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<blockquote data-quote="Marguerite" data-source="post: 353674" data-attributes="member: 1991"><p>Latest news of J - W rang this afternoon, J is going home from hospital on Saturday! Not to rehab, not "in a few weeks' time if you can continue to improve..." but straight home. The doctor said that she is doing so well and home is such a good place for her emotionally, she will continue to do better where she wants to be.</p><p></p><p>She's been off oxygen totally for the last couple of days, and today they tried her without a walking frame, on doctor's orders. The physiotherapist wasn't too sure but turned up with a walking stick anyway. Between the walking stick and the physiotherapist's arm, J managed to walk up and down the corridor and the physio was impressed.</p><p></p><p>The occupational therapist is visiting her home tomorrow with J's husband, so they can talk about what changes need to be made (if any). </p><p></p><p>I asked W about J's last X-ray. She said, "It's clear. The lungs are fine. Still a small area of air around the biopsy site but there has been no change in that, so the lung has healed from the biopsy."</p><p></p><p>From what we can understand - this is a terminal condition. She was admitted to hospital at the end stage of tis terminal condition, with lungs full of scar tissue. The prognosis was grim indeed. She was even considered too weak for a biopsy, let alone a transplant. They poured prednisone into her in massive doses, such a vast amount that they have had to give her insulin and monitor her blood sugar levels because such doses usually mean instant diabetes. But hey, when you're dying, anything is worth a chance.</p><p></p><p>From my reading, prednisone often doesn't work. In those cases where it does work, it buys time at best. In a couple of extremely rare cases, they began to recover. These cases were so rare, they were written up in the journals. </p><p></p><p>And now we seem to have another one. Not only has the prednisone stopped J's deterioration, it has turned around whatever the scarring process was, and healed the scars. </p><p></p><p>Now she has to regain strength, regain muscle mass, get strong and well again. She's showering herself, still needing a little help to get out of a chair though. She will need someone with her for a while yet.</p><p></p><p>I told W I'd be posting and letting you all know. I also told her of others I've told, at our church and my choir. I've told J the same thing - I'm keeping you all in the loop, there are people barracking for her around the world. W said to tell you all, "It is the prayers of you all that have given J the strength she has needed to fight back from this."</p><p></p><p>Apparently the doctor said he is very glad to have been proved wrong.</p><p></p><p>It was only about three weeks ago that J was told that she was terminally ill; three weeks ago J said, "I had the chance to let go and I chose to come back. Now I wonder why I fought, if I'm going to die anyway."</p><p></p><p>Only now she will live, and her determination and your prayers are all responsible.</p><p></p><p>Thank you everyone. Although it doesn't seem enough to simply say, "Thank you."</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 353674, member: 1991"] Latest news of J - W rang this afternoon, J is going home from hospital on Saturday! Not to rehab, not "in a few weeks' time if you can continue to improve..." but straight home. The doctor said that she is doing so well and home is such a good place for her emotionally, she will continue to do better where she wants to be. She's been off oxygen totally for the last couple of days, and today they tried her without a walking frame, on doctor's orders. The physiotherapist wasn't too sure but turned up with a walking stick anyway. Between the walking stick and the physiotherapist's arm, J managed to walk up and down the corridor and the physio was impressed. The occupational therapist is visiting her home tomorrow with J's husband, so they can talk about what changes need to be made (if any). I asked W about J's last X-ray. She said, "It's clear. The lungs are fine. Still a small area of air around the biopsy site but there has been no change in that, so the lung has healed from the biopsy." From what we can understand - this is a terminal condition. She was admitted to hospital at the end stage of tis terminal condition, with lungs full of scar tissue. The prognosis was grim indeed. She was even considered too weak for a biopsy, let alone a transplant. They poured prednisone into her in massive doses, such a vast amount that they have had to give her insulin and monitor her blood sugar levels because such doses usually mean instant diabetes. But hey, when you're dying, anything is worth a chance. From my reading, prednisone often doesn't work. In those cases where it does work, it buys time at best. In a couple of extremely rare cases, they began to recover. These cases were so rare, they were written up in the journals. And now we seem to have another one. Not only has the prednisone stopped J's deterioration, it has turned around whatever the scarring process was, and healed the scars. Now she has to regain strength, regain muscle mass, get strong and well again. She's showering herself, still needing a little help to get out of a chair though. She will need someone with her for a while yet. I told W I'd be posting and letting you all know. I also told her of others I've told, at our church and my choir. I've told J the same thing - I'm keeping you all in the loop, there are people barracking for her around the world. W said to tell you all, "It is the prayers of you all that have given J the strength she has needed to fight back from this." Apparently the doctor said he is very glad to have been proved wrong. It was only about three weeks ago that J was told that she was terminally ill; three weeks ago J said, "I had the chance to let go and I chose to come back. Now I wonder why I fought, if I'm going to die anyway." Only now she will live, and her determination and your prayers are all responsible. Thank you everyone. Although it doesn't seem enough to simply say, "Thank you." Marg [/QUOTE]
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