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Should I fight for Pervasive Developmental Disorder (PDD) diagnosis??
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<blockquote data-quote="susiestar" data-source="post: 498803" data-attributes="member: 1233"><p>This teacch program can probably help you get the right evaluations. I would NOT wait and would push HARD to get the label. with-o the label, doors are closed. Period. That label is the key. Most diagnosis's change as the kid grows and shows new problems. That is NORMAL because the new symptoms are new info and were not used to make the prior diagnosis. I would ask the teacch program for names of developmental pediatricians and neuropsychs (not all neurospsychs here will see a 4yo, but dev peds have extra training in psychiatry and in developmental disorders including autism so they are often very helpful unless they are stuck in some old definition of autism). If you don't have a private Occupational Therapist (OT) evaluation, push for that too. sensory issues can be helped easier when they are younger, as they get older it becomes more of a challenge, or so we were told. I think EVERY child would benefit from sensory therapy, but kids with autism disorders seem to have some of the worst sensory issues from what the neuropsychs and dev peds have told us.</p><p></p><p>As for the IEP, go Occupational Therapist (OT) the sp ed archives and find the form for the letter to ask for evaluation. Follow the directions for mailing. IT MUST be sent certified mail return receipt requested and NOT done as a verbal request, as a letter you handed them, etc... because you NEED that receipt to put the timeline into place. It is a FEDERAL timeline and is CALENDAR days not school days (common school district trick - they didn't lke it when I laughed at them for that one but it was stupidly funny - I had researched every different thing Wiz struggled with, did they honestly think I hadn't researched this process too? Seriously???) and the state may shorten the timeline but they cannot make it longer.</p><p></p><p>By waiting and seeing, you are losing precious time as his brain develops. THAT is what "wait and see" accomplishes, well and it saves the district $$ because they are not providing services that week. But it also costs $$ because the problems are getting more entrenched and it will take more therapy to change it in the future. Plus if his needs are not met, the risk that he will be involved in the justice system go up and that costs the state even more $$. We don't want to think about that, but that IS a possibility for people who don't get the help they need and cannot function in society. It is an EXPENSIVE option but schools are fine with it because their budget doesn't depend on the state Department of Juvenile Justice budget except for when they have to provide school for kids in custody. <strong>I AM NOT SAYING THAT V WILL END UP IN JAIL IN ANY WAY.</strong> It is just where SOME kids end up if they don't get help when they are kids. It is a fact that makes me want to shake people who work to not provide help or use the IEP accommodations set up for a student.</p></blockquote><p></p>
[QUOTE="susiestar, post: 498803, member: 1233"] This teacch program can probably help you get the right evaluations. I would NOT wait and would push HARD to get the label. with-o the label, doors are closed. Period. That label is the key. Most diagnosis's change as the kid grows and shows new problems. That is NORMAL because the new symptoms are new info and were not used to make the prior diagnosis. I would ask the teacch program for names of developmental pediatricians and neuropsychs (not all neurospsychs here will see a 4yo, but dev peds have extra training in psychiatry and in developmental disorders including autism so they are often very helpful unless they are stuck in some old definition of autism). If you don't have a private Occupational Therapist (OT) evaluation, push for that too. sensory issues can be helped easier when they are younger, as they get older it becomes more of a challenge, or so we were told. I think EVERY child would benefit from sensory therapy, but kids with autism disorders seem to have some of the worst sensory issues from what the neuropsychs and dev peds have told us. As for the IEP, go Occupational Therapist (OT) the sp ed archives and find the form for the letter to ask for evaluation. Follow the directions for mailing. IT MUST be sent certified mail return receipt requested and NOT done as a verbal request, as a letter you handed them, etc... because you NEED that receipt to put the timeline into place. It is a FEDERAL timeline and is CALENDAR days not school days (common school district trick - they didn't lke it when I laughed at them for that one but it was stupidly funny - I had researched every different thing Wiz struggled with, did they honestly think I hadn't researched this process too? Seriously???) and the state may shorten the timeline but they cannot make it longer. By waiting and seeing, you are losing precious time as his brain develops. THAT is what "wait and see" accomplishes, well and it saves the district $$ because they are not providing services that week. But it also costs $$ because the problems are getting more entrenched and it will take more therapy to change it in the future. Plus if his needs are not met, the risk that he will be involved in the justice system go up and that costs the state even more $$. We don't want to think about that, but that IS a possibility for people who don't get the help they need and cannot function in society. It is an EXPENSIVE option but schools are fine with it because their budget doesn't depend on the state Department of Juvenile Justice budget except for when they have to provide school for kids in custody. [B]I AM NOT SAYING THAT V WILL END UP IN JAIL IN ANY WAY.[/B] It is just where SOME kids end up if they don't get help when they are kids. It is a fact that makes me want to shake people who work to not provide help or use the IEP accommodations set up for a student. [/QUOTE]
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Should I fight for Pervasive Developmental Disorder (PDD) diagnosis??
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