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Such a struggle-need ideas...
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<blockquote data-quote="Marguerite" data-source="post: 13320" data-attributes="member: 1991"><p>I feel we need to be careful to not oversimplify anything. Just as we don't diagnose on this site (because even if we were fully qualified health professionals - and some of us are) it is simply inappropriate to do this under these circumstances. We are about supporting one another and informing ourselves and each other in an atmosphere of mutual support.</p><p></p><p>I could generalise by claiming that I can always spot an Aspie or autistic kid from across the room (or schoolyard) but not only would this be wrong, but there is no way to scientifically test this. I might claim, "That kid over there is a classic Aspie!" and yet that child may not have a diagnosis. And my response to that could be, "Well, he should be assessed, because I KNOW he's got Asperger's." This logic is unanswerable because it is circular and cannot be substantiated.</p><p></p><p>Who knows? I could be close to the mark - but it's not relevant. All I can discuss is what I know and even that I have to temper with, "according to my opinion," or if I've been doing more research, "according to [xxx reference]." That's why I often explain things in terms of what worked for us, if the problem being dealt with sound sufficiently similar for our situation to be POSSIBLY relevant.</p><p></p><p>There are many problems that bring us to this board. Some of them are unique to our own children; some of them are remarkably common on this site. By sharing ideas, thoughts, suggestions we are increasing our global knowledge and resources on a topic. Sometimes the suggestions are wide of the mark; sometimes they're not. </p><p></p><p>People often post links to articles and research papers. We discuss them. sometimes we agree, sometimes we don't. But we do listen and we do discuss - it's how we all continue to learn.</p><p></p><p>But one thing is for sure - because every child is unique, chances are their problems are similarly complex and unique. If the answers were so simple and easy, the problem would have been identified and resolved long ago. Many of us on this site have long ago learned that the answers are generally more complex than we've been told to date; rely a lot more on our own spirit as Warrior Parents to get out there and keep working on our kids; and that our kids are works in progress.</p><p></p><p>Whether a condition is incurable or not; whether A always follows B and only B - not relevant and generally not accurate, because such generalisations have long ago been ruled out as unlikely.</p><p></p><p>I tend to avoid discussing bipolar except in the most general terms, because I know my limitations on the subject. I can speak about autism because we live with it. However, I know that there is so much more for me to learn. What I AM learning is that my previous knowledge, and perhaps a lot of my current knowledge, is always suspect. The books are still being written. In many cases, we are contributing to the world-wide pool of knowledge.</p><p></p><p>The news is improving, however. Conditions once labelled as permanent, unchangeable and incurable are now proving the lie to THESE generalisations. A lot of medical conditions are being redefined; parameters are changing and as a result, diagnoses are often revised.</p><p></p><p>Nothing is certain.</p><p></p><p>However, what we see, what we live with and what we want to change - these are what our daily lives are made of. For each of us it can be a solitary struggle, but our collective support is what helps us make great strides indeed.</p><p></p><p>Or, to summarise - there is more than one way to skin a cat.</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 13320, member: 1991"] I feel we need to be careful to not oversimplify anything. Just as we don't diagnose on this site (because even if we were fully qualified health professionals - and some of us are) it is simply inappropriate to do this under these circumstances. We are about supporting one another and informing ourselves and each other in an atmosphere of mutual support. I could generalise by claiming that I can always spot an Aspie or autistic kid from across the room (or schoolyard) but not only would this be wrong, but there is no way to scientifically test this. I might claim, "That kid over there is a classic Aspie!" and yet that child may not have a diagnosis. And my response to that could be, "Well, he should be assessed, because I KNOW he's got Asperger's." This logic is unanswerable because it is circular and cannot be substantiated. Who knows? I could be close to the mark - but it's not relevant. All I can discuss is what I know and even that I have to temper with, "according to my opinion," or if I've been doing more research, "according to [xxx reference]." That's why I often explain things in terms of what worked for us, if the problem being dealt with sound sufficiently similar for our situation to be POSSIBLY relevant. There are many problems that bring us to this board. Some of them are unique to our own children; some of them are remarkably common on this site. By sharing ideas, thoughts, suggestions we are increasing our global knowledge and resources on a topic. Sometimes the suggestions are wide of the mark; sometimes they're not. People often post links to articles and research papers. We discuss them. sometimes we agree, sometimes we don't. But we do listen and we do discuss - it's how we all continue to learn. But one thing is for sure - because every child is unique, chances are their problems are similarly complex and unique. If the answers were so simple and easy, the problem would have been identified and resolved long ago. Many of us on this site have long ago learned that the answers are generally more complex than we've been told to date; rely a lot more on our own spirit as Warrior Parents to get out there and keep working on our kids; and that our kids are works in progress. Whether a condition is incurable or not; whether A always follows B and only B - not relevant and generally not accurate, because such generalisations have long ago been ruled out as unlikely. I tend to avoid discussing bipolar except in the most general terms, because I know my limitations on the subject. I can speak about autism because we live with it. However, I know that there is so much more for me to learn. What I AM learning is that my previous knowledge, and perhaps a lot of my current knowledge, is always suspect. The books are still being written. In many cases, we are contributing to the world-wide pool of knowledge. The news is improving, however. Conditions once labelled as permanent, unchangeable and incurable are now proving the lie to THESE generalisations. A lot of medical conditions are being redefined; parameters are changing and as a result, diagnoses are often revised. Nothing is certain. However, what we see, what we live with and what we want to change - these are what our daily lives are made of. For each of us it can be a solitary struggle, but our collective support is what helps us make great strides indeed. Or, to summarise - there is more than one way to skin a cat. Marg [/QUOTE]
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