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<blockquote data-quote="totoro" data-source="post: 298292" data-attributes="member: 3155"><p><span style="font-size: 15px">I don't even want to post this. I am just so flustered. </span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">I don't think husband and I have ever sat up at night and talked so much than in the last couple of months.</span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">K started Lithium almost 3 months ago.</span></p><p><span style="font-size: 15px">Her levels are good. She is at 600mg. There are new studies showing great results with lower blood levels. She wasn't doing that great so we upped it. </span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">Still nothing. </span></p><p><span style="font-size: 15px">She is actually doing the same if not worse. </span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">I am not really into upping it if I am not seeing any improvement. If I had seen some improvement then sure, let's inch it up a bit.</span></p><p><span style="font-size: 15px">I am not adding thing on top of it either if I am not seeing anything with it. </span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">Basically this kid has never been stable. She has cycled into calm. Her AP has curbed the Psychotic Tendencies and the Hallucinations somewhat.</span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">But even with the AP, we don't know how much it is helping now.</span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">We had the emergency trip home from Chicago, where she went manic and tried to hurt herself and lost touch with reality. </span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">She is cycling very fast.</span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">Just this weekend-</span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">"I'm tired of being the only 8yo who never knows what to do everyday" crying and shaking in my arms</span></p><p><span style="font-size: 15px">Repeating over and over in her bed- "I don't know, I don't know" hitting herself in the head, pounding her head into the pillow. </span></p><p><span style="font-size: 15px">Locking herself in her room.</span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">Confused</span></p><p><span style="font-size: 15px">Pacing</span></p><p><span style="font-size: 15px">"Feels her white medicine is messing her up" (Lithium)</span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">Up racing on Sunday about saving and animal on WWF (world wildlife fed) started night before. Hasn't stopped yet, looks like we will have to do this.</span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">Had to drag her out of car Sunday after taking her to the Desert Museum which is something she loves, she did pretty well there. Then fell apart once home, because she started thinking about the next thing to do, and couldn't stop.</span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">Locked herself in her room again, eventually passed out. </span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">Tried to do some of her Kumon work, this is a new experiment through her therapist, she was shaking and staring into space. Stabbing the paper. We stopped early.</span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">Couldn't do her Oro-Motor Therapy.</span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">Then she ran around the room for the rest of the night, from 4 until bath, 7. Then we got her into bed around 7:30 to read. </span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">Depressed this morning.... </span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">This is how things have been for SO long. </span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">This is with 2 people at home taking care of here full time. We work on her independence, her control... all of it.</span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">I don't know where to go or what to do with her medications. </span></p><p><span style="font-size: 15px">This is going to come up at the next meeting with psychiatrist in the beginning of SEPT. </span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">We talk with therapist who is a Doctor, about this. </span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">I am so sad and lost right now... </span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">K hates this and has hated it for so long. </span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">Residential Treatment Center (RTC) is not an option. psychiatrist thinks because husband and I are both home that we can help her better than a hospital could at her age. </span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">Anyone have any suggestions. </span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">I don't even know where to go medication wise. I am willing to revisit medications. psychiatrist is willing to do what we want, but I am just tired of having to help make these decisions, even though i want to have the input. Know what I mean?. </span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">husband and I are seriously thinking about pulling her off of all medications and starting over. </span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">After giving Lithium a bit longer, if it shows no better results. </span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">How worse can she get? We have seen it all at this point.<img src="/community/styles/default/xenforo/smilies/felttip/whiteflag.png" class="smilie" loading="lazy" alt=":whiteflag:" title="whiteflag :whiteflag:" data-shortname=":whiteflag:" /></span></p><p><span style="font-size: 15px"></span></p><p><span style="font-size: 15px">I know I am so long winded... thanks if you made it through this.</span></p></blockquote><p></p>
[QUOTE="totoro, post: 298292, member: 3155"] [SIZE="4"]I don't even want to post this. I am just so flustered. I don't think husband and I have ever sat up at night and talked so much than in the last couple of months. K started Lithium almost 3 months ago. Her levels are good. She is at 600mg. There are new studies showing great results with lower blood levels. She wasn't doing that great so we upped it. Still nothing. She is actually doing the same if not worse. I am not really into upping it if I am not seeing any improvement. If I had seen some improvement then sure, let's inch it up a bit. I am not adding thing on top of it either if I am not seeing anything with it. Basically this kid has never been stable. She has cycled into calm. Her AP has curbed the Psychotic Tendencies and the Hallucinations somewhat. But even with the AP, we don't know how much it is helping now. We had the emergency trip home from Chicago, where she went manic and tried to hurt herself and lost touch with reality. She is cycling very fast. Just this weekend- "I'm tired of being the only 8yo who never knows what to do everyday" crying and shaking in my arms Repeating over and over in her bed- "I don't know, I don't know" hitting herself in the head, pounding her head into the pillow. Locking herself in her room. Confused Pacing "Feels her white medicine is messing her up" (Lithium) Up racing on Sunday about saving and animal on WWF (world wildlife fed) started night before. Hasn't stopped yet, looks like we will have to do this. Had to drag her out of car Sunday after taking her to the Desert Museum which is something she loves, she did pretty well there. Then fell apart once home, because she started thinking about the next thing to do, and couldn't stop. Locked herself in her room again, eventually passed out. Tried to do some of her Kumon work, this is a new experiment through her therapist, she was shaking and staring into space. Stabbing the paper. We stopped early. Couldn't do her Oro-Motor Therapy. Then she ran around the room for the rest of the night, from 4 until bath, 7. Then we got her into bed around 7:30 to read. Depressed this morning.... This is how things have been for SO long. This is with 2 people at home taking care of here full time. We work on her independence, her control... all of it. I don't know where to go or what to do with her medications. This is going to come up at the next meeting with psychiatrist in the beginning of SEPT. We talk with therapist who is a Doctor, about this. I am so sad and lost right now... K hates this and has hated it for so long. Residential Treatment Center (RTC) is not an option. psychiatrist thinks because husband and I are both home that we can help her better than a hospital could at her age. Anyone have any suggestions. I don't even know where to go medication wise. I am willing to revisit medications. psychiatrist is willing to do what we want, but I am just tired of having to help make these decisions, even though i want to have the input. Know what I mean?. husband and I are seriously thinking about pulling her off of all medications and starting over. After giving Lithium a bit longer, if it shows no better results. How worse can she get? We have seen it all at this point.:whiteflag: I know I am so long winded... thanks if you made it through this.[/SIZE] [/QUOTE]
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