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Step difficult child's diagnosis
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<blockquote data-quote="dreamer" data-source="post: 198372" data-attributes="member: 1697"><p>Im very sorry to hear of this diagnosis, yes, I am also familiar with it, my son had it as a rule out and it was due to symptom that becuz of difficult child, all our medical professionals kept insisting were in my head or due to my parenting---until we went to shriners.and due to several risk factors (Agent Orange exposure in dad, among a few other things) - that was the only reason I was FINALLY able to get Shriners to see my son.....and only reason they found my sons heterotopia. </p><p></p><p>Then when we were at RMH for my sons eye, several of the kids at RMH at that time were thre dure to chiari. And another friend of mine from interent, her child turned out to have chiari - found only as a young adult and only after years of asssorted diagnosis'es ranging from ADD, ADHD, bipolar, schizophrenia....go figure, when all was said and done her neuro decided ALL those previous symptoms were related to the chiari, due to the part of her brain that was entrapped in the bony opening.I believe the big chiari surgeons are in Wash State and Univ of Chicago? Nasty diagnosis. Im so sorry, and yes, there is something wrong to have 2 terminal kids. Many many hugs to you. and extending to stepdau and her family. Her and her family sound like troupers. I will keep all in my prayers.</p></blockquote><p></p>
[QUOTE="dreamer, post: 198372, member: 1697"] Im very sorry to hear of this diagnosis, yes, I am also familiar with it, my son had it as a rule out and it was due to symptom that becuz of difficult child, all our medical professionals kept insisting were in my head or due to my parenting---until we went to shriners.and due to several risk factors (Agent Orange exposure in dad, among a few other things) - that was the only reason I was FINALLY able to get Shriners to see my son.....and only reason they found my sons heterotopia. Then when we were at RMH for my sons eye, several of the kids at RMH at that time were thre dure to chiari. And another friend of mine from interent, her child turned out to have chiari - found only as a young adult and only after years of asssorted diagnosis'es ranging from ADD, ADHD, bipolar, schizophrenia....go figure, when all was said and done her neuro decided ALL those previous symptoms were related to the chiari, due to the part of her brain that was entrapped in the bony opening.I believe the big chiari surgeons are in Wash State and Univ of Chicago? Nasty diagnosis. Im so sorry, and yes, there is something wrong to have 2 terminal kids. Many many hugs to you. and extending to stepdau and her family. Her and her family sound like troupers. I will keep all in my prayers. [/QUOTE]
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