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<blockquote data-quote="susiestar" data-source="post: 309297" data-attributes="member: 1233"><p>T-Paul, not sure that it is what you are describing. But she does have other health problems.</p><p></p><p>To be totally honest I think she may have fibromyalgia and/or some rheumatoid problems, especially given the family history. She just has some of the beginning signs but the docs all just want to ignore it and hope it goes away.</p><p></p><p>Each time we go in with a problem they want to treat it like a brand new problem, not as part of a larger whole. I think this may wind up stopping that. </p><p></p><p>I had to push to get the 7 panels of testing done that the neuro did, but I will push for more testing when we see him next. </p><p></p><p>I just do not know what to think. I DO think that they are minimizing it the way they did any problem a woman had in the past. That "female hysteria" thing, Know what I mean??</p><p></p><p>I probably wouldn't be as upset and frantic if I had a husband who was helpful. He worries, but he doesn't know half the problem cause he refuses to talk about it or listen to her when she describes it. He also will not wake up at night to help her for any reason. During the day he comes to me and gripes about her - how she is doing this, or isn't doing that, but other than some sniping at her under his breath he won't talk about this with her. Partly he is scared he will hurt her and mostly he just isn't a strong enough person to cope. That is all I can conclude given his behavior. </p><p></p><p>Thanks for asking about medications to help the symptoms. Soma is a muscle relaxer. Docs don't want to rx muscle relaxers, but she has already been through the milder ones with no help from them. She says M&M's are more effective than skelaxin or flexeril, LOL.</p><p></p><p>Every suggestion helps. I really like the idea of running every single test possible. Esp now while we still have insurance that will pay 100% of all labwork. I will have to push that one.</p><p></p><p>We are going to start her on a calcium and magnesium supplement, even though her levels of these were "normal" according to the doctor. We had not been giving her calcium supplements because the doctor said it wasn't needed given her diet. Right now I am adding it because it may help. I doubt it will fix anything, but it cannot hurt.</p><p></p><p>You are all so wonderful. Jessie and I each feel much less alone with all of you looking out for us!</p></blockquote><p></p>
[QUOTE="susiestar, post: 309297, member: 1233"] T-Paul, not sure that it is what you are describing. But she does have other health problems. To be totally honest I think she may have fibromyalgia and/or some rheumatoid problems, especially given the family history. She just has some of the beginning signs but the docs all just want to ignore it and hope it goes away. Each time we go in with a problem they want to treat it like a brand new problem, not as part of a larger whole. I think this may wind up stopping that. I had to push to get the 7 panels of testing done that the neuro did, but I will push for more testing when we see him next. I just do not know what to think. I DO think that they are minimizing it the way they did any problem a woman had in the past. That "female hysteria" thing, Know what I mean?? I probably wouldn't be as upset and frantic if I had a husband who was helpful. He worries, but he doesn't know half the problem cause he refuses to talk about it or listen to her when she describes it. He also will not wake up at night to help her for any reason. During the day he comes to me and gripes about her - how she is doing this, or isn't doing that, but other than some sniping at her under his breath he won't talk about this with her. Partly he is scared he will hurt her and mostly he just isn't a strong enough person to cope. That is all I can conclude given his behavior. Thanks for asking about medications to help the symptoms. Soma is a muscle relaxer. Docs don't want to rx muscle relaxers, but she has already been through the milder ones with no help from them. She says M&M's are more effective than skelaxin or flexeril, LOL. Every suggestion helps. I really like the idea of running every single test possible. Esp now while we still have insurance that will pay 100% of all labwork. I will have to push that one. We are going to start her on a calcium and magnesium supplement, even though her levels of these were "normal" according to the doctor. We had not been giving her calcium supplements because the doctor said it wasn't needed given her diet. Right now I am adding it because it may help. I doubt it will fix anything, but it cannot hurt. You are all so wonderful. Jessie and I each feel much less alone with all of you looking out for us! [/QUOTE]
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