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Suz, Isn't tomorrow the appointment?
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<blockquote data-quote="Suz" data-source="post: 335307" data-attributes="member: 29"><p>I liked this neurologist a lot. He was very no-nonsense and didn't mince words or give us false hope. </p><p> </p><p>He confirmed that Rob's vision problems were probably permanent in this current state, which is compromised with double vision in all directions except when he's looking straight ahead. The neuro-ophthalmologist basically said the same thing two weeks ago. It would be "better" if Rob had double vision in all directions because then they could do surgery or make prism glasses to help. As it is, Rob will probably have to live with it as is. When he looks down, if he cocks his head in a certain way, he can see ok for a narrow area but the neuro-ophthal said that will probably cause longterm damage to his neck. Great. Not.</p><p> </p><p>This neuro wants me to call the neuro-ophthal to see if anyone would consider trying prism bifocals. He's not optimistic and neither am I but it can't hurt to ask.</p><p> </p><p>He said that Rob's memory and cognitive skills should hopefully continue to improve, although slowly. He gave Rob a prescription for a "cocktail" of Depakote and Prozac to help his moods, headaches, depression, lack of interest in doing anything productive, and rages (I found out about the rages today). These are all very typical behaviors with brain injuries and he has seen this mix be very helpful. I hope so.</p><p> </p><p>He said that Rob's left bicep is permanently shot, caused by nerve damage which then causes the muscle to atrophy and die. His left shoulder is lower than the right one now. There is no PT or Occupational Therapist (OT) that will rejuvenate either. Rob needs to exercise his arm so that his tricep and other muscles can help pick up the slack but his arm/shoulder will always be weak overall.</p><p> </p><p>He said Rob's days as a roofer or any kind of physical/construction job like it are over. I asked about vocational rehab and he recommended a place that I will research.</p><p> </p><p>Rob is not a student and never has been. School was torture for him. Finding a new direction for his future will be a challenge. The doctor told him to "man up" and go to school and learn a new career. We'll see.</p><p> </p><p>We were relieved to have someone be honest with us. He's going to send me a copy of his evaluation since I couldn't write "left 4th nerve palsy" and "left brachial flexopathy" and the other things he was tossing into his dictaphone fast enough.</p><p> </p><p>He told Rob that he is lucky to be alive. He said his accident should have made him a quadriplegic at the least, death probable. Even that blunt, I still don't think the seriousness of it sunk in for Rob.</p><p> </p><p>Provided the medication helps with some of the other issues, he wants to see Rob in two months.</p><p> </p><p>I expect I will cry about this later since I have a huge lump in my throat now.</p><p> </p><p>Suz</p></blockquote><p></p>
[QUOTE="Suz, post: 335307, member: 29"] I liked this neurologist a lot. He was very no-nonsense and didn't mince words or give us false hope. He confirmed that Rob's vision problems were probably permanent in this current state, which is compromised with double vision in all directions except when he's looking straight ahead. The neuro-ophthalmologist basically said the same thing two weeks ago. It would be "better" if Rob had double vision in all directions because then they could do surgery or make prism glasses to help. As it is, Rob will probably have to live with it as is. When he looks down, if he cocks his head in a certain way, he can see ok for a narrow area but the neuro-ophthal said that will probably cause longterm damage to his neck. Great. Not. This neuro wants me to call the neuro-ophthal to see if anyone would consider trying prism bifocals. He's not optimistic and neither am I but it can't hurt to ask. He said that Rob's memory and cognitive skills should hopefully continue to improve, although slowly. He gave Rob a prescription for a "cocktail" of Depakote and Prozac to help his moods, headaches, depression, lack of interest in doing anything productive, and rages (I found out about the rages today). These are all very typical behaviors with brain injuries and he has seen this mix be very helpful. I hope so. He said that Rob's left bicep is permanently shot, caused by nerve damage which then causes the muscle to atrophy and die. His left shoulder is lower than the right one now. There is no PT or Occupational Therapist (OT) that will rejuvenate either. Rob needs to exercise his arm so that his tricep and other muscles can help pick up the slack but his arm/shoulder will always be weak overall. He said Rob's days as a roofer or any kind of physical/construction job like it are over. I asked about vocational rehab and he recommended a place that I will research. Rob is not a student and never has been. School was torture for him. Finding a new direction for his future will be a challenge. The doctor told him to "man up" and go to school and learn a new career. We'll see. We were relieved to have someone be honest with us. He's going to send me a copy of his evaluation since I couldn't write "left 4th nerve palsy" and "left brachial flexopathy" and the other things he was tossing into his dictaphone fast enough. He told Rob that he is lucky to be alive. He said his accident should have made him a quadriplegic at the least, death probable. Even that blunt, I still don't think the seriousness of it sunk in for Rob. Provided the medication helps with some of the other issues, he wants to see Rob in two months. I expect I will cry about this later since I have a huge lump in my throat now. Suz [/QUOTE]
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