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something isn't sitting right with-me, could use some feedback pls
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<blockquote data-quote="hearts and roses" data-source="post: 434893" data-attributes="member: 2211"><p><span style="color: #483d8b">Jen, I spoke with a woman I know whose Lyme went undiagnosed for almost 7 years...until she finally found an MD whose specialty was inflammatory diseases and autoimmune diseases. This woman lives in CT but the dr is about an hour away up in MA. </span></p><p><span style="color: #483d8b"></span></p><p><span style="color: #483d8b">I have to agree that you need to have a very honest discussion with your MS dr and lay out all the tests, results and subsequent diagnosis. If he/she is worth their salt, they will listen and discuss with you and, for your peace of mind, refer you to a Lyme specialist and work with that dr hand in hand until you have a definitive diagnosis and you're satisfied that you've exhausted all efforts to find out exactly what's going on.</span></p><p><span style="color: #483d8b"></span></p><p><span style="color: #483d8b">In regards to Lisa's comment about arthritis, I have to agree. Along with the MS, you could very well be experiencing osteoarthritis in your knees/joints. Within the past few years, mine has gotten way worse, I've BEGGED my dr to test and retest me for lymes. I tested positive once and was treated once, but I was convinced I needed to be retreated. Finally, my dr retested me and again it was negative. My knee surgeon once mentioned arthritis in passing, but it wasn't until I really pressed him did he say, 'Yes, you have fairly advanced osteoarthritis and two small bone spurs'. Up until that point, he just recommended the shots and advil. Now that has stopped working. My knees ache constantly and they are swollen whenever I do anything more strenuous than normal, the left one is almost twice as big as my right. Don't rule out the possibility of arthritis. There are different kinds.</span></p><p><span style="color: #483d8b"></span></p><p><span style="color: #483d8b">Let us know how it goes, you've been on my mind a lot lately.</span></p></blockquote><p></p>
[QUOTE="hearts and roses, post: 434893, member: 2211"] [COLOR="#483d8b"]Jen, I spoke with a woman I know whose Lyme went undiagnosed for almost 7 years...until she finally found an MD whose specialty was inflammatory diseases and autoimmune diseases. This woman lives in CT but the dr is about an hour away up in MA. I have to agree that you need to have a very honest discussion with your MS dr and lay out all the tests, results and subsequent diagnosis. If he/she is worth their salt, they will listen and discuss with you and, for your peace of mind, refer you to a Lyme specialist and work with that dr hand in hand until you have a definitive diagnosis and you're satisfied that you've exhausted all efforts to find out exactly what's going on. In regards to Lisa's comment about arthritis, I have to agree. Along with the MS, you could very well be experiencing osteoarthritis in your knees/joints. Within the past few years, mine has gotten way worse, I've BEGGED my dr to test and retest me for lymes. I tested positive once and was treated once, but I was convinced I needed to be retreated. Finally, my dr retested me and again it was negative. My knee surgeon once mentioned arthritis in passing, but it wasn't until I really pressed him did he say, 'Yes, you have fairly advanced osteoarthritis and two small bone spurs'. Up until that point, he just recommended the shots and advil. Now that has stopped working. My knees ache constantly and they are swollen whenever I do anything more strenuous than normal, the left one is almost twice as big as my right. Don't rule out the possibility of arthritis. There are different kinds. Let us know how it goes, you've been on my mind a lot lately.[/COLOR] [/QUOTE]
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