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So Tell Me About The Uncommon medications
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<blockquote data-quote="Janna" data-source="post: 111804" data-attributes="member: 2737"><p>Ok, let me see if I can get to everyone lol ~</p><p></p><p>DDD, no, no allergy testing yet. He was on Flonase for a good while, because all the pills (Claritin, Singulair, etc) stimulated him. The Flonase seemed to do okay, but the Residential Treatment Facility (RTF) pediatrician doesn't care for it because it's a steroid. We d/c'ed it, just for now, with the rest of the medication wash. It's a good thought, though. He did try Concerta, twice - this most recent time was 36 mg. Maybe it was too low, but the psychiatrist didn't seem to want to increase. Will have to add that to my list to question with him.</p><p></p><p>SW, the Seroquel, Dylan took around the age of 5. I have asked a couple of times to revisit this one, and it keeps getting swept under the carpet. I think that happens because of all the negatives from all the other AP's in the past. But, when he did take it, it made him very, very groggy. Almost comatose, to the point he wouldn't wake. I have several teen friends on my Bipolar Support page also that are on this, that complain of feeling like cr*p, he*l and everything in between, but they may be more severe than J is. But then, at 5 years old, I dunno if Dylan was given the ample time. It's on my list, still, to think about LOL. The Luvox, I'm giving it the chance. I just want other things to back up, in case it doesn't work. The plan is to keep Dylan at the 25 mg for 3 to 4 weeks then discuss with psychiatrist where to go. I think right now we're just making sure there's no side effects. No, he's not more hyper on the Luvox. He's naturally wired I guess lol.</p><p></p><p>Peaceful, thanks for all those medications LOL! I'll read up, haven't heard of many of them. I have thought about the fish oils. Don't know anything about them. Have to research.</p><p></p><p>Jannie, no, we won't retry the Abilify because of the previous side effects. Slurring, drooling, etc. I don't think they know what is going on with him. The current psychiatrist discounts the hyperactivity as mania and attributes it to the ADHD and Pervasive Developmental Disorder (PDD). But, the psychiatrist doesn't spend enough time with Dylan to make an accurate diagnosis. He may spend 10 or 15 minutes a month, if that, with my son. He takes reports in from staff, but the reports are not very thorough. When I speak to staff in the residence, they state he is very, very hyper. When I ask if they relate that to psychiatrist, they give me half a*s answers. I think they only write down super important incidents and everything else goes under the rug. I'm not very happy with the communication between everyone. Right now, I'm hearing the hyperactivity is because he's ADHD and Pervasive Developmental Disorder (PDD). I don't know if it's mania. There are so many different reports about what mania looks like in kids that I don't know if I really know what it looks like. Know what I mean??</p><p></p><p>Sara, he doesn't fall asleep easily anymore. He used to on the Abilify - but not lately. Residential Treatment Facility (RTF) staff reports he goes to sleep fine, however, when he's here, he doesn't. I actually gave him a 5 mg. Melatonin ( the 3 mg didn't do squat) and it put him out, but I don't want to have to drug him to sleep. He's also up very, very early, always first, before everyone else. And very loud. </p><p></p><p></p><p>Linda, I don't know what to revisit. So many of the medications had negatives, and those I'm not willing to retry. I understand the anxiety thing...Dylan could probably walk right beside wm. Dylan has the tendency to eat clothing when he's anxious. His sleeves and collar are always soaking wet. </p><p></p><p>I appreciate all the input. I will print out the thread. I don't know what direction to go in. Right now I'm going to give the Luvox a try and see how it works. There's another child in Dylan's residence, lower functioning, but also Pervasive Developmental Disorder (PDD), that is doing well on it. That's a good sign. </p><p></p><p>I would love this to be easy. I wish I could find one thing that would settle him down. The Lithium-Abilify combo was good for so long, but the sides were just too great to deal with. If it was one thing, i.e. weight gain, that would be one thing. But when you get weight gain, hypothyroidism, enuresis, drooling, slurring, etc....nope. Just won't do it.</p><p></p><p>*sigh*</p><p></p><p>Thanks guys (SW, good luck with J)</p></blockquote><p></p>
[QUOTE="Janna, post: 111804, member: 2737"] Ok, let me see if I can get to everyone lol ~ DDD, no, no allergy testing yet. He was on Flonase for a good while, because all the pills (Claritin, Singulair, etc) stimulated him. The Flonase seemed to do okay, but the Residential Treatment Facility (RTF) pediatrician doesn't care for it because it's a steroid. We d/c'ed it, just for now, with the rest of the medication wash. It's a good thought, though. He did try Concerta, twice - this most recent time was 36 mg. Maybe it was too low, but the psychiatrist didn't seem to want to increase. Will have to add that to my list to question with him. SW, the Seroquel, Dylan took around the age of 5. I have asked a couple of times to revisit this one, and it keeps getting swept under the carpet. I think that happens because of all the negatives from all the other AP's in the past. But, when he did take it, it made him very, very groggy. Almost comatose, to the point he wouldn't wake. I have several teen friends on my Bipolar Support page also that are on this, that complain of feeling like cr*p, he*l and everything in between, but they may be more severe than J is. But then, at 5 years old, I dunno if Dylan was given the ample time. It's on my list, still, to think about LOL. The Luvox, I'm giving it the chance. I just want other things to back up, in case it doesn't work. The plan is to keep Dylan at the 25 mg for 3 to 4 weeks then discuss with psychiatrist where to go. I think right now we're just making sure there's no side effects. No, he's not more hyper on the Luvox. He's naturally wired I guess lol. Peaceful, thanks for all those medications LOL! I'll read up, haven't heard of many of them. I have thought about the fish oils. Don't know anything about them. Have to research. Jannie, no, we won't retry the Abilify because of the previous side effects. Slurring, drooling, etc. I don't think they know what is going on with him. The current psychiatrist discounts the hyperactivity as mania and attributes it to the ADHD and Pervasive Developmental Disorder (PDD). But, the psychiatrist doesn't spend enough time with Dylan to make an accurate diagnosis. He may spend 10 or 15 minutes a month, if that, with my son. He takes reports in from staff, but the reports are not very thorough. When I speak to staff in the residence, they state he is very, very hyper. When I ask if they relate that to psychiatrist, they give me half a*s answers. I think they only write down super important incidents and everything else goes under the rug. I'm not very happy with the communication between everyone. Right now, I'm hearing the hyperactivity is because he's ADHD and Pervasive Developmental Disorder (PDD). I don't know if it's mania. There are so many different reports about what mania looks like in kids that I don't know if I really know what it looks like. Know what I mean?? Sara, he doesn't fall asleep easily anymore. He used to on the Abilify - but not lately. Residential Treatment Facility (RTF) staff reports he goes to sleep fine, however, when he's here, he doesn't. I actually gave him a 5 mg. Melatonin ( the 3 mg didn't do squat) and it put him out, but I don't want to have to drug him to sleep. He's also up very, very early, always first, before everyone else. And very loud. Linda, I don't know what to revisit. So many of the medications had negatives, and those I'm not willing to retry. I understand the anxiety thing...Dylan could probably walk right beside wm. Dylan has the tendency to eat clothing when he's anxious. His sleeves and collar are always soaking wet. I appreciate all the input. I will print out the thread. I don't know what direction to go in. Right now I'm going to give the Luvox a try and see how it works. There's another child in Dylan's residence, lower functioning, but also Pervasive Developmental Disorder (PDD), that is doing well on it. That's a good sign. I would love this to be easy. I wish I could find one thing that would settle him down. The Lithium-Abilify combo was good for so long, but the sides were just too great to deal with. If it was one thing, i.e. weight gain, that would be one thing. But when you get weight gain, hypothyroidism, enuresis, drooling, slurring, etc....nope. Just won't do it. *sigh* Thanks guys (SW, good luck with J) [/QUOTE]
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