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General Parenting
Shaking my fist to the heavens tonight
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<blockquote data-quote="slsh" data-source="post: 299832" data-attributes="member: 8"><p>TM - it never occurred to me that motherhood would involve so much fear. Sometimes almost paralyzing fear. You have your basic stuff (stranger danger, crossing streets, etc.) but then when you have children with special needs, it just multiplies exponentially. I'm envious of parents who have the luxury of not being aware of the dangers (and then I wonder if I'm just nuts for being so hyperaware). </p><p> </p><p>I'm never more than 10 feet away from Boo, a phone, an oxygen tank, and Diastat. I can tell you exactly where I am on a freeway at any moment, in case I have to pull over and call 911. In every single setting, I have a plan for where I'll move him if he starts to seize. It's unconscious on my part now, second nature. I cannot control his epilepsy, but I absolutely can control my preparedness - it's the best I can do. </p><p> </p><p>I think a little fist shaking is more than appropriate. It's not fair. Enough is more than enough already. </p><p> </p><p>You know that, after the initial shock of terror over what you cannot control, you will make the accommodations you have to make, educate yourself and Duckie and those around her, and get on with it. It's not easy at first, and sometimes I thought the fear would completely overwhelm me, but it doesn't. We somehow learn to not only manage the issues but we also learn how to do it so that they have the least possible impact on our kids' (and our) lives.</p><p> </p><p>I'm shaking my fist on your and Duckie's behalf as well. A gentle hug to you.</p></blockquote><p></p>
[QUOTE="slsh, post: 299832, member: 8"] TM - it never occurred to me that motherhood would involve so much fear. Sometimes almost paralyzing fear. You have your basic stuff (stranger danger, crossing streets, etc.) but then when you have children with special needs, it just multiplies exponentially. I'm envious of parents who have the luxury of not being aware of the dangers (and then I wonder if I'm just nuts for being so hyperaware). I'm never more than 10 feet away from Boo, a phone, an oxygen tank, and Diastat. I can tell you exactly where I am on a freeway at any moment, in case I have to pull over and call 911. In every single setting, I have a plan for where I'll move him if he starts to seize. It's unconscious on my part now, second nature. I cannot control his epilepsy, but I absolutely can control my preparedness - it's the best I can do. I think a little fist shaking is more than appropriate. It's not fair. Enough is more than enough already. You know that, after the initial shock of terror over what you cannot control, you will make the accommodations you have to make, educate yourself and Duckie and those around her, and get on with it. It's not easy at first, and sometimes I thought the fear would completely overwhelm me, but it doesn't. We somehow learn to not only manage the issues but we also learn how to do it so that they have the least possible impact on our kids' (and our) lives. I'm shaking my fist on your and Duckie's behalf as well. A gentle hug to you. [/QUOTE]
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Shaking my fist to the heavens tonight
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