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Sad, bummed, help...
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<blockquote data-quote="totoro" data-source="post: 298653" data-attributes="member: 3155"><p>OK so I have had a night to think and stress and go over the facts and what I know in my heart she needs.</p><p></p><p>You all know in your hearts how these things feel as Mom's.</p><p></p><p>"Why can't they just be off of medications?" </p><p>"Why does she have to suffer so much?' </p><p></p><p>I question almost every day the medications "I" have chosen to put my daughter on. </p><p>I know this is wrong, but we all do this at times when we look at how they are not working and then we have to change them... over and over and over. </p><p></p><p>So I was having a mental breakdown inside. I would love for my child to be off of medications.</p><p></p><p>I have asked about Lamictal, I am going to ask about it as an add on maybe when she reaches a therapeutic level with the Lithium. </p><p>I will be patient and give the Lithium more time. I know this is right I know all about the levels. I have all of the books, I have read them and re-read them. </p><p>I just need to hear it from you who have been in the trenches. </p><p></p><p>I know about the medications, I am on them and have been. </p><p>I know about being a kid who is miserable. So I can be honest with myself and say it is not fair to ask her to feel like I did most of my life. </p><p>I didn't have hallucinations, but I needed help like her. </p><p></p><p>I know the answers. Now I have more questions for therapist and psychiatrist because of you. </p><p></p><p>I will go to the therapist this Thursday, she is also our advocate, and pass all of our concerns and questions. </p><p>I will see if we need to stop certain therapies, I agree, K is struggling.</p><p></p><p>I have video of K struggling. The only one that I feel is very important is her Oro-motor and her horse therapy. She loves these and I can be very flexible with these. </p><p>The Oro-motor I do at home also. So when she does not want to do Oro-motor we don't.</p><p></p><p>I will then take my notes and vidoe if needed, go to psychiatrist in the beginning of SEPT and be point blank, ask about the generic, ask about the levels. Ask about our goals. </p><p>Make it clear how bad she is doing.</p><p></p><p>I think and so does husband, that one of the problems is, when husband and I go to the Apt's with psychiatrist- we always seem happy and so together that she has a hard time understanding that we are really having a hard time and how really hard it is and how bad K is doing.</p><p></p><p>K also holds it together in her office. Although she does talk about the fairies. </p><p></p><p>So I will hold off on any other changes for K right now. She has enough. She just wants some friends... </p><p></p><p>We still have her IEP coming up and she has some evaluations at School. </p><p></p><p>This is all enough. </p><p></p><p></p><p>Thank you all so much.</p><p></p><p>Let me know if I have forgotten anything.</p><p>You ladies are good at clearing my head.</p></blockquote><p></p>
[QUOTE="totoro, post: 298653, member: 3155"] OK so I have had a night to think and stress and go over the facts and what I know in my heart she needs. You all know in your hearts how these things feel as Mom's. "Why can't they just be off of medications?" "Why does she have to suffer so much?' I question almost every day the medications "I" have chosen to put my daughter on. I know this is wrong, but we all do this at times when we look at how they are not working and then we have to change them... over and over and over. So I was having a mental breakdown inside. I would love for my child to be off of medications. I have asked about Lamictal, I am going to ask about it as an add on maybe when she reaches a therapeutic level with the Lithium. I will be patient and give the Lithium more time. I know this is right I know all about the levels. I have all of the books, I have read them and re-read them. I just need to hear it from you who have been in the trenches. I know about the medications, I am on them and have been. I know about being a kid who is miserable. So I can be honest with myself and say it is not fair to ask her to feel like I did most of my life. I didn't have hallucinations, but I needed help like her. I know the answers. Now I have more questions for therapist and psychiatrist because of you. I will go to the therapist this Thursday, she is also our advocate, and pass all of our concerns and questions. I will see if we need to stop certain therapies, I agree, K is struggling. I have video of K struggling. The only one that I feel is very important is her Oro-motor and her horse therapy. She loves these and I can be very flexible with these. The Oro-motor I do at home also. So when she does not want to do Oro-motor we don't. I will then take my notes and vidoe if needed, go to psychiatrist in the beginning of SEPT and be point blank, ask about the generic, ask about the levels. Ask about our goals. Make it clear how bad she is doing. I think and so does husband, that one of the problems is, when husband and I go to the Apt's with psychiatrist- we always seem happy and so together that she has a hard time understanding that we are really having a hard time and how really hard it is and how bad K is doing. K also holds it together in her office. Although she does talk about the fairies. So I will hold off on any other changes for K right now. She has enough. She just wants some friends... We still have her IEP coming up and she has some evaluations at School. This is all enough. Thank you all so much. Let me know if I have forgotten anything. You ladies are good at clearing my head. [/QUOTE]
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