under the skin. I'm going to talk to him about this more at the next appointment. I've always thought that it meant something, but again everyone has ignored it. The fact that he was thinking along the same lines makes me want to talk about it some more. And you know, I had the heart attack and everyone else has been yeah and you're young, but then let it go. No one seemed to 'get' how sick I really was. I told this guy that I was barely functioning before I had angioplasty. He looked at my discharge papers from the hospital and saw which arteries were stented and how blocked they were and said that he can tell from that that I wasn't getting around much before they opened them up. Then went on to tell me the story of his doberman and how sick she was with her heart disease. LOL But, he wasn't downplaying it. He acknowledged that it was very severe disease and that I shouldn't have it at my age and that's why he thinks there has to be some kind of common thread. It really makes you wonder how some of these things are so easily overlooked. To me it's like a neon sign, you know? It's been so incredibly frustrating. Now, I always thought that bursitis and tendonitis were overuse injuries and I can tell you that that is not the case here. So, you know me....I'll be doing some more research. :D [/QUOTE]
Insert quotes…
Verification
Post reply
Forums
General Discussions
The Watercooler
Rheumy Update
Top