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The Watercooler
Should I impose more limits?
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<blockquote data-quote="susiestar" data-source="post: 365285" data-attributes="member: 1233"><p>If I could get husband to be awake I would happily tell her that she needs to go to him one or two nights every couple of weeks. He simply cannot wake up and function in the night. He really tries, but his body does not work that way any more. He is great about letting me sleep whenever I can though. </p><p></p><p>One of the big problems is that after an outing she shakes so hard she cannot drink unless someone else holds the cup, cannot get food to her mouth reliably unless it is hard like a carrot or cookie and sometimes her throat spasms and her jaws spasm and it isn't safe to eat anything that hard. She cannot physically pick up medications and get them to her mouth even. Her legs will spasm so bad that sometimes they just go out on her while she is walking. No notice, no warning, just BAM and she is on the floor. Of course she is shaking so hard that she cannot catch herself with her arms.</p><p></p><p>The severity of the shaking is the reason I am considering limits. It becomes unsafe for her to eat, for crying out loud. Not to eat everything, but what you really WANT is what you cannot have at times like this. She also ends up with severe migraines and vomiting. NOTHING is harder on a migraine than being unable to be perfectly still. I am very much afraid all this will drive her nuts. She is so strong it is amazing, but how much can a person take?</p></blockquote><p></p>
[QUOTE="susiestar, post: 365285, member: 1233"] If I could get husband to be awake I would happily tell her that she needs to go to him one or two nights every couple of weeks. He simply cannot wake up and function in the night. He really tries, but his body does not work that way any more. He is great about letting me sleep whenever I can though. One of the big problems is that after an outing she shakes so hard she cannot drink unless someone else holds the cup, cannot get food to her mouth reliably unless it is hard like a carrot or cookie and sometimes her throat spasms and her jaws spasm and it isn't safe to eat anything that hard. She cannot physically pick up medications and get them to her mouth even. Her legs will spasm so bad that sometimes they just go out on her while she is walking. No notice, no warning, just BAM and she is on the floor. Of course she is shaking so hard that she cannot catch herself with her arms. The severity of the shaking is the reason I am considering limits. It becomes unsafe for her to eat, for crying out loud. Not to eat everything, but what you really WANT is what you cannot have at times like this. She also ends up with severe migraines and vomiting. NOTHING is harder on a migraine than being unable to be perfectly still. I am very much afraid all this will drive her nuts. She is so strong it is amazing, but how much can a person take? [/QUOTE]
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