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Support for my sister, Dad's caregiver
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<blockquote data-quote="gcvmom" data-source="post: 461431" data-attributes="member: 3444"><p>Prayers for them all!</p><p></p><p>Good news about Crohn's (if that's what it is) or even its cousin, Ulcerative Colitis, there are many helpful drugs on the market now that weren't there 10 years ago. My difficult child 1 is fortunate in that he's been able to stick to Imuran (an immune suppressant) to maintain remission these past few years and he's been able to catch up on growth (and now that we resolved the (ahem) bladder issue, he feels GREAT). There are more powerful drugs with trickier side effects, but at least there are options that many sufferers did not used to have. There has been a LOT of progress made due to genetic research for these autoimmune diseases, and thanks to the scientific community realizing that SHARING data leads to faster progress we've learned a lot more in a shorter period of time.</p><p></p><p>Hopefully your sister has gone to the CCFA web site -- they have a lot of helpful information about inflammatory bowel diseases, and patient resources. There are some centers in the country that are better at dealing with these diseases and if she can afford to go to one (if he's not responding to treatment) she should look into them. CCFA also lets you search for clinical trials by state or zip code, so that's something else to consider.</p><p></p><p>There's also a great parent support board (similar to this one) she should check out: <a href="http://ibdsupport.dragonpack.com/" target="_blank">http://ibdsupport.dragonpack.com/</a></p><p></p><p>Hope your dad stabilizes quickly and can be moved to a safer environment. Your sister has a lot on her plate right now.</p></blockquote><p></p>
[QUOTE="gcvmom, post: 461431, member: 3444"] Prayers for them all! Good news about Crohn's (if that's what it is) or even its cousin, Ulcerative Colitis, there are many helpful drugs on the market now that weren't there 10 years ago. My difficult child 1 is fortunate in that he's been able to stick to Imuran (an immune suppressant) to maintain remission these past few years and he's been able to catch up on growth (and now that we resolved the (ahem) bladder issue, he feels GREAT). There are more powerful drugs with trickier side effects, but at least there are options that many sufferers did not used to have. There has been a LOT of progress made due to genetic research for these autoimmune diseases, and thanks to the scientific community realizing that SHARING data leads to faster progress we've learned a lot more in a shorter period of time. Hopefully your sister has gone to the CCFA web site -- they have a lot of helpful information about inflammatory bowel diseases, and patient resources. There are some centers in the country that are better at dealing with these diseases and if she can afford to go to one (if he's not responding to treatment) she should look into them. CCFA also lets you search for clinical trials by state or zip code, so that's something else to consider. There's also a great parent support board (similar to this one) she should check out: [URL]http://ibdsupport.dragonpack.com/[/URL] Hope your dad stabilizes quickly and can be moved to a safer environment. Your sister has a lot on her plate right now. [/QUOTE]
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