Susie, I was told by someone I know through the CABF website that not all neurologists are trained in movement disorders and that to get to neuros who really understand movement disorders, you should contact your local chapter of the Tourette Association of America (www.tsa-usa.org). Neurologists who work with the Tourette population can differentiate between tics, dystonia and other movement disorders.
Hugs. I hope you get some answers soon.
