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So this memory thing is really becoming an issue
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<blockquote data-quote="susiestar" data-source="post: 498376" data-attributes="member: 1233"><p>I am SO SORRY you are going through all of this. It must be very scary. </p><p></p><p>You now have medicare for disability don't you? THey should have a service that will take you to a dr appointment and bring you home for NO CHARGE. Most also have mileage reimbursement if you drive yourself but I don't think that would be your biggest priority. They may not tell you about these programs unless you ask though. We had this available for the kids for 3 years and didn't know about it.</p><p></p><p>You have to call X days in advance unless the appointment is made on short notice. They will come and get you and take you to the dr. You just call them when you make the appointment and tell them where to pick you up, where to take you, the appointment time and date. It might be a good idea to get into the habit of using this so that even if you are unfoggy that day you still get there.</p><p></p><p>This is info the dr NEEDS. Print out the post where you described it to me. In some ways it reminds me of what a relative went through with hardening of the arteries. But I was a teen then so it is just speculation on my part. </p><p></p><p>Do you have a nintendo ds or similar game system? They have shown that games like brain age, etc... can help your brain keep and even regain skills. They use them here with alzheimer's patients. Brain age specifically but some other games too.</p><p></p><p>Please keep us posted on this as you speak to the doctors. If I lived closer to you I would go with you to help you ask all your questions and to take notes for you. </p><p></p><p>Do you have a voice recorder or even an old cassette recorder? Take them to the dr appts and tell them it is because you have these memory questions. MOST people who need to see a specialist have memory problems when it comes to telling all the symptoms, history, medications etc.... An article on emotional intelligence (EQ as contrasted to IQ) said that people's EQ drops during these appts because they are stressful (just the thought of having a problem that needs a specialist is stressful) and most people forget a LOT of things that are asked/said in the appts so it is wise to take someone to note-take or to use a voice recorder. </p><p></p><p>I do see the difference between fibrofog and this other set of problems. Hopefully the description of the difference would help lead a dr in the right direction to help you with this.</p></blockquote><p></p>
[QUOTE="susiestar, post: 498376, member: 1233"] I am SO SORRY you are going through all of this. It must be very scary. You now have medicare for disability don't you? THey should have a service that will take you to a dr appointment and bring you home for NO CHARGE. Most also have mileage reimbursement if you drive yourself but I don't think that would be your biggest priority. They may not tell you about these programs unless you ask though. We had this available for the kids for 3 years and didn't know about it. You have to call X days in advance unless the appointment is made on short notice. They will come and get you and take you to the dr. You just call them when you make the appointment and tell them where to pick you up, where to take you, the appointment time and date. It might be a good idea to get into the habit of using this so that even if you are unfoggy that day you still get there. This is info the dr NEEDS. Print out the post where you described it to me. In some ways it reminds me of what a relative went through with hardening of the arteries. But I was a teen then so it is just speculation on my part. Do you have a nintendo ds or similar game system? They have shown that games like brain age, etc... can help your brain keep and even regain skills. They use them here with alzheimer's patients. Brain age specifically but some other games too. Please keep us posted on this as you speak to the doctors. If I lived closer to you I would go with you to help you ask all your questions and to take notes for you. Do you have a voice recorder or even an old cassette recorder? Take them to the dr appts and tell them it is because you have these memory questions. MOST people who need to see a specialist have memory problems when it comes to telling all the symptoms, history, medications etc.... An article on emotional intelligence (EQ as contrasted to IQ) said that people's EQ drops during these appts because they are stressful (just the thought of having a problem that needs a specialist is stressful) and most people forget a LOT of things that are asked/said in the appts so it is wise to take someone to note-take or to use a voice recorder. I do see the difference between fibrofog and this other set of problems. Hopefully the description of the difference would help lead a dr in the right direction to help you with this. [/QUOTE]
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So this memory thing is really becoming an issue
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