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<blockquote data-quote="Jena" data-source="post: 199142" data-attributes="member: 4514"><p>Lillyth - thank you for the links, I do appreciate it. I see your point it is very hard when you are dealing with doctors with whom do not have experience with certain disorders. If the doctors were sure of the BiPolar (BP) diagnosis than i wouldn't consider another evaluation yet their hesitant apparentley which is making me so as well.</p><p></p><p>Janet - Hi, I am a big girl and can take constructive criticism very well, along with the immesurable support I'm always given here, which is why I am part of this amazing community with so many amazingly smart and intuitive parents, with that being said I can totally see your point and from your perspective why you would think that I"m "denying my child a stable home life", and "driving myself batty and my child."</p><p></p><p>Yet without all the facts one should not make such rash statements. So I will explain in more detail where i have been with this and what the various doctors have said and then maybe you will see the level of confusion that I as a parent am facing, or maybe you wont' and that's fine.</p><p></p><p>I have been told by 2 doctors that it is "possible" that difficult child is bi polar, along with anxiety diagnosis, Obsessive Compulsive Disorder (OCD), adhd, and whatever else i wrote i tend to forget at this point the dxs. </p><p></p><p>The first dr. that stated such i could no longer afford at the time, I had to take my ex to court because he was not helping to pay, so we found someone more local who the nyc dr also advised. </p><p></p><p>Next doctor, He then stated after giving her the "drug for BiPolar (BP)" and it did not work after a normal time frame of 2 mos. she had adverse side effects stated clearly we need a more comprehensive testing done, i then took her for a neuropsychologist evaluation. very thorough. After spending time waiting for the report to be completed difficult child was attending in school therapy as well as private for quite sometime to no avail the therapist chosen was too passive and was not making any headway with difficult child at all, pyschdoc advised strongly to change therapist, that was a matter of weeks ago we are now looking for new therapist to work with difficult child, she is still receiving in school anxiety class therapy.</p><p></p><p>The evaluation done by columbia was well skewed to say the least. I have a very aggressive, denial stricken ex with whom fights me on everything so he got into see the testing person at columbia and shared alot of my personal info with them (why i do not know why stating that i want my child to have BiPolar (BP), lol) they then concluded very strongly and is written on such report that difficult child does not exhibit any behaviors that would indicate BiPolar (BP). I was then contacted by the hospital after the written report was then sent to my home via fed ex that after reviewing such report they noticed certain defecinies in certain areas execut. function, memory, etc. i asked to document they stated not without more money!!</p><p></p><p>No doctor has clearly stated bipolar to me other than stating "likihood" yet she is not meeting dsmv criteria she is also not displaying the classic "grandiose" thinking in their eyes at all, and sleepless nights are waring on her and she is sleeping during the day, also not fitting true hypomania or manic, they would not require sleep. they are not sure due to the many issues and she is displaying they cannot put their finger on it, there is always a strong area of doubt here.</p><p></p><p>We have tried "at length" two antipyshcotic" medications for difficult child and administered them for a good time frame both of which did not work. We do not know why, doctors do not know why, hence if it is BiPolar (BP) improvement should be shown, seroquel seemed to be best fit yet adverse affects there as well it stopped working after a while and then boom a rash when he increased dosage to get to the theraputic level. Same dr. tried to treat the anxiety since it is the most prevelant of the disorders she does not respond well to ssri's yet another "slight" indicator that is is BiPolar (BP). yet not totally true because difficult child is sensitive to medications as doctors have told me and that some kids just can't take ssri's.</p><p></p><p>I question things as a parent it is my job to do so as do many others here. I do not except the word of a dr. who reviews the file for 5 minutes with me in the office, takes no real time to review her file her behaviors and truly"chart it" as you say and follow the progress. I do that at home. If doctors would say to me yes jen it is BiPolar (BP) 85&#37; sure of it, let's try a cocktail of medications, then i'd move forward with it. Yet that is not what I am hearing from these doctors. Diagnosing BiPolar (BP) takes years as you stated of observing and charting the child's behaviors, therapy, etc.</p><p></p><p>In my opinion there is a reason why the previous medications have not worked, there is a reason why these doctors are not sure it is a mood disorder. Current dr. sent letter to the school recently i found out and worded it very carefully to ensure he covered himself and did not diagnosis BiPolar (BP) at all. </p><p></p><p>I am one with whom is not going to pop her on multiple medications' i've done my research and great harm could come to her if i just fold and say ok let's pop in two medications, i also have to trust my gut and intuition. So, if taking her for another evaluation just to ensure it is not something that they missed, that is what i need to do as a parent than it is just that, plus mental health is a grey area as we all know and process of elimination is key at times. </p><p></p><p>I am not looking for a magical answer, i am looking for a somewhat accurate diagnosis, without all the doubt surrounding it. That diagnosis is anxiety disorder, Obsessive Compulsive Disorder (OCD), and depression (bouts of it though) and as you know serious sleep issues. </p><p></p><p>So, there's alot more yet too long to list. Point being is that the doctors are not sure, medications have been tried and given and extensive therapy as well. Yes it is true she needs one doctor for a period of time and the switching has to stop yet when i place a call into the office and am still waiting ummm 7 days for a return phone call that is not acceptable to me, i'm sure he doesn't like to wait for his check from our insurance company. Also he is not willing to back me in a letter stating why he would prescribe difficult child the thorazine. So if he's not willing to back his word then he's out and gotta go in my eyes. I've got an ex husband contacting attnys due to him prescribing the medication, trying to get a court order in place to stop the administering of such drug,i've got a school up in arms regarding this medication, and now stating it is a "home problem", so unfortunately i have to cover myself and watch my back as well here. </p><p></p><p>We are all different, we make different choices, and different decisions concerning our difficult child's some better and more concise than others. Yet part of the beauty of this website is to vent, to open new threads to throw out ideas, etc. I am not looking for the trashman's approval or my neighbors, infact the only ppl of which know of this are you guys, my family and 2 close friends. So if you find my threads confusing, or my approach towards difficult child's situation upsetting in anyway you have the choice not to respond to my threads. Yet I do appreciate you taking the time to share your thoughts, yet the key here and i have been guilty too of it from time to time is before making "rash" statements ask questions. </p><p></p><p>Thanks again</p><p>Jen</p></blockquote><p></p>
[QUOTE="Jena, post: 199142, member: 4514"] Lillyth - thank you for the links, I do appreciate it. I see your point it is very hard when you are dealing with doctors with whom do not have experience with certain disorders. If the doctors were sure of the BiPolar (BP) diagnosis than i wouldn't consider another evaluation yet their hesitant apparentley which is making me so as well. Janet - Hi, I am a big girl and can take constructive criticism very well, along with the immesurable support I'm always given here, which is why I am part of this amazing community with so many amazingly smart and intuitive parents, with that being said I can totally see your point and from your perspective why you would think that I"m "denying my child a stable home life", and "driving myself batty and my child." Yet without all the facts one should not make such rash statements. So I will explain in more detail where i have been with this and what the various doctors have said and then maybe you will see the level of confusion that I as a parent am facing, or maybe you wont' and that's fine. I have been told by 2 doctors that it is "possible" that difficult child is bi polar, along with anxiety diagnosis, Obsessive Compulsive Disorder (OCD), adhd, and whatever else i wrote i tend to forget at this point the dxs. The first dr. that stated such i could no longer afford at the time, I had to take my ex to court because he was not helping to pay, so we found someone more local who the nyc dr also advised. Next doctor, He then stated after giving her the "drug for BiPolar (BP)" and it did not work after a normal time frame of 2 mos. she had adverse side effects stated clearly we need a more comprehensive testing done, i then took her for a neuropsychologist evaluation. very thorough. After spending time waiting for the report to be completed difficult child was attending in school therapy as well as private for quite sometime to no avail the therapist chosen was too passive and was not making any headway with difficult child at all, pyschdoc advised strongly to change therapist, that was a matter of weeks ago we are now looking for new therapist to work with difficult child, she is still receiving in school anxiety class therapy. The evaluation done by columbia was well skewed to say the least. I have a very aggressive, denial stricken ex with whom fights me on everything so he got into see the testing person at columbia and shared alot of my personal info with them (why i do not know why stating that i want my child to have BiPolar (BP), lol) they then concluded very strongly and is written on such report that difficult child does not exhibit any behaviors that would indicate BiPolar (BP). I was then contacted by the hospital after the written report was then sent to my home via fed ex that after reviewing such report they noticed certain defecinies in certain areas execut. function, memory, etc. i asked to document they stated not without more money!! No doctor has clearly stated bipolar to me other than stating "likihood" yet she is not meeting dsmv criteria she is also not displaying the classic "grandiose" thinking in their eyes at all, and sleepless nights are waring on her and she is sleeping during the day, also not fitting true hypomania or manic, they would not require sleep. they are not sure due to the many issues and she is displaying they cannot put their finger on it, there is always a strong area of doubt here. We have tried "at length" two antipyshcotic" medications for difficult child and administered them for a good time frame both of which did not work. We do not know why, doctors do not know why, hence if it is BiPolar (BP) improvement should be shown, seroquel seemed to be best fit yet adverse affects there as well it stopped working after a while and then boom a rash when he increased dosage to get to the theraputic level. Same dr. tried to treat the anxiety since it is the most prevelant of the disorders she does not respond well to ssri's yet another "slight" indicator that is is BiPolar (BP). yet not totally true because difficult child is sensitive to medications as doctors have told me and that some kids just can't take ssri's. I question things as a parent it is my job to do so as do many others here. I do not except the word of a dr. who reviews the file for 5 minutes with me in the office, takes no real time to review her file her behaviors and truly"chart it" as you say and follow the progress. I do that at home. If doctors would say to me yes jen it is BiPolar (BP) 85% sure of it, let's try a cocktail of medications, then i'd move forward with it. Yet that is not what I am hearing from these doctors. Diagnosing BiPolar (BP) takes years as you stated of observing and charting the child's behaviors, therapy, etc. In my opinion there is a reason why the previous medications have not worked, there is a reason why these doctors are not sure it is a mood disorder. Current dr. sent letter to the school recently i found out and worded it very carefully to ensure he covered himself and did not diagnosis BiPolar (BP) at all. I am one with whom is not going to pop her on multiple medications' i've done my research and great harm could come to her if i just fold and say ok let's pop in two medications, i also have to trust my gut and intuition. So, if taking her for another evaluation just to ensure it is not something that they missed, that is what i need to do as a parent than it is just that, plus mental health is a grey area as we all know and process of elimination is key at times. I am not looking for a magical answer, i am looking for a somewhat accurate diagnosis, without all the doubt surrounding it. That diagnosis is anxiety disorder, Obsessive Compulsive Disorder (OCD), and depression (bouts of it though) and as you know serious sleep issues. So, there's alot more yet too long to list. Point being is that the doctors are not sure, medications have been tried and given and extensive therapy as well. Yes it is true she needs one doctor for a period of time and the switching has to stop yet when i place a call into the office and am still waiting ummm 7 days for a return phone call that is not acceptable to me, i'm sure he doesn't like to wait for his check from our insurance company. Also he is not willing to back me in a letter stating why he would prescribe difficult child the thorazine. So if he's not willing to back his word then he's out and gotta go in my eyes. I've got an ex husband contacting attnys due to him prescribing the medication, trying to get a court order in place to stop the administering of such drug,i've got a school up in arms regarding this medication, and now stating it is a "home problem", so unfortunately i have to cover myself and watch my back as well here. We are all different, we make different choices, and different decisions concerning our difficult child's some better and more concise than others. Yet part of the beauty of this website is to vent, to open new threads to throw out ideas, etc. I am not looking for the trashman's approval or my neighbors, infact the only ppl of which know of this are you guys, my family and 2 close friends. So if you find my threads confusing, or my approach towards difficult child's situation upsetting in anyway you have the choice not to respond to my threads. Yet I do appreciate you taking the time to share your thoughts, yet the key here and i have been guilty too of it from time to time is before making "rash" statements ask questions. Thanks again Jen [/QUOTE]
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